I was trying to get back to you last night.. but I missed THAT boat. Bad me! YIKES!So sorry!
But.. the moment I opened my eyes this morning.. I dashed over here to try and respond to you... first thing.
Hmmmmmmmm..
I am still not sure.. but I HAVE been thinking... and buring up my brain for a "good" answer for you.
Ok..
I told my doctors office I thought the Babesiosis was coming back.
They didn't think so.
I told them again later, I thought the Babesiosis was coming back.
They still didn't think so.
Blah blah blah..
Finally, as you may remember.. I asked that they test me... and at that point the RMSF results had come back and the Bartonella results had come back. Both were negative.
This REALLY stumped me because I was really thinking RMSF.
A week or so later... the rest of the tests came back.
I have the highest positive Lyme Western Blot I think I have ever had.
I was positive for Babesiosis again.
I had 2 new infections I hadn't tested positive for before.... both strains of Ehrlichiosis!
Soooooooooooooo...
I was going to the chiropractic neurologist in the meantime. That helped. But funny thing.. I actually have to GO there to be helped. Duh, me.
NORMALLY the adjustments they use last a week or so. But not recently. They are only "holding" for a few hours.. and at most.. a couple of days. Bad deal when the trip is a 2 hour drive one way! But SOME relief never the less.
The adjustments not holding had ALWAYS indicated some sort of infection going on... when this has happened in the past... to me or others who go there.
So.... I started Mepron and Doxy.. but I stalled and put it off as long as I could first, of course... bad me.
I started on very low doses... pulsed... but it has only been about 10 days now.
I had the herx-like reaction the fourth day... as normal when I'm treating Babesiosis.. indicating the babesia WAS being hit.
My "feeling" on all this now..
I think we each must go on our "gut" feeling.
We have been through this before.. and we KNOW what it feels like.
I thought it was an active "infection" that was bothering me.. and the chiro neuro proved that- by the adjustments not holding for the normal length of time.
I thought Babesiosis was involved again this time... and the test DID come back positive... confirming my suspicions.
I also KNEW something NEW was happening.. but my GUESS was Rocky Mountain Spotted Fever.. because I had it YEARS ago.. and this is how bad I felt now.. and I hadn't felt this way since the RMSF hit.. over 15 years ago.
I guessed wrong on the RMSF.. but it WAS Ehrlichiosis.. which is the COUSIN to RMSF. So I was pretty close... just wrong on the exact rickettessia strain. And.. the treatment is the same for both.
The point..
Again.. go with your gut feeling.
Others laughed at me when they suggested Babesiosis, because I said... "But I don't want THAT one".
And no one does. BUT.. If YOU think it is possible for YOU..
My guess, knowing you, and knowing your extensive knowledge on the subject... and your experience with helping others in this position for a long while now...
I'd bet money on the Babesiosis... if YOU think it is Babesiosis.
I am not sure everyone can "guess" what is going on with themselves.. and we often need some ideas forced on us.. even when we KNOW the scoop. (I am my own worst doctor trying to figure ME out.. so help is always appreciated).
But I think many of us who have been playing this Lyme game for years pretty much know ourselves better than anyone else.. and we should check out all avenues that WE feel are important. And we shouldn't "wait". So I am happy to see you are headed to the LLMD to get assistance.
By the way..
I was in "denial".. and put it off... using every excuse in the book.
Until I got to where YOU are!
ENOUGH IS ENOUGH!
That was MY breaking point!
And I see it is also yours.
WHY do we let ourselves go to this extreme with Babesiosis before we cry "UNCLE"?
Well.. like I said.. I think it is because...
"I don't want THAT one!"
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If you get the choice to sit it out or dance...