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» LymeNet Flash » Questions and Discussion » Medical Questions » MS patients should be as angry as us LYME patients.

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Author Topic: MS patients should be as angry as us LYME patients.
Pinelady
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They are being as denied and lied to as we are and have been. This is an abomination of health care. As well as arthritis patients.

Example 11

Multiple Sclerosis and Spirochete Infection

This Example describes the relationship between multiple sclerosis and spirochete infection. In particular, 146 human patients with a history of

multiple sclerosis were tested for spirochete infection. Patient samples were collected from eachpatient and cultured on GSI-1 (See e.g.,

Example 2 above). These samples were then tested for spirochete infection (e.g., as described in Example 3). The results of this testing revealed

that 146 of the 146 patient samples tested were positive forLeptospira. In other words, all of the patients with a history of multiple sclerosis

tested for spirochete infection were found to be positive for Leptospira spirochetes. Also, 3 of the 146 patients were also found to be positive

for Borreliaburgdorferi infection. These three patients that were positive for both Leptospira and Borrelia burgdorferi were found to exhibit

severe symptoms associated with multiple sclerosis.

Scanning and transmission electron micropsy was performed on approximately 35 of the multiple sclerosis patient samples described above. The

electron microscopy revealed that all the Leptospira spirochetes had a unique morphology not previouslyseen in other Leptospira species.

Specifically, these Leptospira were shorter in length than other Leptospira spirochetes and tended to have a flagellar pattern characterized

as having more flagella at one end than the other.

http://www.patentstorm.us/patents/7235397/description.html

--------------------
Suspected Lyme 07 Test neg One band migrating in IgG region
unable to identify.Igenex Jan.09IFA titer 1:40 IND
IgM neg pos
31 +++ 34 IND 39 IND 41 IND 83-93 +
DX:Neuroborreliosis

Posts: 5850 | From Kentucky | Registered: Dec 2008  |  IP: Logged | Report this post to a Moderator
massman
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So if MS is "autoimmune" then the scientists and docs dealing with MS are "auto" brain dead.

And auto heartless.

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njlymemom
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not surprised

when i was dx with MS, and living with this dx for a few years

i told my neuro that i had been on an abx for a sinus infection and that my ms symptoms seemed better

she ignored me -

it is known tht there are hundreds of spirochetes

research needs to be done

thank you for posting this

i will pass it on to friends who have an MS dx

--------------------
This is NOT medical advice - and should NOT be used to replace your MD's advice. Info is only the opinion of those who publish the site.


The shortest way to do many things is to do only one thing at a time.

cb

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njlymemom
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what i meant to say was

there are hundreds of "different" spirochetes known - only a few have been researched

--------------------
This is NOT medical advice - and should NOT be used to replace your MD's advice. Info is only the opinion of those who publish the site.


The shortest way to do many things is to do only one thing at a time.

cb

Posts: 669 | From somewherebetweentherocks | Registered: Mar 2008  |  IP: Logged | Report this post to a Moderator
D Bergy
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I always found this research interesting as it relates to MS and some other diseases.

Mattman studied patients with Tuberculosis and found that in every patient tested, the blood was saturated with a variety of L-forms.

She identified two different species of L-form bacteria in patients with Parkinson's Disease. The L- form species of Borrellia burgdoferi was detected in patients with Lyme disease. She cultured serum from forty patients with multiple sclerosis and found a different species of the borrelia L-form present in her samples. Soon after, she detected Chlamydia pneumonia in the blood of patients who had suffered a pulmonary thrombosis. She also found bacteria that resembled M. tuberculosis in the blood of patients with the lung disease sarcoidosis.

In the end, Mattman detected dozens of species of L-form bacteria and was able to culture these wall-less forms of bacteria from the blood samples of patients with over 20 incurable illnesses. She published numerous papers throughout her career and in authored an entire medical textbook in which she details her findings.

http://bacteriality.com/2007/08/18/history/

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Truthfinder
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This is fascinating information. However, there is a bit of a caveat.....

I noticed that the source of the info was `patentstorm'. A Patent for a system of `methods and compositions for culturing spirochete and treating spirochete diseases' was issued on June 26, 2007 and expires in 2020. The inventor was Stephen R. Welcher, and the patent was assigned to Gensys, Inc. of Aurora, IL. (Apparently, Gensys, Inc. holds only one Patent - this one.)

