LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » opinions on going to IV ABX

 - UBBFriend: Email this page to someone!    
Author Topic: opinions on going to IV ABX
goldenjake
Member
Member # 6451

Icon 1 posted      Profile for goldenjake     Send New Private Message       Edit/Delete Post   Reply With Quote 
hi
i havent posted in months , i have been on
oral abx for 6 months and llmd is now saying i should try IV's. dr jemseks clinic
treats iv lyme patients for 16 weeks on iv's
i heard some of u say u did iv's for only
4 weeks. i am still working and may have to quit my job to do iv's . i work at caterpillar. how will the iv's make me feel ? iam currently maintaining well on orals with symptoms in my hands feet and back of head. not much side effects on orals . i would love to hear your opinions
as the doctor has left it up to me to start
iv's. i am hoping to do them for 4 months
and go back to orals for a few months and be done and get off abx .
peace,
Jake

Posts: 22 | From raleigh nc usa | Registered: Nov 2004  |  IP: Logged | Report this post to a Moderator
IBelieve
Member
Member # 6834

Icon 1 posted      Profile for IBelieve     Send New Private Message       Edit/Delete Post   Reply With Quote 
I did Iv rocephin for 4 weeks and worked during that time. The only thing I was told was not to do heavy lifting with the arm the port was in. Good luck.
Posts: 48 | From New Hampshrie | Registered: Jan 2005  |  IP: Logged | Report this post to a Moderator
beachcomber
Frequent Contributor (1K+ posts)
Member # 5320

Icon 1 posted      Profile for beachcomber     Send New Private Message       Edit/Delete Post   Reply With Quote 
I have done 2 rounds of IV treatment. The first was 12 weeks. The second was 16 weeks. I managed to work with my PICC line. Part job requires me to climb ladders and go into spaces that most normal people would say "no way am I going in there".

Talk to your nurse & Dr. about the limitations and about the hygiene of the PICC. Be specific about your work when you talk to them. They will explain what you can and can't do.

I did ok with work, but then screwed up one of my PICCs while doing a yoga position that I knew was probably not very smart to do.

You will learn what you are capable of. And, yes you will feel pretty sick some days. But, life will not stop.

Bc


Posts: 1452 | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
David95928
Frequent Contributor (1K+ posts)
Member # 3521

Icon 1 posted      Profile for David95928     Send New Private Message       Edit/Delete Post   Reply With Quote 
Jake,

It sounds like you have a relatively new infection. It's my impresion that IVs are more helpful in those situtions than in those that are chronic (like mine). What medication is being discussed? A lot of people relapse shortly after going off of Rocephin.

If it is Rocephin, you could proably go the IM route rather than IV. You probably would have to take it at least daily but whem dissolved in Lidocaine, it's not bad.

I have not heard of that clinic using it but many chronics seem to do particularly well on Bicillin plus a macrolide such as Zithromax or Biaxin. I certainly have. Not everyone can be OK with the IM shots but, for me, three quick jabs in the butt three times a week is FAR preferable to having an IV in my arm 24/7.

Good luck in your decision.

David


Posts: 2034 | From CA | Registered: Jan 2003  |  IP: Logged | Report this post to a Moderator
solsearcher
LymeNet Contributor
Member # 4482

Icon 1 posted      Profile for solsearcher     Send New Private Message       Edit/Delete Post   Reply With Quote 
I was on IV Rocephin for 12 weeks. There has been congenial debate on this forum about whether to have a port or PICC installed or "pulse" (is that the right term?) or shots. As usual, it depends on your personal preference and situation.

For me, a nurse came to my home and installed an IV in my arm on Monday morning. I infused twice a day Monday through Thursday on my own. It was my responsibility and privilege to take the needle out on Thursday evenings. That left me with no needle Friday through Sunday. I took advantage of that by doing regular things on weekends.

Also, no one at work even knew I was infusing because I wore long-sleeved shirts that hid the needle. Heavy lifting isn't allowed with the needle, but it can be done on the three needle-free days.

That was the option I preferred, and it helped even though my infection is chronic that I've had for 25+ years. I think it helped because Rocephin is known to cross the blood-brain barrier (BBB). I may request another 12 weeks.

Scott


Posts: 112 | From St. Petersburg, FL USA | Registered: Aug 2003  |  IP: Logged | Report this post to a Moderator
treepatrol
Honored Contributor (10K+ posts)
Member # 4117

Icon 1 posted      Profile for treepatrol     Send New Private Message       Edit/Delete Post   Reply With Quote 
I personaly prefer orals. If you can hack them.
Posts: 10564 | From PA Where the Creeks are Red | Registered: Jun 2003  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code� is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.