lymemomtooo
Frequent Contributor (1K+ posts)
Member # 5396
posted
Tincup, I bet it was great..Been wondering and worrying all day..
I am sure you are giving yourself a bad rap..I know you did a splendid job...
Worried about the Harford Co. contingent..Driver got lost this am, not sure if he can find his way back..Take care of JG tomorrow if she is able to go..
Prayers are with you..lymemomtooo
[This message has been edited by lymemomtooo (edited 10 March 2005).]
Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
Well I didn't think anybody stunk today. It was incredibly moving hearing all of the testimony. It was also very obvious that a number of Senators were moved.
Posts: 4711 | From Washington, DC | Registered: Mar 2004
| IP: Logged |
JillF
Frequent Contributor (1K+ posts)
Member # 5553
Goal: More focus on Lyme disease Residents to lobby for prevention efforts, research in capital
By Monique Lewis Daily Times Staff Writer
Times Photo by Todd Dudek Jackie King of Delmar moves a 4-Poster Deer Treatment Bait Station for tick control at her house Wednesday. The station sprays the deer's neck and head, which is the tick's main nesting spot, with a chemical only harmful to the insect. King, whose children have Lyme disease, and others will travel to Annapolis today to lobby for research and prevention support.
SALISBURY -- After more than a year of discussions, members of the Lyme Disease Association and 60 others will drive to Annapolis today and lobby to state legislators for prevention and research on the widespread tick affliction.
The association's Eastern Shore chapter will go before the Senate's Education, Health and Environmental Affairs Committee today, and the House of Representatives Health and Governmental Affairs Committee on Friday. Both meetings will feature first readings of bills.
Senate Bill 596 is designed to protect doctors who treat late stages of Lyme disease in Maryland to do clinical diagnosis and administer long-term antibiotics.
"If the regular 21-day antibiotics don't work, then a lot of insurance care providers and doctors won't provide anything else," Tony Caligiuri, chief of staff for U.S. Rep. Wayne T. Gilchrest, R-1st-Md., said Wednesday.
Caligiuri has a 9-year-old daughter suffering from the disease. He said the family had to travel to New Jersey to find a doctor who could treat it. He said it's surprising that there is such a lack of specialists because Maryland has the highest number of incidents.
For this reason the association's House Bill 1323 was written in an effort to establish a task force that will study the disease and report back to the legislature.
In an effort to get a head start on prevention, the Lyme Disease Association introduced the "4-Poster Deer Treatment Bait Station" in November. Developed by the Department of Agriculture, one can cover up to 50 acres, said Jackie King, the Eastern Shore association co-founder.
"They can eliminate 98 percent of the tick population in a three-year period," King said Wednesday.
The station sprays the deer's neck and head, which is the tick's main nesting spot, with a chemical only harmful to the insect, the association said.
Pamela Andrews, another Eastern Shore chapter co-founder and vice president, takes care of her 32-year-old daughter, Leya Schiller, who was infected at the age of 18 in 1991, Andrews said.
She thinks outings with high school friends exposed Schiller to the disease. It was 10 years before a Baltimore doctor properly diagnosed her daughter, Andrews said.
Andrews met co-founders Jackie and her husband, Dale King, in January 2003 at a Lyme disease seminar. Andrews said that it was then in a room of more than 300 that she realized she and Schiller were not alone.
"It's a problem up and down the Eastern Shore and Delaware, too," she said.
The association has submitted a panel of expert and personal testimonies to the legislature in the hopes of pushing their bills through. Andrews said she was hoping for one of those "good days" for her daughter, "but it doesn't look like she'll be able to go. ... She is too sick."
All four of Dale and Jackie's children have the disease. They are 2, 5, 7 and 10. Jackie said that as long as they're in treatment, they're fine. The whole family has been bitten. For now, Dale and Jackie are symptom-free.
"Our main purpose is helping others," Jackie said. "It's time the government got involved with helping people."
Reach Monique Lewis at 410-845-4656 or mlewis @salisbury.gannett.com
posted
I'm so happy to hear everything went well yesterday!
Tincup - thank you for all your hard work in getting things organized - so that you could present the views & opinions of those who couldn't attend.
What's good for Maryland is good for all of us. We are the UNITED states...and I know that when Maryland wakes up and starts taking better care of its Lyme infected citizens, then the rest of America will eventually be shook awake as well.
Thanks to all of you.
I'll be in prayer today, and trust that all will go well.
Blessings,
------------------ DR. Wiseass - not a real doc - just a real wise ass. www.twistoflyme.blogspot.com
Ann-OH
Frequent Contributor (5K+ posts)
Member # 2020
posted
TinCup should take a bow for all her hard work (though I believe she loved every minute!).... as should -all who testified, - all who showed up, - all involved with making Lymnet Flash Discussion the best way to get the word out to the troops, - all of those who got the message here and submitted personal information -and all who sent messages to all the legislators.
There is strength in numbers: (quote) From the Sierra club news - March/April 2005
One phone call is a lot more important than you may think! A long-time aide in Washington explained that, if a congress person receives many calls at their office, the aide will actually call the congress person on their cell phone, even if they're on the floor of the Capitol, debating. When asked, "How many is a lot?" her response was, "About 20." Your one call can make a difference. (end quote)
Sounds as tho docs won't be persecuted for treating...........therefore.........ALL docs will have to learn about real lyme and it's treatment.
Maybe now people won't have to travel so far to be treated.
A BIG thanks to all of you.
