I need help deciding what supplements they should be taking. The supplements need to be in capsule form. (Jordan says any bad tasting meds/supplements stays in his mouth for a long time.)

They are working on detoxing and building their immune systems. What do you think are the top 5 supplements for this?

Thanks!

I am pleased that the boys are beginning a pulsing protocol...I am really a firm believer in this approach.

I've not done many supplements throughout my treatment, but the few that have really seamed to help me were:

Milk Thistle
L-glutamine
Quercetin
And Questran (for detoxing)

The very best of luck to you all!
Much love,
Melanie

Supplements are very expensive, and what I learned was that I was on things that my body either didn't need or that particular supplement wasn't helping me.

I'm sure you have read all through this from doc B...but thought I would put it here anyway for others .

Dr. Joseph J. Burrascano's Guidelines: http://www.ilads.org/burrascano_1102.html

BASIC DAILY REGIMEN

ACIDOPHILUS (required when on antibiotics)

Essential daily supplement to maintain the normal balance of bowel flora, especially if on antibiotics, or if gastrointestinal disturbances are present. Always try to get enteric coated, milk-free acidophilus. The best kinds are frozen or refrigerated to ensure potency. Take two with each meal.

MULTI-VITAMIN (required)

I recommend the Life Pack family of multivitamins. These are unique supplements -- Pharmaceutical grade and USP certified, they are the only products clinically proven in double-blinded, placebo controlled crossover studies to quench free radicals and raise antioxidant levels in the blood and lipids. Choose LifePak for males under 40, LifePak Women for hormonally active women, and LifePak Prime for postmenopausal women and for men over 40. They are available through Pharmanex. Continue long term.

CO-Q10 (ubiquinone) -- required if not taking the prescription drug atovaquone (Mepron)

Deficiencies have been related to poor function of the heart, limitations of stamina, gum disease, and poor resistance to infections. Heart biopsy studies in Lyme patients indicated that they should take between 200 and 300mg daily of standard CoQ 10, or 90 mg of the well absorbed, highly purified, crystalline CoQ 10 product sold by Pharmanex, (surprisingly, the Pharmanex brand is far less expensive than the generic). The body will manufacture its own C0Q 10 when the original illness is controlled, but only if stimulated by aggressive exercise. Therefore, use this supplement until the patient is feeling well and exercising regularly.

VITAMIN B (required)

Clinical studies demonstrated the need for supplement vitamin B in infections with Borrelia, to help clear neurological symptoms. Take one 50 mg B-complex capsule daily. If neuropathy is severe, an additional 50 to 100 mg of B6 daily may be helpful. Generics are OK.

MAGNESIUM (required)

Magnesium supplementation is very helpful for the tremors, twitches, cramps, muscle soreness, heart skips and weakness. It may also help in energy level and cognition. The best source is magnesium L-lactate dehydrate (``Mag-tab SR,'' sold by Niche Pharmaceuticals [1-800-677-0355], and available at Wal-Mart). DO NOT rely on ``cal-mag,'' calcium plus magnesium combination tablets, as they are not well absorbed. Take at least one to two tablet twice daily. Higher doses may cause diarrhea, and you should check with your physician before using more than this. In some cases, injections or intravenous doses may be necessary. Continue long term.

ESSENTIAL FATTY ACIDS (required)

Studies show that when EFAs are taken regularly, statistically significant improvements in fatigue, aches weakness, vertigo, dizziness, memory, concentration and depression are likely. There are two broad classes: GLA (omega-6 oils) and EPA (omega-3 oils), derived respectively from plant and fish oils. This is what to take:

Plant Oils: borage oil, evening primrose oil, or black currant seed oil (choose one). Do NOT use Flax seed oil!

Fish Oil: Omega-3 (Fish Oil) capsules, 1000 mg per capsule. Use ``Optimum Omega'' by Pharmanex, if a higher quality product is desired, or to minimize the ``fishy'' aftertaste.

RECOMMENDATION: four plant oil capsules and four fish oil capsules daily, taken with meals. Continue for three to four months then try to taper down the dose.

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Originally posted by lhm312:
I see an alternative dr. who does muscle testing to determine what deficits there are and what supplements are needed.

Supplements are very expensive, and what I learned was that I was on things that my body either didn't need or that particular supplement wasn't helping me.

It's better to do a person specific analysis so you don't waste your money.

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I know muscle testing has been mentioned before. How would I go about finding a doctor that does this? (words to search on google)

I live in Minnesota and we have really traditional health care.

I'm going to disagree with the use of the amino acid L-Glutamine, esp for a child. It is a glutamate precursor, and therefore, acts in a way similar to MSG (monosodium glutamate). It is a neurotoxin and it increased my neurological problems when I took it.

If you need more information on MSG go to www.truthinlabeling.org or read Excitotoxins by Russell Blaylock

I'd say everything else listed is helpful other than this one supplement that I now know, from both research and personal experience, to be bad.

Take care,

I use the same LLMD and my 8 year old had her first appointment last Thursday.

Doc was extremely busy between my husband, daughter, and I but he didn't mention dosing of supplements for my daughter. Did he tell you anything?

I'll definitely need to call them today.

By the way, were you the one that left them the lyme awareness magnet? It was sitting at the front desk and I really wanted one.