welcome to our lyme world! At least you know you have co-infections too! I still have not tested for these but do plan to in future.
Welcome to this 24/7 support group board!
Here's TREEPATROL's and tincup's combination newbie links. http://flash.lymenet.org/ubb/Forum1/HTML/029917.html
Print off the links then check them off as you read as you could spend several months reading all of this.
print & read Dr. Barrascono's info first; you will come back to this often.
Also, see Cheryl's extensive web sites on: LD DIAGNOSIS, SYMPTOMS, & TREATMENT ... wonderful! http://www.lymeinfo.net/lymediseasetreatment.html
The WESTERN BLOT IGM & IGG blood test nos. 189 and 188, are the only accurate tests for LD. They should only be sent to these 3 USA's Lyme testing labs:
797 San Antonio Road
Palo Alto, CA 94303
(If the early test, called IGM, is negative; the later test IGG is NOT done!)
Please see their web site: www.igenex.com CALL for their current prices effective May 1, 2005 and
to print their REQUIRED form, which MUST be signed by the doctor, DIAGNOSIS CODE NO. COMPLETED!; Medicare's UPIN no., and your blood taken EARLY in the week so it doesn't sit in post offices!
Write on their forms you want results FAXED to their drs. Office; snail mail paper copy so it's not lost like mine was!
NON-Medicare patients must PREPAY by check or credit card for the tests since they do NOT handle insurance papers.
Medicare patients do NOT have to prepay!
2. MDLabs from NJ, www.mdl.net
see their site; they too require their own form. NO prices are listed; you must call their 800 no.
3. BOWEN labs from Florida, www.bowen.net You pay $250 tax-deductible payment for testing, and they send you a picture of what shows up in your blood.
Lyme should be diagnosed clinically using medical history in addition with the Western Blot blood tests as no currently available test is definitive in ruling-in or ruling-out infection with Ld pathogens, or whether these infections are responsible for the patient's symptoms.
NOTE: Please send a copy of your health insurance card to YOUR insurance comany (mine is Wellmark BC/BS, Iowa) for them to submit to BLUE CARD (handles other states) them to FORWARD to California's Blue Shield health insurance company since they will require that, DRS. Diagnosis Code No., and which date of service is correct (IGX has 3 different dates on their paid receipts....use the DATE OF ACTIVITY!).
FYI - mine was returned to me after 6 wks. After submitting; dr./blood lab failed to show DRS. DIAGNOSIS CODE NO. on their form! It went to 7 people to be returned to me! Disgusting!
I came across this new web site of good info from Natl. Institute of Health's medline library....covering many other dx illnesses...Alzheimer's/dementia, Parkinson's, Bell's Palsy, MS, FMS, CFS, IBS, etc. and was posted on www.lymenet.org.
300 OTHER medical condtions mimicking lyme disease w/citations and author's
name, Art Dougherty, Calif., 2001, is at bottom of site page! http://www.geocities.com/HotSprings/Oasis/6455/misdiag-links.html
Hope you each find some good info there. Saw it's from Art Dougherty, Calif. in 2001. http://www.geocities.com/lymeart3/misdiag-links.html#disease
Also, see Cheryl's www.lymeinfo.net's extensive web sites on LD Diagnosis, Symptoms, and Treatment:
IF YOU ARE TRYING TO GET SS DISABILITY INSURANCE BENEFITS
This message is sent upon subscription, and again monthly.
Please let the moderators know if any of the links have changed.
There are several links found by clicking on 'Links' on the
website or by going directly to http://groups.yahoo.com/group/Disinissues/links
There are many more links, as well as advice, in the "useful" messages
in the Files area of the website. Go to http://groups.yahoo.com/group/Disinissues
and click on Files.
BETTY NOTE: Look at the female MD's DETAILED BACKGROUND right below this paragraph. Print off her detailed responses as to why she could NOT do her job, and then apply that to YOUR own job as to why you no longer can do any type of sustainable work now nor in the foreseeable future!
These links are a compilation of several areas of interest which are
commonly requested and mentioned. They reflect the collected wisdom
of this group. Check them out - you just might find the information
you were looking for! Take a look at Files that are not specific to
your situation, because they might be helpful anyway - what works for
Social Security may work for LTD claims, what applies to CFS may apply
to your medical condition.
The Welcome Message and Group Guidelines are also in Files, if you
need a refresher on how this group works.
You must register with Yahoo to use the website, but note:
Be careful not to permit your address to be put into the directory
when you register. Put as little as possible into your public profile.
You do not need a Yahoo address to use the website. Your email address is what Yahoo calls your "alternate address."
Contact the moderators at
or for AOL subscribers:
Disinissues website - http://groups.yahoo.com/group/Disinissues
To reach the list moderators, write to:
DO NOT FORWARD ANY MESSAGE FROM Disinissues
WITHOUT PRIOR WRITTEN PERMISSION FROM THE AUTHOR
Do not distribute any member's email address.
NO MESSAGE ON THIS LIST IS TO BE CONSTRUED AS LEGAL ADVICE
Yahoo! Groups Links
To visit your group on the web, go to: http://groups.yahoo.com/group/Disinissues/
To unsubscribe from this group, send an email to:
Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.
An online friend of mine from disinissues web site posted this info today, so I have copied it over here.
Subject: fibro/CFS disability info [Disinissues] what does an Functional Capacity Exam entail?
Lyme, fibro, & CFS support group members who are/will be filing for SS Disability insurance benefits, please go to the web page shown below.
There were 9 pages of info I printed below area where you can order from fibro network a 70 page packet. I too plan on including this info when I send my FINAL packet of info to chief alj before my June 16, 05 hearing...my last chance!
Please read the site mentioned on: WHY DISABILITY TESTING FOR FMS IS OFTEN MISLEADING ADVICE FOR FM/CFS PATIENTS AND THEIR DISABILITY TEAM.....
Also after this article are the following articles:
WHAT COULD BE CAUSING DELAYED-PHASE FLARES?
BENNETT'S METHOD FOR ASSESSING FUNCTION IN FMS..
TECTONIC CHANGES IN DISABILITY LAW by lawyer Joshua Potter, CALIF.
MEDICALLY DETERMINABLE IMPAIRMENT REQUIREMENTS FOR CFS & FMS
DOCUMENTIONATION...VIEW IT AS AN INSURANCE POLICY
I printed this out in larger print for my eyes....9 pages! Will read it thoroughly and mark up 2nd copy to go to ALJudge for my 2nd hearing as medical evidence also....