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» LymeNet Flash » Questions and Discussion » Medical Questions » Lost Hope

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Author Topic: Lost Hope
cigi
LymeNet Contributor
Member # 6600

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I'm kind of feeling past I'm over the edge. I just got out of the hospital for 2 days. I have the worst psych symptoms that I've ever had. I was admitted because my sodium dropped down to 114. Under 120 you could seizure. My lyme doctor put me in the hospital and it seems as if I was drinking too much water and already had a bad stomach with the anxiety so bad. My sodium went down from 140 to 120 to 114 - my mental state could greatly be affected by this. They said it's possible the zoloft over time could deplete sodium so they took me off that. She took me off IV for the day because my white blood count went down to 2.9. Tomorrow she'll put me back on. I know she's worried about me mentally and hasn't seen this sense of depersonalization to this degree. I'm passed scared - I just feel as if I lost my family and the life I had (and loved). I am a stranger in my own mind and life. I'm working with a lyme psychiatrist and we're trying to get a combo right. Check your sodium levels - that could account for some of anyone's problem instability. We all need prayers - I have a little one that I adore and I have no feeling about anything. My husband sisters neices and nephews were in the hospital with me to visit and it could have been a bunch of strangers (including me). I know I feel as if I lost my soul. I'm scared the disease or maybe it's just me. I'm on rocephin sice november on flagyl for a month (got off af ew weeks ago), and then directily on zithromax. She took me off of that till my stomach clears up. three weeks ago, I had a house which was a home, a husband, sidters, a son which I adore, a father which is a pain, but mine. Help.
Posts: 320 | From Upstate, NY USA | Registered: Dec 2004  |  IP: Logged | Report this post to a Moderator
cootiegirl
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Member # 3216

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Cigi,
Just wanted to send you some healing thoughts. This disease is hell and I am so sorry you are having a bad time of it right now. You sound like a very intelligent person. You are right - this is the disease, not you, doing this to your thinking right now. I can't tell you how relieved I am to hear you say that while you feel like doo doo, you know this is the disease and not you!

You realize that there are many many positives in your life and this darn disease is distorting your image of things for the moment. It sounds like you have a very good doc that will get you back on track again....

I am glad you came here to get out how you are feeling....take care and don't let these damn buggers get you - you go and hug that precious child of yours and remind those bugs they aren't going to play with your head and beat you....
cootiegirl


Posts: 1728 | From New York State | Registered: Oct 2002  |  IP: Logged | Report this post to a Moderator
lymemomtooo
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Cigi,
Keep fighting..You have a lot to fight for..If something doesn't work get something else. My daughter is having a horrible time and we survive day by day..

Now we are dealing with a peripheal IV line that wasnt' in the vein..She has been messed up for 24 hours over something that we didn't even know was wrong..She was flushing and infusing to muscle, I guess..Very painful and stupid mom thought she was just pulling my leg..

Have you been tested for Bartonella..They think this is causing her psych/OCD issues..

Are you taking anything for neurotoxin removal??? It might be something to consider..Or a lower dose on the meds to help you tolerate better..When all else fails, Valium works here.

Good luck and hang in there.


Posts: 2360 | From SE PA | Registered: Mar 2004  |  IP: Logged | Report this post to a Moderator
bethanie70
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Cigi,

My heart goes out to you. I am going through a lot of the same things (very ill, young children, phyche issues, etc) and so don't have any great answers. I would like to offer you support though. Please feel free to email me. I love making new friends who understand what I'm going through. I does help, for me anyway.

Take care,
Beth
[email protected]


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just don
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If you are low on sodium, would not taking some salt be in order??? I take salt pill every day to put me to sleep. Works as good as ambien for me.. Low salt diets is not always good, I dont 'think'!!!
Posts: 4548 | From Middle of midwest | Registered: May 2001  |  IP: Logged | Report this post to a Moderator
bg
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Cigi, so sorry you having such a bad time and psychologically. I have not had what you are speaking of, so will let others respond who have walked in your shoes.

Since you are so down, do you have any favorite COMEDY videos/DVDs, etc. where you could really have good belly laughs to release those dorfins too? Just a thought.

Also, please go to the OFF TOPIC post I posted about Kara Tyson's medical background. Read towards the end where she wrote a poem about her life, and all the bad things that happened that she has overcome.

Betty G., Iowa

[This message has been edited by bettyg (edited 15 January 2005).]


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kubz62
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Hang in there, I think almost all of us get these crazy psych symptoms. I know I've been to the edge several times. I glad now I didn't end it all. Even though I'm still ill, I'd rather continue the fight. Cause if I eventually win this battle, I am going to be one happy camper!
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