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» LymeNet Flash » Questions and Discussion » Medical Questions » Caution about information you post

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Author Topic: Caution about information you post
Lishs mom
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Heya everyone, I was made aware that things which are posted here, may be taken and posted on another site, often out of context or "in part".

if you have something which you dont want blasted all over the net without your knowledge (and possibly taken out of context) then be cautious about what you post.

[This message has been edited by Lishs mom (edited 23 March 2005).]


Posts: 1918 | From Central, Oregon | Registered: Apr 2002  |  IP: Logged | Report this post to a Moderator
JillF
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Yup, I know all about those other websites taking info/posts from here to there.

Ended up changing my email address just in case - you never know...

It's sad but you gotta protect yourself.


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lou
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Sorry, hope I didn't do the wrong thing. Hard to see how to avoid this though, as almost anything can be misrepresented by jerks with nothing better to do.

Seemed like only a first name would be safe enough.

What I remember about the reply was that she was no longer active. If search is working, I could hunt it up.

[This message has been edited by lou (edited 23 March 2005).]


Posts: 8430 | From Not available | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
Lishs mom
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Its ok Lou, Im not upset and you did nothing wrong. Some people have nothing to do with their time, and thats ok by me.

They entitled to their opinions, and if they want to say the OLDN is no good because OLDN has made an educated choice to associate with CALDA and LDA thats fine with me.

OLDN may be wrong in some of our assertions, but our assertions based on credible and documented evidence. In other words, when we choose to make a statement, it can (and will) be backed up so we remain credible.

It is better than sitting around looking for reasons to hate, and making claims that are unfounded and taken out of context....but who knows, maybe the Lyme has hit some of them harder. So I will not judge what they do.

My position is to work to support those who want support. There are some who either cant or wont accept treatment. For those who can't, hopefully OLDN will make a difference. For those who won't....they have a choice and I can't waste my time worrying about them.

[This message has been edited by Lishs mom (edited 23 March 2005).]

[This message has been edited by Lishs mom (edited 23 March 2005).]


Posts: 1918 | From Central, Oregon | Registered: Apr 2002  |  IP: Logged | Report this post to a Moderator
GEDEN13
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lish's mom,
i know who you are talking about.there was a big flare up a few month's ago here.this guy continue's to "lurk".

if you would like his name,i will gladly give it to you.

right now he is hawking the newbie's,who know nothing of what went on.and what type of person he is.

i do suspect another.just changed there name...

do be careful.place no trust in them.do be careful what you say...gary

------------------


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lou
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okey doke.

Not exactly sure what is going on, but looks to me like doing something is better than doing nothing, since we don't seem to be getting to a good place with lyme treatment just waiting around for it.

Admire your efforts. Wish I could help. Have relatives in OR but they are busy fighting cancer so I can't ask them to pitch in.

Best of luck.


Posts: 8430 | From Not available | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
   

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