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IS THERE PRESENTLY ANY RESEARCH BEING DONE LINKING MACULAR DEGENERATION WITH LYME DISEASE? MY GRANDPA HAS BOTH & WE'RE TRYING TO FIND THE NAME OF THE LLMD/OPHTHAMOLOGIST...ANY IDEAS? THEY'RE DOING STEM-CELL FOR MACULAR IN CALLY, BUT WE HAVE TO KNOW WHAT CAUSED IT. THANKS~~Stac
Posts: 134 | From PA | Registered: May 2005
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janet thomas
Frequent Contributor (1K+ posts)
Member # 7122
posted
Sometimes, degenerative or hemorrhagic macular changes are observed in subjects who are either relatively young or who show a total absence of drusen and other signs of early macular degeneration. These patients often display signs of a chronic type of systemic infection. In all such cases, the patient's blood tested positive for such agents as Lyme disease, Chlamydia pneumoniae, toxoplasmosis or other infectious agents associated with subretinal neovascularization in younger individuals. Anecdotal evidence indicates that an appropriate oral antibiotic improves both the general condition and the status of the retina. http://www.schepens.com/macula_degeneration.htmPosts: 2001 | From NJ | Registered: Mar 2005
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
Stac, Check your email. Carol
Posts: 6947 | From Lancaster, PA | Registered: Feb 2004
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Marnie
Frequent Contributor (5K+ posts)
Member # 773
posted
Good article in the June issue of Alternative Medicine, page 61 on what nutrients need to be supplemented.
Free radical assault on the eyes raises the risk of macular degeneration.
Bb uses OUR nutrients...rapidly depleting them.
``Visual defects are common in surviving preterm infants. Increased levels of harmful neurochemical mediators that have been reported in these conditions include oxygen free radicals, excitatory amino acids, tumor necrosis factor-alpha (TNF-a) and in thromboxane A2 (TXA2) which are aggravated in magnesium deficiency and may be ameliorated by magnesium.'' http://www.barttersite.com/mgpreemies.htm
From the magazine mentioned above:
"While your eyes need antioxidants and omega-3s, they also need other nutrients, like B-complex vitamins (for nerve function) and magnesium to maintain blood flow to the eye. But no matter how well you eat, chances are you'll fall short on these and other important nutrients. Some Harvard researchers are so sure of this that, in a 2002 report, they recommended that all adults take a multivitamin/mineral supplement."
Sis HAD to resort to steroid shots IN her eyes to stop the damage due to the tremendous inflammation on the optic nerve. At one point all she could see was the big "E" on the chart. It worked. She can see now, but has a little permanent damage.
LLMD/Opthamologist...nearly nonexistent. Too "rare". Uveitis is the biggest problem, generally speaking.
Posts: 9426 | From Sunshine State | Registered: Mar 2001
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posted
Stac, it runs in my family; 3 generations that I'm aware of.
You've been given a lot of good info & links...read them well.
I have a favor to ask....would you type in lower case please? It's so much easier on our late-stage lyme eyes and double space after 6-8 lines of text please. All caps on the internet suggests you are "shouting" at us ... sure you didn't mean to. Thanks!
Also, check treepatrol's newbie links for 300 other illnesses mimic lyme ... not sure if macular degeneration is on there or not. It shows NIH info & citations....
bettyg
Posts: 1 | From US | Registered: Aug 2015
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Yes, this can most certainly be from lyme and other pathogens. My eye doctor watched me closely for about 3 yrs and just last Dec he finally seen real improvement in my eyes.
I've been doing much better, so I'd say as the bacteria load lessens so does damages.
Janet, I found your post interesting on mentioning chlamydia pneumoniae. Two weeks ago my muscle tester doctor told me to start a series of rife treatments for this. I reacted very strongly to those rife treatments for two weeks and now they aren't so bad.
It is just so unbelievable all the pathogens that are also in our bodies from these bug bites. No wonder it is so hard to get well.
Take care, Pam
Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
Dr. Edward C. Kondrot in his book "Miracle Eye Cure" specifically writes about microcurrent and correcting eye problems. By using microcurrent along with a nutritional program, he has successes with Macular Degeneration, wet or dry, Diabetic Retinopathy, Vascula Retinal Disease, Retinitis Pigmentosa, Juvenile Macular Degeneration, Inflammatory Retinal Disease, and Drug Toxicity of the Retina.
All of these treatments are included in the KMT (Klinghardt Matrix Therapy microcurrent/microbial inhibition devices). We use it frequently just to keep our eyesight as sharp as possible.
All of that of course has to be included treating a variety of microorganisms (bacteria, viruses, parasites, fungi & mold) and environmental/dental toxicity problems. It requires addressing all of these, and KMT works great with all.
Long time no see, dear Reno! Where have you been? Our best to you and Gramps.
Take care.
