posted
Would you be willing to share your personal Lyme story in a documentary? We're an Emmy-nominated production company looking for dramatic Lyme stories and compelling characters to illustrate the issues surrounding this disease. If this fits you, please send us your name, address, phone number, digital photo if available, and email address, along with a description of your Lyme experience to: [email protected]http://www.openeyepictures.com/underourskin/ Posts: 245 | From Palo Alto, CA USA | Registered: Jul 2003
| IP: Logged |
If you can do this well so it holds an audience's interests, is factual, and resist the urge to use artistic license and sensationalism, you will do a fine thing. We wish you success.
My wife and I are doing our best to make sure our stories are boring and uneventful. We discovered it early and thanks to people here avoided much of the usual abuse from the medical community. Even then it has been a bizarre journey through a medical twilight zone. (I never thought I'd need to use a microscope again!)
I am sure there is no shortage of interesting material. Just use it in a scholarly manner please, so all of us will be proud of your efforts.
One suggestion though...
That picture on your website that is supposed to be a target rash looks like some tagger made it with a can of red spray paint. I've looked at hundreds of them, and never saw a real one that looked like that. It is misleading and shoots down your credibility. (Maybe it actually was a real one on somebody, I am not accusing... But regardless it LOOKS fake.)
If you need a real picture but are concerned it may be copyrighted I have one of a nasty red rash on my leg you are welcome to without any copyright consideration. I am sure others have some too.
Keep it credible and you will make us proud.
[This message has been edited by James H (edited 15 February 2005).]
Posts: 714 | From San Antonio TX | Registered: Oct 2004
| IP: Logged |
posted
From the website: "This has fueled the fire for some Lyme researchers and activists, who point to evidence of an even more egregious prospect: that the Lyme spirochete was reengineered as a bio-warfare agent, and escaped into the general population from the highest-level biohazard laboratory in the United States."
Are you serious? I've never heard this before. I think it sounds suspect because borrelia and associated disease certainly existed in Europe prior to the 1970s...
If there are not data to uphold this supposition, people with Lyme are going to "sound wackier" and be more marginalized than they already are.
Of course, if there are substantial data that can be corroborated to uphold this point I'd be happy to change my opinion...
Posts: 689 | From western MA (we say buttER and pizzA) | Registered: Nov 2004
| IP: Logged |
Foggy
Frequent Contributor (1K+ posts)
Member # 1584
posted
What's the timeline for your project? Is it fully funded and greenlighted? Sounds promising, good luck.
posted
Yep. The biowarfare stuff may all be true for all we know, but its inclusion immediately reduces audience credibility to the Area 51 crowd.
Better to blame it on the mice and rabbits and bugs. The known facts are bizzare enough without venturing into that area.
How about what can, is and is not being done about it rather than what to blame?
"Statistical elimination of disease" as a CDC public health policy instead of actually curing or preventing it is another angle with lots of facts to back it.
That biowarfare lab stuff would be better saved for a different film. It might possibly be true, but it will be judged delusional.
[This message has been edited by James H (edited 15 February 2005).]
Posts: 714 | From San Antonio TX | Registered: Oct 2004
| IP: Logged |
Please change the font on your web site to a larger ARIAL looking font of 12 pitch or larger.
Also, please edit the LONG paragraphs to 6-8 lines of text only due to the severe brain fog we encounter.
Those of us with advanced, late-stage, chronic lyme need these things done in order for us to read and comprehend things.
I agree 100% with James on making this a respectful, completely accurate documentary.
Yes, please get rid of that bad bulls-eye rash; use an actual one or one from the LDA, lyme disease assn.'s brochure.
Also to address CDC's criteria on Western Blot IGM & IGG blood tests to determine if patient has positive or negative results vs. Igenex or MD Labs determination that you are positive if you have 2 positives only on either of the IGM OR IGG tests.
After you have made changes on your web site of larger print, and shorter paragraphs, please post here on your post here. Then I'll try to read/comprehend what is there.
Thank you Kris. Betty G., Iowa
Yes, Kara has quite the story! It's as traumatic as they come, and what she has overcome to be the respectable and role model womn of today!
Posts: 1 | From US | Registered: Aug 2015
| IP: Logged |
posted
Yes, I've had Lyme and Babesia for 2.5 years, and I'm on the team. Right now we're working on funding from a variety of sources. (We even have a "contribute" button on our web site.) Our ultimate goal is to get a TV network to run it.
Thank you all for your feedback on the proposal.
We go back and forth on whether to include information about the Plum Island experiments using infected ticks. We opted to leave it in at this preliminary proposal stage, but we've heard LymeNet's vote loud and clear.
I agree that the rash photo on the web site is a bit too perfect, but it's a real EM rash, and it's meant to be more of an icon of the disease rather than a diagnostic aid.
My hope is that this documentary will get national exposure and will really raise awareness about the issues surrounding the disease. So if you're willing to share your story, send it on in. It could make a big difference to so many people.
KrisKraft
[This message has been edited by KrisKraft (edited 16 February 2005).]
Posts: 245 | From Palo Alto, CA USA | Registered: Jul 2003
| IP: Logged |
posted
Kris, you didn't address my concern on changing and enlarging the font plus shorter paragraphs. Please reply on this. Betty G.
Posts: 1 | From US | Registered: Aug 2015
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/