How can I get her to understand the difference between lyme and late stage lyme? And that as of yet, we are all still searching for the silver bullet.

Does anyone have any links to show and teach her?

I get my vitamins checked every dr.s appointment, it is not that. It is lyme.

How do you get people to understand when all they have known of lyme is so and so who was treated right away and is "fine" now?

Fine meaning three weeks and they are supposidly cured...we know better.

I want to tell her it is not me, that all of us struggle, that there is at this time no known cure. That my body is fighting as hard as it can but this disease is elusive and is giving each of us a hard time.

I'm sure I sounded like some depressed maniac to her. I am feeling worse again the last three days...and she doesn't get it...

Please any input or ideas will be appreciated...

Adequate...that's the trick! A body in balance has no disease. Problem is...this disease and others, deplete a mineral to a huge extent, very fast.

Most pathogens (disease causing germs)contain in their outer cell walls a metallprotease, an enzyme. Ever hear about protease inhibitors to treat HIV? Read my "Updated in a nutshell" post for further explanation.

Replacing the minerals takes time and takes very large doses. We absorb so little when taken via the GI system.

We generally do not use nutrients to cure, but this was done long ago and in 2001, an Italian, named Valletta, got a patent titled: "Magnesium for autoimmune". He used Mg pyrophosphate and sublingual B6 to cure RA, ulcerative colitis and invasive bowel cancer in 6 months.

What...vitamins and minerals can cure diseases? Yes. It's a matter of quanity, the delivery (IV at first), and timing...timing is critical. Must keep the cells "bathed" in nutrients.

Statements like this drive me nutso too. Surely those people didn't have the infection as widespread and deeply entrenched. Coinfections are yet another problem.

I don't understand why it is so difficult for people to understand the varying responses to treatment in Lyme, considering there are "stages" with so many other illnesses. Take cancer, for instance - some people recover without much difficulty, others suffer long-term, and in others it's fatal.

Here are some links:
http://www.lymeinfo.net/chronicpatient.html
http://www.lymeinfo.net/coinfections.html

Best Wishes,
Cheryl

quote:

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Originally posted by daniella:
How do you get people to understand when all they have known of lyme is so and so who was treated right away and is "fine" now?

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My own children, both adults and super kids, had a tough time understanding it - as long as they saw me once in a while still upright and moving around pretending. Only when my husband was totally disabled and they had to start thinking of building ramps at the front door for the wheelchair; and when he then fell and fractured his back and was even more disabled; that's the message that finally was heard. When they both had to carry him out to go to the hospital in the middle of the night --

Now, we all look back and smile at these events. The primary care doctor's mouth fell wide open when my husband walked in the other day without a cane! He now knows what Lyme can do. Whether he does anything with it, is another question. My kids now, that they have seen Lyme at its worst, know and understand and tell other people about it.

Do your thing - seek out the best to get yourself well. You will. Just listen and learn and don't be fooled by the best LLMD's.
They are still missing the boat. Or they go at the real problems with little know-how often making things worse. I am glad they are doing what they are doing, but they could be doing a lot more if they opened their eyes and ears and considered all neurotoxins, not just Lyme.

Good luck and take care.

P.S. I forgot to mention - all the friends we used to have got more scared over time and for whatever reason disappeared slowly, one by one. Of course since we are old(er), our friends also are not spring chicken. Though we were left alone, but for one or two that cared.
Funny, every one of them is now sick, one had a stroke, the other has what I am convinced is Lyme (a hunter and fisherman), and some have died of "normal" causes.

quote:

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Originally posted by GiGi:
P.S. I forgot to mention - all the friends we used to have got more scared over time and for whatever reason disappeared slowly, one by one. Of course since we are old(er), our friends also are not spring chicken. Though we were left alone, but for one or two that cared.
Funny, every one of them is now sick, one had a stroke, the other has what I am convinced is Lyme (a hunter and fisherman), and some have died of "normal" causes.

I am now left to do consoling, and that's all I do.

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Amazing GiGi you pretty much summed up whats happened to my wife and I.
Wow I moved a year ago and that really gave them an excuse been there at new home a year and I havent recieved one call from any of them.

Huh I even called a few of them and gave them are number. Its amazing what this disease can bring on fear of catching,of death,etc Its a real shame and its happening to everybody.

I sent my sister our discussion up to GiGi. I will send the other link now.

It is just so hard when people don't REALLY understand.

GiGi, I used to not help people to understand because I felt like you do....

But, I have found that in my case. Then people become judgemental and make up their own scenerio as why you are still sick....which for me is worse.

I can't stand that...

I have too lost many people who I thought were friends over the years. Friends I went to school with, family who were once very close. People do get strange when you are sick...

It's a bitter pill to swallow.

We are not at home relaxing, reading, and enjoying this...I can tell you that.

Anyway thanks for your help.

daniella

I forwarded it to her. I haven't heard back from my sister. I just hope she didn't take what I said the wrong way. It's so hard to know how to talk to people about lyme... You would think it would be easier...

I tried to explain that I think this(lyme disease) happened to me to let people know how seroius it can be.

I also told her I need to correct people with misconceptions about lyme and that after she reads and learns she could do the same it she hears a misconception on lyme.

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Originally posted by Marnie:
Disease and cell destruction are caused by 2 things...nutrient deficiencies and toxins. Both can be addressed by adequate nutrition.

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disease and cell destruction are primarily caused by immune dysfunction, particularly interlukin(s) imbalance and t and b cell mediation caused by inflammatory processes.

AIDS - CD4/CD8 (t cells)

nutrient deficiencies (unless heart disease is viewed as a nutrional deficiency) and toxins are definite causes of disease but are not nearly as abundant as immune dysfunction (i.e. cancer, now #1 in U.S.).

Seen your post. Someone said that to me months ago. I finally told them I have lyme, and they thought it was only a vitamin defiency.

It is very hard dealing with people who don't understand. I feel fortunate that my 3 best friends are aware of this and beleive what I tell them. Hard for them to beleive, but they see what has happened to me and know I was one who like to feel life and if I am sitting like this, it is cause I got knocked there.

My 2 girlfriends are like me educated in Alzheiemrs and this helps a lot. My other friend lost a family member to it.

Even before I got sick I learned to not get heavily involved in people I didn't feel comfortable with, so in that sense my life has not changed much and on a friend level has stayed the same.

I really hope your sister comes around and understands. LIke my husband, some are harder to get through to, and of course hard for us, if they are someone we want to understand and keep in our life.