trueblue
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Member # 7348
posted
I have not had arthritic type stmptoms much for many years and last week was woken by severe pain in my right hip. So bad I couldn't move for a while. I generally sleep on that side.
A few days later when I went back to sleeping on that side I was woken by very bad outer ear pain that seemed to flare all the joints on that side of my body. (see other thread) I rolled onto my back but was unable to roll myself back onto the right side of my body due to the pain and weakness, for several hours.
This kept happening for a few days. This morning I was woken by extremely bad pain in my right hip again. An hour after and an advil later (plus a good coating of biofreeze) I can move but I don't know why this is happening.
Most of my symptoms for the past few years have been almost entirely neuro.
What's attacking my joints? I cannot lay down on either hip and most of the joints on my right side are messed up. On the left it's mostly contained to hip and pinky finger. both SI joints and my right shoulder and jaw are whacked as well. (Actually every joint in my body feels affected.) And bunches of things are going numb. i've had stiff necks, spine and headaches for a week accompanying it.
Crap, I don't know how to stop this and need to drive 45 minutes to a funeral on my way to the doctor this morning then sit in the office for 3 or 4 hours and drive an hour home.
I'm hoping to treat Babs asap. As i've been untreated and symptomatic but now i don't know what this is. Does something else need to be addresses first?
Ow! Help! anyone know what's going on here? What attacks joints so suddenly after so many years?
I'm not sure anyone can help me understand this or find away to stop it. I needed to put it out there. I can't deal with the **** anymore. I am not on any treatment and frankly can figure out what I'm dealing with anymore.
Anyone have any help, ideas, words of wisdom?
Ow! Blast and damn! Help!
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
Wow True, this disease is really frustrating.
Joint pain has been my biggest symptom and the only one remaining. In January I was diagnosed with Rheum. Arthritis which was devastating. I have read and researched the RA aspect of this disease and am somewhat relieved to know Lyme is a common cause. My relief is due to the fact that Lyme can have a cure whereas RA cannot.
So, in search of that cure, I have discovered the following things.
Bacteria is a strong suspected cause of RA. Rheumatologists for the most part aren't buying that and aren't pursuing it which completely confuses me because they readily admit they don't know what causes RA and they don't know how to cure it.
So many people find general practioning doctors who are willing to treat RA with abx. Mycoplasma is the #1 suspect.
There is LOTS of research on this and much promise in treatment studies over 50 years. Studies of the synovial fluid around affected joints show 3 bacteria and only 3. The 3 are mycoplasma, streptaccous and borellia. All 3 are not always present, but no other bacteria has been identified in the fluid.
So there is theory #1.
Theory #2: Infected Root Canals cause RA symptoms. I had read the many posts here at Lymenet about infected teeth. My teeth give me no problems and I take excellent care of them, however, I have had 5 root canals.
I didn't worry about my teeth until I read about the connection when researching RA. Seems your teeth do not have to hurt but can still be causing problems. So I sought two opinions and both identified the same teeth as being infected. 3 of the 5 root canals plus one of my two cavitations where wisdom teeth once were.
I was given a tooth chart showing the meridians each tooth sits on and the parts of the body those meridians (energy channels) travel to. I was shocked to see that the infected teeth are sitting on the channels which travel to the places I am suffering the most RA symptoms.
There is hope that when I pull these teeth, my RA symptoms may just disolve away.
Theory #3
Systemic yeast caused by Leaky Gut Syndrome can cause RA symptoms. It also can mimic Lyme symptoms. Lyme can damage the Gut causing Leaky Gut. (kinda like "which came first, the chicken or the egg)
Whenever I take Diflucan, my joint flare up badly, so I was tested for Leaky Gut and yep, I have it. Change of diet has been very helpful in reducing my joint pain. Doctor has me on many herbal meds for this and will begin IV treatments 5/12/06. I'm not sure what he is giving me by IV but will find out.
I'm sure you don't want to think you have RA and I don't blame you for that. Hopefully, you don't. But it still doesn't hurt to include the above causes of joint pain in your research as to your possible cause of pain.
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
Sorry to hear abou this coming on so bad.
Are your joints actually swollen? I have pain in and around my joints, but is soft-tissue related. Inflammation of tendons and muscles. I don't get the typical swelling with RA and other arthritis. Although I used to in my knee.
Whether or not there is swelling could mean different form of treatment. If you have joint inflammation, an anti-inflammatory might work. If it's related to tightening muscles, then a muscle relaxer can work.
