Hi all. Used to be Paisley, but lost my password. I've been missing in action for a long time now. Been too ill to even type. I checked in most days to see what I was missing though.
I got sicker because I was taking doxy and became very toxic not knowing I was having an allergic reaction. It got to the point where I couldn't eat and then we knew that something was wrong. Suddenly, my llmd realized it was the doxy. I thought I was just herxing all the time.
Then I got three scorpian bites (from 1 scorpian) on my bad leg. It crawled into my bed - isn't that creepy? As soon as it struck It went through my CNS and I started drooling and couldn't speak properly. Because it stung my bad leg it became comepletely paralyzed again. The pain was off the charts. I regressed because of all the neurotoxins it released...one of its toxins is like a heavy metal. I was out of it for about five days. My llmd called my house when I missed one of his appointments and my husband told him what happened and he told him to get me to his office immedicately because he needed to do a chelation to get the toxins out.
As soon as I arrived at his office he sat me down, tipped my head back and gave me a homeopathic remedy for scorpian bites and started the i.v. chelation. The homeopathic worked within ten minutes. Whereas the narcotics I was taking was barely taking the edge off the pain. What an angel he is. The chelation took hours and he sat with me until 7pm and then let me take the i.v. home with me. While he sat and talked I blurted out that most days I just feel like I am dying. He put is hands on my head and said a prayer for me and then took a step back. When I looked up with tears in my eyes I was shocked that he had tears in his eyes. I had never known a doctor to cry for me. I was stunned to think that he cared so much. I had never met an MD to be so compassionate to a lyme patient. Most drs run from taking my case.
I was lying in the chair and getting ready to leave and he put my very ugly birkenstocks on because I had such great difficulty even doing that. I told him a story about someone who came up to me at my son's school and told me that those were the ugliest shoes I could possibly wear and could my legs get any whiter? I never responded to her because I couldn't waste the effort, but I told the dr. that story that night. Later on that evening , he called to see if I was feeling better and told me that there were no coicidences. He told me that he thought I told him my ugly shoe story for a reason and then he came up with the thought that I must be vit. D deficient (remember those attractive white/bluish legs). I admited that I never go out in the sun because the heat bothers me. He did a specific test and Voila! I am very D deficient. There are so many good implications from this finding. I have been losing bone very aggressively (already lost 4 1/3 inches in height). It is truly amazing that he picked up on this piece of info I offerred to him. At the time, I couldn't believe that I just blurted out the story as though this MD was really interested in this aspect of my life.
Since then he also did much more bloodwork and became very aggressive with my treatment. Thank God someone is taking my care seriously. The news was not good when I went into his office for followup results. I have no hormones and even the ones I am supplementing with are not being utilized by my body. We also discovered a blood disorder. My blood is clotting too quickly and putting down a layer of fibrin in my blook system - not good b/c at risk for blood clot and heart attacks.
Then when we did the liver function test, they discovered that I don't have the proper enzymes to breakdown the elements (caffeine, aspirin, acetomitiphin) through my body and the reports showed too many free radicals floating around in my body. The way the dr. explained it is that I have a major forest fire burning right now and we need to find the correct methods to put it out. I couldn't help myself, I couldn't stop crying during that office visit with him. I knew I was feeling awful and it just confirmed how poorly my body is struggling.
For the first time ever I got scared. Perhaps it is a good motivator for me because I will become much more vigilent in EVERYTHING I do right now to get well. I had a near death experience last May and that is why I became frightful...I know how vulnerable my whole system is. But, I also truly believe in God's big plan for me, so I never lose hope.
The last few days have been awful. Herxing and feeling like there is no end in sight. I am in the daily aches/pain, fluish, anxiety, depressed phase of my new abx. treatment of i.v. rocephin. I dragged my feet, but finally put the port in.
Yesterday when I went to get an i.v. Vit. C and glutahione push we ran into a few more problems. Something the dr. hadn't even seen before.... when the nurse took blood from the port, there were white chunks in the blood. His best guess is that these are fat deposits that came through the needle and then congealed together quickly. They were bright white and became a very noticeable big chunk of something in the dark red vial of blood. Then they told me that they had to draw blood again because it had already clotted soon after they took it out. They had to take more blood but couldn't take it out of my port because my port is now having problems and was barely accepting what was going in. I could not stop crying yesterday. Yet I am grateful for the strength to get through the day.
The support here has comforted me as well. I read some of the posts from others who feel close to giving up. I didn't have the strength to reach out to them, but if you are reading I send prayers your way.
My question is: has anyone else develped a hyper coagulated blood disorder. Not just clotting to quickly, but it is laying down string like fibers of blood instead of the criss-cross pattern? If so, what treatment and any progress?
Next question: anyone ever had fat show up in your blood? Any more info?
It's good to be back. Thanks for anyone who listened.
BTW, thanks to all advocates who are out there busting your derriers!. Good work on the OMPC stuff.
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best regards and blessings,
paisley