Well, I'm definately experiencing a relapse and not a herx like I was hoping for. Off abx now for almost a week and my symptoms are really going. Wondering if anyone has had a similar symptom profile and if you found anything rx or otherwise that relieved your symptom(s)....

My main symptom is the flu-like thing that many people get. It's a total body intense malaise. It makes me feel achey, woosy,nauseous and dizzy. Kinda like a bad hangover. My body is shaking internally, if that makes sense. I'm taking 800 mg advil and alternating that with tylenol at prescribed intervals but, it's not touching it. Dr. P. gave me a script for Flexerall but, I haven't tried that yet.

Any of you that understand what I'm dealing with, find anything that took the edge off. I've tried the hot soaks,etc. I mean it's so bad right now I can't sleep because, besides feeling lousy, I can't relax....my body won't let me. Man, this thing is horrible. Let me know and thanks for reading.

I'm new here too and believe me you can have lots of help here from people that have experiences that will be happy to share.....

It always seems to make us relax and feel better if we know others are feeling it with us and praying for us to make it thru another day......

Keep us informed about your progress and most of all don't give up or stop looking for answers.......there are plenty of us right along beside you.....

Thanks for your reply. The only meds I have are the Flexeril (which I haven't tried yet) and I do have Klonopin as well, which actually works to relax my body, although I rarely take it. I did take a little last night just to get some sleep and it did help me relax to where I fell asleep for about 2 hours. But, when I woke up, WOW, the tension in my body was incredible.

Any side effects from the Flexeril? I heard it can make you pretty drowsy.

I'm a huge baby about sleeping. If all the other things (valerian/hops tinctures, melatonin) fail, which they do when I'm too sick, I take temazepam. Not sleeping is dreadful and makes things much worse in the long run.

When I was really ill, acetominophen didn't touch the pain for me. Butalbytal/acetominophin sometimes helped for a while, especially with headaches. Neurotonin made me feel very strange, and vicodin and flexeril didn't do much for me either. The only thing that worked for me in the long run was treatment.

Yes, I started back on Doxy today. We'll see what happens. Yeah, I may have to try to get through this with the Klonopin.

Just a suggestion. If the Doxy doesn't do it for you please consider asking your doctor for Spectracef. It was my wonder antibiotic. One 200mg tablet 2 x day.

Nauseous - ginger root u can buy it at the health food store.

my friend has taken flexeril ... it knocks her out. flexeril is a muscle relaxer as opposed to a nsaid or narcotic pain reliever

are you not sleeping because of the other symptoms or because you can sleep.
if the later is the issue... someone mentioned melatonin ...i've heard good things about that.I'm sorry if this isnt cohrent ..very tired.
best wishes

Sorry to hear it is ruff for you right now.

Nurontin was used for seizures in my friend with Lyme.

We both used Ambeim (spelled wrong I think)

It worked for sleep, did not cure anything but helped allot during the hard times.

Please remember while taking RX to build the immune system constantly.

that's the frustrating part but when you get some relieve with the combo you and your LLMD come up with, you'll see what a difference it makes in your life....

I haven't had any significant side effects with flexeril......I have chronic fatigue so I usually take a nap during the day but it doesn't make me groggy......I usually enjoy the nap to keep me going for the rest of the day.......

good luck in trying to find your combination of meds.......don't give up.......it's frustrating but rewarding when you finally get the result you need......

Just a thought: I have been feeling the same way & am on abx. We finally figured out that I actually do have the flu. Thought it was a week long herx but turns out my sinuses are infected and my chest is now congested.

Consider that it might be one of the infamous flus going around, which abx won't touch. Advil helps a little.

I thought about the flu but, no one else in my family has been sick and my symptoms have been exactly the same as what I've had with this blasted disease. Ironically, after 2 days on the Doxy, I have been feeling much better. Didn't think I'd respond so quickly, but I'll take it!

My gp gave it to me for sleep. Ive tried 1/2 a tablet twice and one tablet once with several day inbetween. I took it at bedtime and all 3 times I was a zombie all day long, from just the one small dose. Do be careful till you see what it does for you.