I get pain in many of the same areas you do. The direct cause is really the muscles tightening and putting pressure on nerves that causes me to feel pain near the joints. The fact that you have numbness suggests it might be somehow related to nerve issues.
I also think my muscle problems are somewhat neurological. This is because the muscle relaxer that helps, Flexeril, works in the neurological system to relax the muscles.
Finally, plaquenil really helps reduce some of my pain. I do get stiffness and pain in my hands and wrists that was really minimized by plaquenil. Plaquenil is often used to control symtpoms in people with RA and Lupus.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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Carol in PA
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Member # 5338
posted
Trueblue, It's possible that a systemic enzyme that works to reduce inflammation might help you.
I have some that I could mail you. Carol
Posts: 6947 | From Lancaster, PA | Registered: Feb 2004
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trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
Thnaks you guys, Sorry can't write much now, tough day.
Luvs ~ I'm not sure what this is about I test negative for RA and usually my joint problems are like Aniek and Cave describe. This is different and I've had it beofre just not in a very long time.
It's in the actual joints with stiffness and swelling maybe a little heat in additon to my usual neuro/muscular stuff. Also headaches with double vision (the fun just never ends).
Carol, I'll read up on the enzymes. I do ahve some here but am not sure if they'er anything close and am too tired to do anything about it right now.
Thank you all for your replies.
The trip to the doc was unfruitful, for lack of a better word.
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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posted
Trueblue, are you on abx? I think you must be, but maybe not long enough yet. I've had terrible aching joints and hips, but it's improved a lot after about 7mos of abx. However, I still can't exercise like I'd like...it's a very slow process, so it's frustrating.
You might try organic apple cider vinegar tonic, mix approx equal parts of honey w/organic ACV, with water to taste, and drink once or twice a day. Many people find it helps relieve the arthritic pain. I think it also serves as a good detox agent.
Posts: 449 | From Pasadena, CA, usa | Registered: Aug 2005
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trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
psano, I am not on ABX and haven't been in a long time. Can't seem to get anyone to treat me right now, when I really need to be.
I have never tried Apple Cider vinegar, It's worht a shot. thank you
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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JimBoB
Unregistered
posted
Your symptoms sound a lot like mine last year. AND my duck wouldn't treat me either.
SO, I went the herb route.
After about two or three days on Devil's Claw, Cat's Claw and Saraparilla, the joint pain was almost all gone.
Then a few days later, I started taking Andrographis, and Resveratrol in addition to the above herbs, and my blurry vision and brain fog lifted.
I got better and better UNTIL I started Tetracycline, and then got worse. Took seven days off, then started Doxycyline, and got worse again after a couple of weeks. Couldn't take the pain anymore after 24 days so quit the Doxy.
I was taking the herbs all that time too. It took awhile, but did get better just on herbs. Then I fasted for about 4 or 5 days, and got lots of my pains back. (I totaly quit the herbs too, when on the fast).
I restarted the herbs, but has taken quite awhile to get back to normal. AND I do get pain once in awhile, and also the blurry vision has also come back a few times, but pretty good now.
I have been standing, walking and kneeling on concrete pretty much for the past few months working on this new house and now cleaning up my garage and putting up shelves, etc.. And because of accidents I was in years ago, I can't stand on concrete very long without suffereing a lot of pain. THis was before the Lyme also.
So I am stiff and sore from that these days. BUT I expect that when doing those things. I am 64 and arthritis runs on my mother's side of the family. So have been getting that with or without the Lyme.
But I can tell the difference in the Lyme arthritus. Many herbs help that. And IF I wasn[t spending 10 to 12 hours a day on the concrete, I would be much better right now too.
The herbs really do work. Don't take MY word for it, try them for yourself. FOllow Buhner's protocol and expanded protocols as close as you can, and I think you too will receive relief.
posted
If you haven't been on abx for a long time then it is probalby the lyme/co-infections flaring. The stiff neck and headaches could be Babesia...could you see a LLMD?
I had a sore right hip and when I took Ketek it got worse, my LLMD said we were getting to the deeper spirochetes, now it is much better. Ketek is so strong, but you need to research this as there are some risks associated with it and it needs to be under the supervision of a doc.
Apple cider vinegar though a helpful supplement does not directly treat Lyme. I have take it in the past and now just use it in salads.
5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
hi trueblue
Sorry to hear about your pain in your joints.
my best guess would lay with cave and the others if you haven't had treatment for a while the lyme & co-s may be coming back. I have found in my experience it can come back and decide to settle any place it wants. Why ? because it can.
