posted
I tried to do a search but couldn't find any information regarding this research doctor.
His name is Dr. Gary W. He works at Westchester Medical Center. He is one of the doctors that conducts lyme studies regarding treatment and such.
All of his studies seem to show that 4 weeks of treatment kills off all the bugs?
I have a friend at work who lives in his apartment building. She mentioned my case to him and he told her that I should give him a call.
I have great insurance coverage, but he dosen't take insurance. I believe he charges $500 for the 1st visit.
Has anybody gone to him? I was told that Lyme is what he specializes in! He has many Lyme studies that I've found on-line
He is the Vice Chairman Department Of Medicine which must mean something?
I've seem a couple of his studies on-line. It appears his findings are that once you have the one month course of IV treatment, the bugs should all be dead.
What I feel afterward is my body not realizing that the bugs are dead. And also that some of the damage is very hard to get rid of.
Should I go to this Doctor?
I've been on Rocephin for 8 weeks on 4 weeks off than 4 weeks on and still feel like poo.
My treating doctor her in NYC has mentioned Dr. W's findings from day one regarding my illness and why I still feel like poo.
I was also put on 500 mg of zith after the last 4 week iv treatment.
I would pay $500,000 to get better all ready!
I just don't want to spend a good $500 for a doctor to tell me I'm all better, when I'm not!
Thanks for you help!
Posts: 6 | From North Brunswick | Registered: Mar 2004
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Rita
Unregistered
posted
For more info on this duck go to www.actionlyme.com and look for his name in the left column.
posted
Doubt if you will get much response about personal experiences with this doc. Anyone who knows much about Lyme will avoid him. Maybe he does OK with people at the early stage, but anyone who wasn't diagnosed and treated in the first year after the bite is going to take more than 4 weeks of treatment.
How long have you had this?
Also, have you been checked for co-infections? Many of us got more than one germ from that tick. It affects the treatment.
This doc organized a Lyme conference that specifically excluded the most experienced Lyme specialists with chronic cases. This was deliberate. And is scientific malpractice. Is this the kind of doc you want? I would question the doc who is treating you as well, if he is citing Dr. W as the expert. You have been lucky to get more than 4 weeks of treatment, because they usually just cut people off after that, regardless of their symptoms or response.
My advice is to take whatever treatment course they will give, don't go on to Dr. W if you feel you still have Lyme or co-infections. Post a message on seeking a doctor forum, or contact the support group for a recommendation if you feel you still need more treatment.
You will probably have trouble finding a really good lyme doc who does take insurance. Lots of controversy in NY and those docs have been cut off by ins. cos. Surprised that Dr. W doesn't take insurance. This is NOT because the ins. people wouldn't give HIM a contract!!
I have just gone back and read your previous posts and see that you already were sent some lyme doc info on this board. Did this not work out? Doesn't sound like your current doc is lyme literate, even if you have had more than the standard treatment.
[This message has been edited by lou (edited 28 October 2004).]
Posts: 8430 | From Not available | Registered: Oct 2000
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rosesisland2000
Frequent Contributor (5K+ posts)
Member # 2001
posted
IMO, stop wasting you time and try and get a referral from someone who is a happy customer...the experience of the thousands that have posted here should be enough for you to know that you really do not need to see either of the doctors you mentioned.
A Cure in such a short time....really now, think about it, then we would NOT need this website as a support if treating Lyme were that easy.
We can all atest to the fact that Lyme is very hard to treat and just a hard to diagnose.
treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
WELCOME To LYMENET
Here's more goodys! A typical response to newcomers.
Hi and WELCOME! Get a LLMD or at least Dr that is willing to learn about lyme. Borrelia Burgdorferi is a clinical diagnosis, based on symptoms and on your response to treatment. Good Luck, bumpy road ahead.
Post for a LLMD inSeeking a Doctor. Ps remember I am not a Dr, just a fellow sufferer.
( No you don't always see a bite and if there's no bullseye the only way your going to be able to tell is (symptoms) and (((Maybe))) WB or lyme dot blot 3 day urine banged with abx's to free your antigens up for the test. ) See this ( . )thats the size of the larva stage tick... Next nymph size... ( * ) Next is adult ( o ) to ( 0 ) Pretty small????? HUH
Please, PLEASE, if you do nothing else, today, read the above link and you'll understand why their names are considered lower than dirt here on LymeNEt.
You'll begin to understand why and I'll put his name here the doc you are referring to, Dr. Gary ((((W-o-r-m-s-e-r)))).
DR GARY WORMERSER IS TO BE AVOIDED IF YOU HAVE LYME DISEASE OR CO-INFECTIONS...HE IS RIGHT UP THERE WITH DR. STEERE OF DOCTORS THAT SHOULD BE ON A LIST OF DOCTORS NOT TO SEE IF YOU HAVE LYME DISEASE!!!
Yes, I am shouting through the roof on this one!!!
Here's a way to do a search through posts here on LymeNet. Use the keywords either, Wormser or Steere and you'll find nothing that they do or say will be good for you if you are fighting Lyme Disease.
Seriously, I cannot stress it enough...keep reading and you'll start to understand why I am making such statements and I would say anyone here would agree with me on the subject of those two. They have set back the treatment of Lyme Disease so far that they are the main reason we are still fighting this disease today!~!!
posted
So who do I pay first for all of this great information!!!! Thank you so much regarding all the great links that I'm about to read!
Who would have known?
This place is great. I can't wait to show my collegue what every body thinks of Dr. W.
Does anybody have any good words regarding a well known Radio host on WOR Radio.
Dr. Ronald H. He has his own H. center and seems very good as from what I can tell from the radio show.
He also doesn't take insurance. It's not the money, it's just that I don't want to waste my time & health!
Thanks Again,
Jason
Posts: 6 | From North Brunswick | Registered: Mar 2004
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robi
Frequent Contributor (1K+ posts)
Member # 5547
posted
[QUOTE]Originally posted by Crankyjay: [B]So who do I pay first for all of this great information!!!! Thank you so much regarding all the great links that I'm about to read!
We really need to keep lymnet going as it is the best source of accurate info about this disease. Many of us would be stranded in Duckland without the referrals we have gotten here.
The support is outstanding....Help support the network.
rosesisland2000
Frequent Contributor (5K+ posts)
Member # 2001
posted
Jason, you will do much better getting a Lyme Literate Medical Doctor, an LLMD, if you post over in Seeking a Doctor forum.
As for the Dr. H you are talking about, he seems to treat just about everything...the LLMD you will need to see will more likely than not, will ONLY be treating Lyme Disease. LD will be their only speciality.
For example, my LLMD, has a website, and just take a look-see at his website, www.drcharlescrist,com
I'm not referring you to him, as there are LLMDs actually closer to you than he, but, you will get the picture when you look at my LLMD's website compared to Dr. Hoffman's site.
You will want you LLMD to be a member of or agree with the treatment of the www.ilads.org
Remember, this is one of the most complicated diseases there is and the more you learn the better off you'll be.
Also, most LLMDs though they will take Medicare, they do not take, but will file for you insurance. The reason is that they do NOT want to be tied to the Insurance Companies recommendations on how to treat this disease.
If they were to follow Wormser and Steere, then we'd all be cured in jsut a couple of weeks...and WE know that that just isn't the way it is...
So, go to Ilads website and call their number and get a referral from them or post over in Seeking a Doctor forum...you will not regret it...but, be sure someone here has actually been treated by whomever you see and that the LLMD has lots of happy customers.
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