posted
I just tested positive a month and a half ago in an IgM Western Blot test(but am IgG negative) for lymes after having lyme symptoms since July. I have been taking antibiotics for about two months now and am still having symtoms. I understand sometimes a co-infection can make it longer for lymes to go away. Is there any way to find out what co-infections are common in Alberta in the areas of Banff and Waterton in Canada where I was traveling this summer?
Posts: 50 | From San Diego, CA, USA | Registered: Nov 2004
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I don't know about the co-infections in the area you visited. In most areas, reliable statistics are not available.
You're right that co-infections complicate matters. Generally speaking, antibiotics for LD do not treat the co-infections, so you have to know which diseases you have.
The tests for co-infections are about as reliable as the Lyme tests. If tests are negative, an LLMD makes a clinical diagnosis based on symptoms that are present.
A little more info would help people form opinions & make suggestions.
What antibiotics are you taking? What dose per day?
How quickly did you start your abx after tick bite? Have you had herxing or any improvement?
It seems that you've got a good combo that covers a lot of ground. Doxy is used for Ehrlichia, Lyme and Mycoplasma. Zith is useful for Lyme and Ehrlichia. Of course there is also Babesia and Bartonella to think about.
Your best bet is to continue with your current treatment. Two months is the minimum amount of time - 6 would be better if you didn't catch the bugs right away.
Babesia is a whole different treatment and you usually end up dropping your lyme treatment to take it. Bartonella is somewhat similar that way.
If you still have no improvement in a month or two, you may consider switching abx.
posted
Three to four weeks after I started taking the doxy I quit having night sweats, but then at about four weeks I started to get stiff neck, neck cracking, back cracking, and now I occasionally get these burning sensations that go throughout my body--they don't usually last very long.
I was only tested for the co-infection Babesia and came back negative, but the doctor said that some of my symptoms seem like Babesia.
Posts: 50 | From San Diego, CA, USA | Registered: Nov 2004
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riversinger
Frequent Contributor (1K+ posts)
Member # 4851
posted
It's possible that you have coinfections, but as Corgilla said, two months is a short time for treatment of Lyme unless it is caught immediately.
Four weeks after starting antibiotics is a classic time to have a strong herx reaction, so its possible that is what your increase in symptoms was.
The meds for babesia are difficult to take, so I imagine that is why your doctor would prefer to wait when you have a negative test. I know its hard to imagine that two months of heavy antibiotics is a short time, but as you learn more about Lyme you will find out why.
Stick around, there is lots to learn. It sounds like your doctor is giving you aggressive treatment, which is good.
riversinger
Frequent Contributor (1K+ posts)
Member # 4851
posted
Whoops! I see you are from CA. Here is something else for this state.
California Senate Hearing on Lyme Disease Scroll down to February 25, select Health and Human Services Committee, Lyme Disease. Scroll past the first ten minutes or so, it is blank. Amy Tan (author and patient), Ron Keith (Marin/Sonoma Vector Control and patient), Dr. Steven Harris LLMD, Dr. Raphael Stricker, LLMD, and others testify.
This will give you an overview of what is happening in this state.
You may also want to join the CA Lyme Disease Association. The most recent issue of the Lyme Times is a very good overview of patient issues, with lots of info on coinfections and treatment.
Next month will be on insurance issues. Not that I hope you are needing to be around long enough to need a year's subscription. But they are an excellent organization.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/