If you can't find a LLMD right now how about trying bruhner's herbal protocal. Do you have his "healing lyme book?"
This would be a palce to start help in the "natural antibiotic" herbal world.
hang in there dana
I found Stephen Bruhners book on amazon for about $15. I read it but had a hard time finding the herbs,just enough to start. As soon as my tummy gets better I am going to start. For now I am rifing.
Here's a thread I found helpful -carol's post 8 posts down. she make it very easy to find the places on where to buy the herbs in Bruhners book to start. Not very expensive-considering the cost of RX meds.
Not sure this is the route you want to go -just thought I would throw it out there.
posted
I have burning hip pain today, and weakness, e.g., walking up stairs. I did, however, lose my mind, and walked about 1 and 1/2 hours two days in a row. I guess I over did it. I have in the recent past been able to walk at least an hour, maybe every other day, or two days, and there was no post-exertional pain. I just wonder what's going on, and of course, how I can move through it. But it may be something that's here to stay ? I'm 51, and never know whether this is normal stuff, or post-Lyme related stuff.
Posts: 90 | From New Jersey | Registered: Nov 2005
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
Trueblue,
Another thought. It's possible one of your joints got out of alignment which is just making things worse.
When my SI joints and hips hurt, my physical therapist discovered my pelvic area was getting out of alignment. I don't think it was the full cause of it all, but it did make things worse.
The exercise on the attached link helps me get your pelvic area back in alignment and it's really simple, low impact.
1. Lie on your back, with your legs bent as if you were sitting on a chair. Your thighs should be straight up from a 90 degree angle from your back, and your calf parallel to the floor. __ o__[ (That's my weird computer picture of how you look)
2. Take you right leg and cross it over the left so your right ankle is just below your left knee, and your right food is just to the left of the knee.
3. Hold your left thigh with your hands clasped behind your left thigh.
4. Pull your left thigh towards you with your hands while pushing your left thigh away from you creating resistance. At the same time, push away with your right hip. Keep your back completely on the floor and try to keep your hips in an even line.
Don't push or pull hard. It's just a simple, slight exercise creating some resistance. Won't cure anything, but might make it a little better.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
Thanks Jimbob ~ I haven't had this type of arthritis in a long time (and hopefully it will be short lived.) Herbs certainly may help the situation but I also know that this is something that resolved with ABX treatment, many years ago. Nothing is out of the question or answer, if i go with herbs or abx or both, it'll get taken care of. Just feeling frustrated and impatient.
Thank you Emma, I knew that apple cider vinegar didn't treat lyme. And you are very right I have Lyme and Cos flaring big time, even I'm surprised.
I'm working on the LLMD thing and I do ahve untreated long standing Babs.
quote: originally posted by cave76:
suki wrote: ***If you haven't been on abx for a long time then it is probalby the lyme/co-infections flaring***
I'm sure that's right. As soon as you can get on treatment the better. But sometimes that is a huge problem, especially if a person lives where there are hardly any doctors who will treat Lyme let alone a Lyme doc.
Add to that, lack of insurance, lack of money, lack of any sustainable energy or nearby friends or family to assist and it becomes a mountain to climb.
Perhaps people who live in areas that don't have llmds close by can give some suggestions on how they overcame all of the above obstacles?
Just one of those obstacles is tough. Add them all together------ sigh.
I have nothing to add to that. Thank you cave for understanding and explaining.
Ack, i need to go find some tissues and then will answer the rest of you.
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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Andie333
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posted
Hey, True...sorry to hear that all this is happening.
Actually, the searing joint pain you described was one of my first symptoms. I had it in my right knee and hip. Some signs of arthritis seemed to show up on MRIs but not enough to explain the severity of the pain.
My knee finally started swelling, until my knee was indistinguishable from my thigh in size.
After I went on abx and supplements, that pain and swelling started to diminish significantly.
In addition to abx, I used acupuncture (addressing those specific places) and detox foot pads. I also tried a chiro, but that got me nowhere.
You mentioned first having neuro symptoms with your Lyme. My neuro symptoms didn't happen until I'd been on abx for about 5 months -- and then they flared with a vengeance.
Now, I still use the detox foot pads and have acupuncture. I also use essential oils in those areas, because I think it really does pull the ketes out of hiding. My reaction to the oil can be herxy but, again, I think it's been effective.
I'm glad you're in pursuit of a LLMD and just hope you start getting some relief soon!
Andie
Posts: 2549 | From never never land | Registered: May 2005
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Carol in PA
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posted
Trueblue:
Fish oil will reduce inflammation.
