posted
Some of you will probably be familiar with the labs I found on Quackwatch, some of which I have used.
Immunosciences-I used this for testing of mycoplasms years ago. The last time I checked, they were referring people to MDL in NJ.
Great Smokies Lab-I used this for many tests since Dr. Teitelbaum mentioned them in his book "From Fatigued to Fantastic". The tests I had done were not on their "Dubious List"--little or no diagnostic value.
Spectracell Labs which does the Functional Intracellular Analysis (FIA). This test is on their Dubious List.
Center for Complex Infectious Diseases--Dr. W. John Martin's Lab which was testing for Stealth Virus. It was shut down about a year ago.
Thought you would be interested in this info. It's quite a site and is non-profit.
tj
Posts: 296 | From Portland, OR | Registered: Jun 2003
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posted
Ah, Quackwatch...the same guys who rag on Dr. Carlton Fredricks (who just about saved my mom's life back in the day with his shocking(at the time) opinions on nutrition) and homeopathy (well, if WE can't measure it, it must not be there! Sheesh). I'll bet they give rife a bad rap, too.
"The Bottom Line Lyme disease, when diagnosed early, is readily treatable with oral antibiotics.
Positive antibody tests, by themselves, do not provide sufficient basis for diagnosing Lyme disease. The diagnosis should be based on the overall picture, including history and physical findings [7,36].
Negative antibody testing after the first few weeks strongly suggests that the patient does not have Lyme disease [7].
Many patients with chronic nonspecific symptoms (such as headaches, fatigue, achiness, mental confusion, or sleep disturbances) mistakenly believe that they have Lyme disease.
Intravenous antibiotic therapy, when given appropriately, should not last more than a month. It should not be given unless oral antibiotic therapy has failed and persistent active infection has been demonstrated by culture, biopsy, or other bacteriologic technique [37].
Malariotherapy, intracellular hyperthermia therapy, hyperbaric oxygen therapy, colloidal silver, dietary supplements, and herbs are not appropriate measures for treating Lyme disease. Doctors who recommend them should be avoided."
That's right - if a doctor recommends that you take magnesium or vitamin C, run like the devil because he's just out to take your money!
There's a lot more crap on there (the politics of the disease, online discussion groups are too hysterical about the whole thing and potentially dangerous, it's not sexually transmitted, if you're pregnant you can't give it to your unborn child...), but no one here needs that.
posted
Well, didn't mean to make anyone so angry. I can see why you would be upset about their thinking on lyme which is what we are all fighting.
The site is new to me, but what I kept thinking after reading your posts is that out of the thousands of doctors and lab tests and hundreds of specialty labs, their list of dubious ones was pretty short.
Thanks for your input.
tj
Posts: 296 | From Portland, OR | Registered: Jun 2003
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I don't think that anyone is angry about your posting (I know that I'm not). It's just that those guys put on white coats and claim to know what's what (and since we're too stupid to understand "medical stuff", we're supposed to buy what they're selling...).
But your general point is valid and of concern to all - there are bad people out there who will take your money and NOT help you to get better. There are dodgy, scammy things going on and we need to protect ourselves from them.
Which, I think, is why places like this are so useful! People can share experiences and thoughts and knowledge. THAT keeps us smart and sane in our different approaches of dealing with Lyme. And if someone has been ripped off or mistreated by a doctor or lab, they can tell the world!
I'd feel bad too if I thought I had valuable information and was making a contribution to help others at Lymenet. It feels so good when you can help others save their time and money.
Keep up the good research work and posting it. Please don't let this one post slow you down. We need people like you who are willing to take the time and find these articles and float them out here for feedback. I appreciate the time you took to try and help. We all learned something. I didn't know Quackwatch existed before this. Now I know and I also learned don't trust it so again, thanks for doing the research and bringing it to the table.
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