Posts: 575 | From Houston, TX | Registered: Oct 2000
| IP: Logged |
MammaLyme
Frequent Contributor (1K+ posts)
Member # 1257
posted
Tincup was wonderful. She testifed on behalf of all the sick people with the tick borne illnesses. Then she quoted great stats to back up her testimony
Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
quote:Originally posted by MammaLyme: Tincup was wonderful. She testifed on behalf of all the sick people with the tick borne illnesses. Then she quoted great stats to back up her testimony
WAY TO GO GIRL!
I thought that was Tincup! I thought that was one of the best testimonies! It was clear, concise and on point.
Posts: 4711 | From Washington, DC | Registered: Mar 2004
| IP: Logged |
posted
tincup - you did a wonderful job and i'm sure we will all reap the benefits in our respective states.. thank you, deb
Posts: 122 | From richmond, ca, usa | Registered: Feb 2004
| IP: Logged |
HEATHERKISS
Frequent Contributor (1K+ posts)
Member # 6789
posted
Your'e the best!
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
| IP: Logged |
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Yawn...
Giggle..
Yawn...
Or shall I say... yawn.. giggle.. yawn? Oh well. I was jut happy that when I was called on I didn't cry.. or freeze.. like notrmal. Today was the seconf day of the hearings. There were about 20 folks there supporting us.. who came from very far away.. and about 8 or so speakers. Everyone did a grand joh. Thankkk you Ann for posing the mesage.
I wish I would have had time to spend visitng with more folks. And I sure wish ew had more thna 3 minutes to put 20 years into testimony, Today we had the pleasue of the health dept coming to speak. They were opposed to having a task force.. although we stated we wanted to work together for the goo of the community.
They don't want to comce to our party. And they are suppose to be the laeders of the task forece. NOT a friendsly attitude.. ya think? I liked everyoned speech yesterday and today and don't think either day could have been any better. Many people worked VERY hard anmd just knowing 150 people showed up was wonerful.
Thakn you to everyone who wrote.. came.. worked hard her e suporting the bill and gaaave of themselves.
If we keep working together.. we will make a difference.
------------------ If you get the choice to sit it out or dance...
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Look what YOUR comments did...
An EDITORIAL!!!
YOUR comments make a difference... a BIG difference. Even from other states!!!
They said.. "More recently we have received a number of comments regarding coverage of Lyme disease. A letter to the editor drew nine comments the first day and half a dozen more the next. And we are still receiving comments. Most of the comments are simple words of praise for helping to raise the awareness of the disease." etc. etc. (see article below).
Please keep up the good work. This paper is in the process of doing ANOTHER article on yesterdays hearings... with pictures!
posted
Thank you SOOOOOOOOOOOOOOOOOOOO MUCH,TinCup!!!! What would we do without you your work for us all but most of all your great sense of humor!!!!!!!!!!!!!!!!!! Many blessings from above Mule
Posts: 124 | From Mound City MO USA | Registered: Sep 2004
| IP: Logged |
posted
Great Job Tincup, the one thaing that is really bothering me though about all of the good press we are getting, is very little talk about human transmission.
I know it takes one step at a time, but recent articles I have read show human transmission could be as high as 3 to 1 vs vector transmission.
Not to take away from all the great work that has been done by Tincup and others, just wanted to bring it up.
Posts: 533 | From Las Vegas, NV | Registered: Jun 2003
| IP: Logged |
posted
hwlatin, see my post today about the NIH committee meeting, and you had Calif. reps on this committee.
May I suggest that you contact them and tell them of your/others concerns about the transmission of lyme? I believe there were 2 women representing Calif. One had a hyphenated name.
If you go to their web site pages, perhaps you might see who else is shown as being involved in this this specific BUDGET committee chaired by Ohio's Ralph Ragula, sp?
TINCUP, thanks for all the newspaper links you showed & your feedback from the hearing. I see my one article was published!
Thanks to ALL OF YOU for your hard work in getting these lyme disease bills organized and hopefully to be PASSED as well as the OTHER STATES who have attempted this as well!
bettyg, Iowa
Posts: 1 | From US | Registered: Aug 2015
| IP: Logged |
Lymiedad
Unregistered
posted
Good job. I would love to hear more.
IP: Logged |
MammaLyme
Frequent Contributor (1K+ posts)
Member # 1257
posted
I myself testified that I passed it on to my husband since we were not told that it was related to Syphilis and stated that he has been on an IV for six months and many other medications.
aklnwlf
Frequent Contributor (5K+ posts)
Member # 5960
posted
Dear Tincup,
Can't find the words to express my gratitude for what you and others are doing for those of us who are too ill or financially devastated by this disease to attend.
I'm sitting here trying not to blubber and possibly short out my keyboard!!
Thank you.
Am sending a 911 upward.
Posts: 6161 | From Columbus, GA | Registered: Jul 2004
| IP: Logged |
JillF
Frequent Contributor (1K+ posts)
Member # 5553
posted
Yes, thank you TC!
But, it looks like we still got some work to do.
I have heard that they (senators) did not hear any testimony stating that MD doctors refused treatment and that the State Health Dept. does not believe this is a need for more $ on Lyme disease in MD and that they are doing their part already...
posted
I have not been on lymenet for several weeks and sorry I missed all of this. I am a Maryland (Harford CO.) resident and sorry to say that the people I run into w/lyme keep repeating the same old story, nothing seems to have changed. I am so hopeful things may change. Are there transcripts available? Will it be repeated on MPT? I read the Baltimore Sun daily and did not see any mention of this. I am very sorry I missed this and thankful to everyone who was there.
Posts: 70 | Registered: Nov 2001
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/