Carol (ducking, because I know what you think about fish oil) Posts: 6947 | From Lancaster, PA | Registered: Feb 2004
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trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
Dana, thank you for putting that out there and for the link to Carol's post.
I agree with you and cave and others and do know it can and does come back any darn place it wants. (Sounds like a punchline to a joke I can't remember.)
It is time to do something, for sure.
I did take some superenzyme stuff I had on an empty stomach last night and that helped slightly as did some green tea then the muscle relaxer... Not all at once mind you. i did sleep and that was good, too.
I feel a little better today. Not sitting around whimpering, in any case. That's a start!
Say Yesh ~ yes, you lost your mind and over did it. Been there done that. I know this is not normal 51 years old stuff because I know it's not normal 49 year old stuff.
Back down and start walking less and work up again. I think it's fantastic you are able to do that amount of walking, period. Good for you! I have rehabbed from this before and have found i needed to go so unbelievably slow it seemed ludicris(sp?) but it did work just really slow. I remember doing 3 of each excersize 2 x a day and that being an enormous amount.
Aniek ~ thanks for the excersizes, you did trigger something I forgot with them. I also have an adjustment the chiropractor taught me to adjust the pelvic area. Just gave it a shot, it's one of those things I always forget until I get to his office.
I will do the others too and love your computer drawing, lol, can't make heads or tails of it but love it all the same.
One of the adjustments he makes involves pulling my knees apart while he creates resistance. At home this can be done by putting 2 tennis balls in a tube sock, sitting upright and putting them between your knees and pressing against them for a little while and releasing. (Ok, that sounds waaaaay weirder than it is!) It was recommended to do this with your fists between but that hurts my hands.
I use that same contraption for stretching out the muscles in the back of my neck, Good for when you can't have a cranial sacral massage which is usually.
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
Andie ~ The joint pain was one of my early symptoms as well, i developed the neuro stuff later. It took arounf 12 years and a major trauma until I got diagnosed.
For me it was right, foot, hip and shoulder, none of them really swelled much just were very wrong and painful. Bone scans a few years later showed some uptake in those areas but only the AC joint in my both shoulders were actually destroyed.
Thank you for your input and support and i know that these things have improved enormously with treatment.
Carol, EWWWWWWW, come here a second I want to fish burp on you. How about I just eat some fish?
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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Aniek
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posted
quote:Originally posted by trueblue: I will do the others too and love your computer drawing, lol, can't make heads or tails of it but love it all the same.
Somehow spaces disappeared and what should be the calves ended up over the head...oops
I hope you continue to feel better. I'm supposed to be spending the day studying for finals but I'm distracted by burning in my hip and foot. The eternal dilemna...what is harder to study with...pain or an extra vicodin?
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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Andie333
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Member # 7370
posted
Hey, True --
Your last post reminded me that I heard unilateral symptoms were almost always indicative of Lyme.
Andie
Posts: 2549 | From never never land | Registered: May 2005
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trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
quote:Originally posted by Aniek: Somehow spaces disappeared and what should be the calves ended up over the head...oops ------------------------------------------------- -------------------------------------------------
The eternal dilemna...what is harder to study with...pain or an extra vicodin?
I can tell you, for sure, it's more fun on extra vicodin. *nods* Whether you'll remember it is another story entirely.
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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trueblue
Frequent Contributor (1K+ posts)
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posted
quote:Originally posted by Andie333: Hey, True --
Your last post reminded me that I heard unilateral symptoms were almost always indicative of Lyme.
Andie
Actually, that was one of the things that clued me in that this was Lyme, now that you mention it.
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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posted
Man, I sure hope you can get some treatment VERY SOON!! My Lyme took many years to show up with constant arthritic pain. The neuro came later. Ya never know what Lyme will bring and when!
Hope you find some natural remedies that help. UGH, I hate pain!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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trueblue
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Member # 7348
posted
quote:Originally posted by Lymetoo: Man, I sure hope you can get some treatment VERY SOON!! My Lyme took many years to show up with constant arthritic pain. The neuro came later. Ya never know what Lyme will bring and when!
Hope you find some natural remedies that help. UGH, I hate pain!!
Me too, too-too! I'm trying. (I do not want to hear any of you saying VERY!)
Everyday a new adventure! Ugh!
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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And you are very right I have Lyme and Cos flaring big time, even I'm surprised.
I have nothing to add to that. Thank you cave for understanding and explaining. ![[Roll Eyes]](rolleyes.gif)
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