Posts: 9834 | From Washington State | Registered: Oct 2000
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Stacey, thanks for replying and best wishes on your eyesight.
When I was with Dad with eye specialists, he ended up buying this magnifier where you could read ONE column of the newspaper in super wide width. He loved using it, and it had a battery for nighttime. Was $175.00 & that was probably 6-8 yrs. ago.
bettyg bettyg
Posts: 1 | From US | Registered: Aug 2015
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Areneli
Frequent Contributor (1K+ posts)
Member # 6740
posted
We also have to remember that not all diseases are caused or connected to LD (althought sometimes it seems so)
Posts: 1538 | From Planet Earth | Registered: Jan 2005
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Hi Betty, Thank-You for the suggestion. Gramps just had an appt. @ Johns Hopkins 2 weeks ago. I just talked to him...He was reading the USA Today (Boy, I MISS that!) They told him he's fine to drive, also. The Future TERRIFIES me for his sake. Gramps was so sad...I hate to see him hurt. He's been going to the Cleveland Clinic for the last decade for his LOW BLOOD PRESSURE...Gosh, it's a GOOD, but rare, day when my Mom & I break 100...usually 90/60.
WHOOPS! SORRY! With the (possible) new developments, The Cleveland Clinic & Johns Hopkins are the LAST places to utter the wwords LYME DISEASE!
I'm calling Lancaster in the a.m...Luckily we L-O-V-E to Travel! The ONLY reason I'm in Clearfield is becoz' it took 13 yrs. to find a FANTASTIC PHYSICAL THERAPIST. It's the 2nd county in the state for Lyme!
posted
Hi Arenelli, Thank-You for responding. We'll know much more after we see the Ophthamologist. Could be. I'm going to print out what Carol & Marnie had posted. So much to think about...I can't Thank everyone enough!!
posted
I do not have macular degeneration, but the Lyme disease has given me the wonderful gift of cystoid macular edema. I had and IV test done on my pupils by a wonderful Opthamologist who knows of lyme and how it effects the eyes.
He showed me the pictures afterwards and both eyes have holes in them, but the right one is legally blind and he cannot say if the left one will end up the same or not. He sees me every 4-6 mos now, unless I have a flare up. The damage cannot be reversed and new eyeglasse will not help. This has been a hard symptom for me to swallow as my reading is limited, trip when I walk...from no depth perception and floaters like you wouldn't believe.
Just thought you would be interested...
perplexed
Posts: 324 | From Lexington, KY, USA | Registered: Dec 2001
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posted
I'm so sorry, Perplexed! I just hung up with the Opthamologist (maybe) 3 mins. before I got online & read your post. It breaks my Heart!
My Grandpa & I have appointments in Lancaster @ the end of June. He's a Lyme Opthamologist &, supposedly, knows his stuff...I hope & Pray!
If you have any questions you'd like me to ask, just name it. We're all in this together. My Mom has floaters,also. When she saw our LLMD a few weeks ago, she told him about the white lights--he told her he sees colors!
VISION PROBLEMS ARE THE SCARIEST ANYONE COULD THINK OF!!
Good Luck & God Bless~Stacey
P.S. When I got a call from the Scientist @ a University in California, he told me the Dr. uses HBOT befoe the stem-cell transplant for Macular Degeneration--it's been very sucessful.
posted
The classic risk factors for Macular Degeneration are Diabetes, and familial risk factors, but what is rarely talked about is that in several Heart Disease Risk Factor studies where they used aspirin, there was always a significant increase in incidence of macular degeneration.
Perhaps the loss of platelet adhesion caused bleeding problems? No one is yet certain as to the cause? But Aspirin is a risk factor for Macular Degeneration.
Are you taking any aspirin and is it more than 81 grains a day?
I do believe that Lyme can cause many eye problems and Macular degeneration is not out of the question, but it would take a very big retrospective study to really know for sure.
TG
Posts: 29 | From Duluth, MN, USA | Registered: Mar 2005
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HI BETTY & LINDA, I WROTE A LONG POST & LOST IT...I FEEL LIKE THAT GUY IN THE COMICS...WHO IS IT?...ANDY CAPP! IN SHORT, MY GTRANDPA HAS MACULAR, I COULDN'T SEE THE BIG "E". I'M TRYING TO LOCATE A LYME ARTICLE I WAS READING ON TESTING & SUCCESSFULLY TREATING PARKINSON'S & ALZHEIMER'S WITH ABX.(I THINK IT WAS MAB?) BETTY, I'M SO SORRY ABOUT YOUR DX! DR.S TOLD MY MOM TO WATCH OUT FOR THAT. MILK IS HER DOWNFALL...SHE SHOULD HAVE A COW GRAZING IN THE YARD! I'LL POST LATER. ~Stac
Posts: 134 | From PA | Registered: May 2005
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