Let me preface this with the fact that I'm not a doctor, and have not been diagnosed with Lyme. I'm just running on a strong suspicion based on a previous rash and a cluster of symptoms. I am going to get checked medically as soon as I can do it.Anyway, I wanted to discuss here difficulties with using the Web as a diagnostic resource.
When I first decided something was wrong, I figured I could go to the Web and come away with a decent guess as to the problem. IMHO, doctors are second cousins to auto mechanics, and are not above preying on ignorance. If you go to a random mechanic with no idea of what's wrong with your car, they'll do a bunch of needless testing, fix a bunch of things that are already ok, create some new problems for the next visit, and charge you and arm and a leg for their services. Better to go in with some idea of your problem, so you can do some damage control.
So I started looking. I Googled "medical diagnosis", and found a few "free" diagnosis sites. I tried two or three of these sites. Invariably, after a LONG chain of mostly irrelevant questions, I ended up at a screen that said in effect "You are in mortal danger. Send us a chunck of money and we will give you the details."
**** that.
The next thing I did was go to some medical info sites to look up some of my symptoms. For example, I have tingling in my face. So I Googled "facial paresthesia". The first listing is at WrongDiagnosis.com. Going to that page, I see nine possible causes, most of which I can eliminate. Lyme is not among them. In fact, Lyme is not mentioned on any of the top 20 pages for facial paresthesia.
I really had to dig. I kept searching for various clusters of my symptoms, and checking the resulting causes. I looked at MS, neurofibromatosis, trigeminal neuralgia, fibromyalgia, HIV, diabetes, etc. etc. In each case the symptom list didn't seem to match up.
I don't remember what symptom or symptoms got me in touch with Lyme, but when I saw Lyme, a bell went off in my head with respect to my rash I had gotten a couple years ago. And when I checked the symptom list, it was a much closer match to what I have been experiencing.
It seems to me that, with this being the information age and all, it should have been easier to connect with Lyme. I was involved with building the Internet, and at the time we thought this would be the great advance that would bring information to the masses. But just as the Internet has given us new ways to access information, it has also given us new ways to hide that information behind credit cards and passwords.