Can someone tell me exactly what I should tell the lab to make sure I get the exact right tests done?

I understand that there are multiple tests with varying levels of accuracy. I would hate to order the test and find out later that I didn't order it properly?

Also, she told me that, if diagnosed (I have had symptoms for 2 or more years), I should just do the IV. Can someone tell me how that works. Do I just walk around with a wire in my arm 24/7?

I apologize for my ignorance. Lyme was only suggested as a possible cause for my problems (sleep disorder, fibromyalgia, ADHD, floaters, ringing ears) last week and I am tired of being experimented on by my other doctors (anti-depressant #3).

Welcome to LymeNet!

Good questions...

I have one for you- do you have a LLMD yet? If not, let us know so we can help you there, OK?

The reason I ask, is because some docs like to run different tests, depending on your symptoms, and which labs they work with...and if you don't have the doc apt yet, you MAY have to run another round of tests when you do see the doc...just something to take into account.

The standard for a basic test would be a Western Blot through IgeneX lab. Don't waste your time or money with an ELISA.

But, I also want you to be aware that NO test is 100% accurate, and since you have been ill for 2 years now, you MAY not get a positive result even with the WB.

This is why some docs will do other tests like a PCR, urine, FISH, or others. And treat based on symptomology alone looking for a test to only confirm diagnosis.

But, it is important to test for lyme, and also for the many various co-infections that may be plaguing you as well.

You can find more information at the Igenex site:

IgeneX, Inc.
Tests for Lyme, Babesia, Ehrlichia, and Bartonella #800-832-3200 www.igenex.com

Concerning IV therapy...this is an important decision that should be made between you and your LLMD. Each patient is different regarding their response to antibiotics...so, though it is good to get feedback...the decision should really be based on your individual case, and what your experienced LLMD chooses to help you with.

There are many different catheters. Perhaps this post will help with information:

Central Line Catheters: http://flash.lymenet.org/ubb/Forum1/HTML/021365.html
Problems: http://www.venousaccess.com/complications.htm

Also, here are a few New Member links for you:

LymeNet Links for new members: http://flash.lymenet.org/ubb/Forum1/HTML/009342.html

Dr. Joseph J. Burrascano's Guidelines: http://www.ilads.org/burrascano_1102.htm

Rose's 15 Facts for Newcomers: http://flash.lymenet.org/ubb/Forum1/HTML/011977.html

Symptom Check List: http://flash.lymenet.org/ubb/Forum1/HTML/021063.html

Abbreviations for Lyme-speak: http://flash.lymenet.org/ubb/Forum1/HTML/020494.html

Making the most of your LLMD visit: http://flash.lymenet.org/ubb/Forum1/HTML/020605.html

Camp A and Camp B: http://flash.lymenet.org/ubb/Forum1/HTML/021395.html

Something to share with friends and family members: http://flash.lymenet.org/ubb/Forum3/HTML/008886.html

Please, never apologize for any questions...I am sure you will have many more to come! Please let us know if we can be of further assistance.

My best,
Melanie

It's that simple, but, you have to call and get the price, for unless you have Medicare, you have to pay up front with the blood work.

I've done it that way three (3) times already with absolutely no problems. The instructions on the forms tell the person taking your blood just what tubes it need to be in and that the blood has to be spinned.

It takes another three weeks, at least, to get your results back. I'm just giving you an option for saving about a whole nother week.

Rosemary

editing here to say, where's my manners? Welcome to LymeNet and a good place to start is with the links that Melanie has provided you.