Second...the tremors...are they do you think a more emotional variety...as in anxiety like you feel like you're shaking inside and not that noticeable on the outside?? If that's the case then you may want to try Lexapro...it's a ssri and helps also with depression and anxiety for me and I've noticed the tremors are at a minimum.
If they are more noticeable like a parkinsons/lyme condition. A friend of mine has Parkinsons/lyme and she got on a antiviral medication that she told me has not eliminated but greatly reduced her tremors.
I don't blame you for getting off the anti seizure meds...they help some folks but they did nothing at all for me.

Make yourself a copy of Burascano's protocol and follow it...especially the supplements...I know you'll feel better...but give it time to work also like about three to four months you should notice less symptoms bothering you.

Good luck....................the zman

I had (!) experienced tremors for 18 years. They are in complete remission now.

How?

I was given a healing through the grace of the Lord Jesus Christ. It went like this,

First, successful Lyme disease therapy.

Second, (and most important), MERCURY chelation. Remove all of your "silver" fillings with a competent dentist. Then a sensible mercury chelation program.

It worked. All the way. For real. 18 years!

To give you an idea. I squeezed the toothpaste tube with my left hand for the first time last week! No big deal to many, BIG first for me!

Keep on, keepin' on!

I'm gonna comment on Lazer's tremors and hopefully he will chime in and correct me if I tell something wrong

.....the way I see Lazer's head tremor is kinda like when you get a sudden chill and have a split second of a twitch thing.

This seems to happen randomly and if you aren't really looking directly at him when it happens, you really don't see it. I notice it mainly when he is carrying on a conversation and I am looking directly at him.

I have seen it too when he is in motion, like bending to pick up something or reaching for something.

His hand tremors are a little different. If he holds his hand/arm outward it's a side to side kind of motion with his fingers. Almost a jerky type movement, side to side. Not the whole hand shaking.

He says that doing fine tasks with his hands (like tying fishing line) is very difficult. His hands don't want to work right.

He also says he's been having tremors in his shoulders. This is a new symptom.

He has some "twitching" when he sleeps. I have seen this several times mainly in his face in the cheek and mouth areas. This lasts for longer periods of time rather than just a split second thing.

He also "jerks" when he sleeps. Like if he were dreaming that he was falling and suddenly jerks. This is more of a whole body thing but I've seen him do this and it only be a leg or an arm.

Lazer is actually very entertaining when he sleeps! His brother and I get a kick out of listening and watching him when he dozes off in the recliner.

He will moan, mumble, and talk in response to what is on the television. Even curses sometimes : ) Grinds his teeth too...

Lazer, you didn't know we were watching did ya?

Love you buddy!

Aniek -I've never been tested for myocolus - what is that exactly? Spiro, protozoa, other? Testing - lyme lab or will GP be able to run it from local lab? Thanks for any info.

Myoclonus is just the name of the symptoms, there's no test. It's uncrontrollable jerks. I realized I had myoclonus from some of Terter's posts, and then doing a google search. Here's a link to information: http://www.ninds.nih.gov/health_and_medical/pubs/myoclonus_doc.htm#whatis

I mean they are the doctors, but it seems to me that this may not be directly associated with the actual infection, but maybe a secondary thing... like as suggested in this thread maybe an Mg deficiency caused by lyme. I mean all they would have to do is TRY it to see if that is the case. covering it up with medication doesn't seem to be the way to treat an underlying problem. this just seems like a band-aid to me.

I mean u wouldn't fix a leaky roof by sticking a bucket under it... u would fix ur roof. this seems like an obvious thing to me. my provider isn't really taking this tremor thing seriously... she is working under the assumption that this is all caused by lyme, which I think is kinda naive of them to just assume such a thing. if lyme could be diagnosed with 100% certainty, then that would be a safe assumption. I don't think a bunch of half assed results from a lab like igenex that has very liberal standards for determining lyme should be the basis for why they think lyme is cause of my tremor. a lot of people from jersey are down here at ECU and I ahve heard at least 3 or 4 stories where their relatives were in much worse shape than me and were given less antibiotic treatment than i and are back to their normal selfs. it is just very discouraging and I feel underlying causes are being neglected by the all-encompassing lyme thing.

i have been in treatment since last october... there has been no improvement in my tremors. in all honesty they have gotten worse. some of u may say it is my treatment regimen and that they don't believe in what my llmd is doing or whatever. i have gotten a few of those post. i feel that going after this lyme thing 100% may be masking the real underlying thing that i may have.

the risks of long term antibiotic treatment are very high. I read a study about increased cancer risk with use of antibiotics. and these people in the study have done far less antibiotic treatment than I. I would suggest to anyone newly diagnosed with lyme to make damn sure ur diagnosis is sound b4 going through antibiotic treatment because from my experience, it is not working. it may be working for some people, but just don't get ur hopes up and believe 100% this is gonna cure u of ur symptoms. I have believed that pipe dream for way too long. but hey this may be only becuz I don't have lyme disease, and others do. that is what i am leaning towards the longer my treatment goes.

I don't wanna seem like I am trolling. i am truly concerned about possible misdiagnosis and I want people to know that this could also be a possibility. someone's condition could get much worse by believing everything falls under the all encompassing lyme blanket of symptoms. I don't trust anything that is driven by the dollar. and the fact that I have a 5 digit bill surmounted from my treatment so far doesn't really ease my mind. I know i can't be the only person with these doubts. things just don't seem to add up. and everything seems to be the exception to the rule of medicine when it come to lyme.

but this is such a sh*tty disease. it is hard to believe certain things about it, and it truly takes a step of faith to accept some of the aspects of lyme and its treatment and I am not comfortable with that. for every bit of lyme info i find proving what many of u believe in this forum... i can find prolly 3 times as much info disproving it. I have to ignore a lot of stuff that i read to believe what i do about this disease.

no one seems to be getting better on this forum... and if they do, I question if they will relapse or if they even had lyme. i truly do want the truth and i want me and the people in this forum to get better. I think I and many of u have endured enough. my patience is wearing thinner everyday and my hope dwindles while waiting for some kind of breakthrough in my treatment. I mean if I were to develop a lyme specific symptom that would make me feel better if that sounds weird enough. it sux that everyone around me is living their life enjoying their youth while I am feeling like sh*t. as much support that I am getting from u guys on this forum, my mother, my roommates, and my provider, i feel like this is a lone battle. I know I am not the only person that feels this way. I wouldn't wish this sh*t on anyone.