posted
Hi, my son, almost 17 yrs old, just got him WB lab results from IgeneX. For IGG: 39kDa IND 41kDa + The rest are negative For IGM: **23-25kDa. IND **31 kDa. IND **39kDa IND **41kDa IND 66kDa ++ The rest are negative.
My wife and I are both lyme victims (I got mine from her). What do you think about my son's lab test? He coughs a lot in the recent 3 months, and doctors could not find the reason. He feels fatigue too (He is a high school student).
I am thinking bring him back to China (where we came from) for treatment this summer. I am pretty positive that he has the bacteria in his body for 3 to 4 yeras (my wife was bitten in 2002). I have the following questions: 1. If I want to give him IV treatment, what medicine is the best? what dose? 2. Is it possible that he gets IV treatment here? How much is the cost? we live at NC. Thank you!
Posts: 7 | Registered: Apr 2003
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bettyg
Unregistered
posted
Mike, welcome to the board.
Mike, print out DR. B'S 05 LYME TREATMENT GUIDELINES; he tells dosages in there...ok. You can find this below in TREEPATROL'S NEWBIE LINKS.
Others can come along & tell you more about IVs since I have never had one.
Welcome to this 24/7 LYME support group board!
Here's TREEPATROL's and Tincup's combination newbie links.
Print off the links then check them off as you read as you could spend several months reading all of this.
print & read Dr. Burrascono's 2005 info first; you will come back to this often.
Extensive info in Treepatrol''s newbie links about the meaning of WESTERN BLOT IGM/IGG test results from Igenex! Be sure to read or print this info IF Igenex tested you ok!
Also, see Cheryl''s extensive web sites on: LD DIAGNOSIS, SYMPTOMS, & TREATMENT ... wonderful! Read the area on CO-INFECTIONS! You could have from 1-10 other illnesses that tick is carrying...lyme, malaria, etc.
If you are showing symptoms of co-infections, I would like to suggest being tested for co-infections when you have LYME western blots done. It isn''t cheap!! But if you are positive, you can treat the co-infections first, and then work on LYME symptoms.
EYE SENSITIVIES & NOIR, no infrared sunglasses info., 2-28-06 updated YES, I have what you have! Are you on doxy too? That made my extreme eyes
200% MORE sensitive than they we were earlier. I learned a lot about eye sensitivity/lighting on www.marshallprotocol.com board.
Look for AUSSIE BARB'S EAST FINDER and then eyes/sunglasses, etc. Wealth of info there.
mention you have lyme and marshall protocol, they will give you 20% off! I'm NOT on MProtocol, but mention it anyway. I was on their new board almost 12 months!
Also they have been kind enough to replace the SCRATCHED LENSES & BROKEN BOWS! How's that for service?
I don't drive often at night, but I can wear NOIR's 901 lenses at night while driving; it creates soft candle lights coming at me...tolerable. NOT to wear in town with all the action of people crossing where they shouldn't be, etc.
from LOU to Betty on LONG web links and Thank You Lou!: "If you hit the return key in the middle of a link, I don't think it will be clickable anymore. An alternative that maybe Betty should be telling people about is the tiny url website. I have it on my tool bar at the top of the page and use it for those incredablylongwebsiteaddresses.
All you have to do is ask tiny url to produce a short version, which it will do with a unique address, which you then use instead in your post. Works just the same when clicked! Here is the website, spread the word! http://tinyurl.com/
3-1-06, fyi, I tried dragging tinyurl to my toolbar without success, so that''s why I currently have LONG addresses vs. short tiny ones! I''ll keep trying.
RASH ITCHES -- use ``rubbing alcohol`` on it especially the corners good. Hubby suggested; worked great for me; rash cleared up in 2 days vs. weeks/month
1. How many doctors did you have to see before being properly diagnosed? 112 responses Average number of doctors consulted before being diagnosed - 14 Answers ranged from 1- 120 different doctors
2. Have you had problems getting insurance to pay for doctors or treatment? 87 responses? Yes- 63 No- 24
3. Have you lost income because of Lyme disease? 106 responses Yes- 99 No- 7
4. How much does it cost you (average) per month for Lyme related expenses? 61 responded Average cost per month per patient- $4,472.49 Low- $500.00 High- $21,492.00
5. How many different medications do you take per day? 77 responded Average - 14 different medications per day Low- 3 High- 25
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char
Frequent Contributor (1K+ posts)
Member # 8315
posted
Hi Mike,
I sent a pm.
Posts: 1230 | From US | Registered: Nov 2005
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posted
Be sure to read this link. The Dr speaks of "equivocal" which is the same as "IND"...so read closely what he says about that.
I would think that putting him on abx and later running the test again, could result in the test showing positive...just my opinion...it happens to many.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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david1097
Frequent Contributor (1K+ posts)
Member # 3662
posted
First a few commetns...
Coughing and fatigue can be caused by a lot of things. If you suspect a tick bourne disease (TBD) is the cause it is very important that you have him examined by a Dr who is very familiar with TBD's before assuming that he has somehow been infected. The WB's that you have listed are far from conclusive so an expereinced Dr's review of the case is needed before any conclusion can be drawn.
How did you end up in china for treatment and what protocol did they use?
Also, unless specific symptoms are present or there are particular GI related problems IV drugs are not usually used, at least not used as an initial treatment.
There is general agreement between the IDSA (which is basically the same as the CDC) guidelines and the ILADS guidelines as to when and what type of IV drugs should be used for Lyme. There is however significnat disagreement as to how long the drugs should be used.
This disagreement appears to be entirely based on both the definition of lyme disease being a mono bacterial infection vs a poly baterial infection as well as the definition of cure. IDSA seems to assume lyme is always a monobacterial infection and to define cure as a reduction of advancement of impairment with a future recurrance or advancement of disease being considered as a relapse. ILADS seems to define cure as a minimization of impairment with a recurrance of disease being an incomplete treatment.
The problem with the IDSA approach is that while the morbidity can be further reduced with more treatment (as proven many times in the clinical setting), treatmetn is stopped and if a relapse occurs and is finally acted on, the recovery from the relapse is MUCH more difficult (as observed by any many many patients)
Aside from that basic disconnect the approaches are the same (as far as I know) so I would expect that any Dr, worldwide would at least start the treatment of lyme using a method that would be effective, from that point on it all depends on the Dr.
So the answer to your question of what drug and dose should be used for IV for your son. Based on your brief description of the symptoms, it appears the IV would not be indicated at this time based on either IDSA or ILADS recommended approaches.
Obviously this is simple an internet message board with no particualr reliability or credentials and the situation with your son may be more complicated. It is therefore important that you see a Dr who has clinical experience with this disease prior to going to a country where they may treat based on the patients requested protocol rather than a Dr's recommendation.
Sorry to be rather blunt in this response but in the best interest of your son please do seek a local Dr that knows TBD's.
Hope that helps and good luck
Posts: 1184 | From north america | Registered: Feb 2003
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