After reading some of the truly scary bart posts on Lymenet, I'm ready to try one of these treatments. Unfortunately, though, I work three part-time jobs and go to school so I don't have the time or financial resources to do a huge herx. Rifampin or full-dose mino just aren't an option.
Will any of the following actually work: low-dose mino, levaquin, TOA-free cat's claw, flagyl?
I've been using flagyl to combat headaches, and because they don't respond to any other Lyme abx, I'm pretty sure they're bart.
Also, I am so, so glad that Dr. H's office now has an extra LLMD. After reading posts recently from his other patients, I realize a lot of us slipped through the cracks with babs treatment, because the doc was so swamped he was unable to catch up with new treatment developments until he had a moment off.
lla2
Frequent Contributor (1K+ posts)
Member # 2364
posted
Liz, are you talking about the two PA"S in dr. H's office? Because as far as I know he doens't have another llmd in there, and I was just there...but the PA's seems to be doing a lion's shareof the owrk...
I"m on rif. and mino now...the mino is cheap, i'm not sure how much the rif. is as I just pay a copay....what about septra and zithro? many find that combo to be good for bart also?
lis
Posts: 4713 | From saunderstown, ri Usa | Registered: Apr 2002
| IP: Logged |
lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
posted
Rifampin can be scary at first - but it definitely works. Cured my bart (in combo with low dose Flagyl and later on TOA'Free Cats Paw).
If you ramp up very slowly - 1/2 300mg capsule for a week, then 1/2 twice a day for a week, until you're up to 600mg, it's survivable. After a big crash at 10 days of full dose, that's what my LLMD had me do.
But like all abx, it's tough on the liver and you need to be tested monthly for liver counts. I did Milk Thistle the entire time and NEVER had abnormal liver counts.
If your bacteria load is high, herx will be scary on anything new you try, so I wouldn't exclude a valid treatment program without trying it first. Rifampin will also treat Lyme, so it serves dual purpose.
Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
| IP: Logged |
lla2
Frequent Contributor (1K+ posts)
Member # 2364
posted
just started rifampin today...did mino for a few days and did fine..now testing the rifampin...have to say...quite a bit dizzy....just took an antivert..
Lisa
Posts: 4713 | From saunderstown, ri Usa | Registered: Apr 2002
| IP: Logged |
liz28
Unregistered
posted
Yikes. Thanks for your advice, guys, but there's no way to do this right now. Oh well.
IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/