Back in November of 1999, a suit was filed ``charging Life Care Systems, L.L.C., GenSys, Inc. (Life Care's associated lab), Stephen Wechter and John Peterson with violating the Illinois Consumer Fraud and Deceptive Business Practices Act. All defendants allegedly operated their scam from offices at 101 S. Broadway, Aurora.''

......[allegedly] ``Consumers were given information claiming that a bacteria known as spirochete -- found in water -- caused their diseases and only the GenSys lab had the technology to detect it. Life Care Systems employed doctors to prescribe various antibiotics that defendants claimed would cure the disease based on blood test results provided by the GenSys lab.''

Apparently, not everything had been resolved as of 2004. A trial of Peterson and Wechter was scheduled for November 29, 2004 but I can't find a thing about any of this after that.

But then a Patent is issued to Wechter/Gensys in 2007? How interesting.

Anyway, the fact that these guys and these businesses were targeted and sued doesn't mean they or their businesses are `fraudulent'. As we know, sometimes Big Medicine gets cranky if they think there's real competition out there. Just the same, it might be wise to take this information with a grain of salt.

--------------------
Tracy
.... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�.

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Pinelady
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You may be right Tracy but I would say in prior treatments for MS it is possible that they were

only seeing L forms and at the time did not know that much about them. Interesting none the less it

clearly defines a still needed dissemination of information and the need for more dollars for research.

--------------------
Suspected Lyme 07 Test neg One band migrating in IgG region
unable to identify.Igenex Jan.09IFA titer 1:40 IND
IgM neg pos
31 +++ 34 IND 39 IND 41 IND 83-93 +
DX:Neuroborreliosis

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Truthfinder
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Absolutely right, Pinelady. [Smile]

And I suspect it's quite possible that everything this lab found re various spirochetes is true, and that's what got them into hot water.

Politics and money. The truth gets harder to find every day.

--------------------
Tracy
.... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�.

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massman
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Thanks D Bergy for the article !

May have helped solve a mystery for me. CWD Staph Aureus I had not heard of. I had a nasty Staph A. infection over 20 years ago in a large joint.

Thanks again.

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coltman
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I think many MS people who suspect bacterial cause follow CPN treatment protocol : http://www.thisisms.com/forum-28.html

CPN protocol is more refined and less vague than a lot of controversial information about lyme, so I guess thats one of the reasons.

Regardless Wheldon protocol seems like good general abx protocol, so if they have lyme it hits it as well

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Lymetoo
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Not surprising. Thanks for posting this!!

--------------------
--Lymetutu--
Opinions, not medical advice!

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n.northernlights
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I just want to mention that on the LDN yahoo groups they have discovered that many diagnosed with MS actually have lyme instead.

The typical MS patient stabilizes or improves on LDN, but those with lyme do not get better like that, but improve on lyme treatment.

Of couse one can do both lyme treatment and LDN as LDN normalizes the immune system and helps for infections.

On XMRV: de Freitas was persecuted by the CDC for finding a retrovirus responsible in cfs, and she was working for them:
http://www.ncf-net.org/forum/revelations.html they ruined her career.

It is identical to the retrovirus the whittemore-peterson institute now found in over 85% of cfs and atypical MS cases, they say, and are gonna try to prove it.

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blinkie
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de Freitas should be getting the credit for finding that virus. Such a shame.

I just hope that at least, the WPI can have success in getting it recognized and treatment for it. So many years of lost work and all those sick people keep on suffering.

I suspect that is why the WPI was created. They felt they had a better chance of success coming from a specialized institute setting. JMO

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Pinelady
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Thanks for the Info. n.northernlights.

Somehow I am not surprised but I am left wondering

if this will ever end. What is it going to take to

get control of all the injustice in the medical

world. What it amounted to was they did not want to

pay soldiers who claimed they were made ill in

the Gulf War. So it was hidden and shoved under

a rug.

--------------------
Suspected Lyme 07 Test neg One band migrating in IgG region
unable to identify.Igenex Jan.09IFA titer 1:40 IND
IgM neg pos
31 +++ 34 IND 39 IND 41 IND 83-93 +
DX:Neuroborreliosis

Posts: 5850 | From Kentucky | Registered: Dec 2008  |  IP: Logged | Report this post to a Moderator
   

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