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» LymeNet Flash » Questions and Discussion » Medical Questions » Can anything else possibly go wrong? I need support badly

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Author Topic: Can anything else possibly go wrong? I need support badly
Korinne21
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Hiya everyone

Well first it was my gallbladder, then i had to go off meds for a week cuz of the GB..then i went back onto meds, then the gallbladder acted up again, then i forgot to take my birth control pill, now my symptoms are back...and NOW on top of it all I have an infection on the insertion sight of my piccline...

WHAT ELSE CAN GO WRONG?!?! i am so fed up and im only 18 days into treatment...why cant it just go smoothly for me?! Now im going onto cipro for the infection...UGH 500mgs this is a real pain in the butt..i dont know what to do anymore...

Im about to pull this picc-line out myself because im sick and tired of fighting and getting NOWHERE... can someone please help me. im going compleatly insane over here with anger and i just cant get out of my own way.

I had enough fighting for a year with being sick and trying so hard to find out what was wrong..and now...now that i find out...i have to fight to get better. I just dont see that light at the end of the tunnel right now...

Why does god have to test me like this.. im so fed up..

Has anyone else gotten an infection on their piccline...and did ABX help or did you have it taken out?

Will this cipro make me herx at all? if so..will it help with lyme since i cannot take my rocefin right now?

Someone plz help me, im at the end of my rope..i cant take any more of this misery..i just cant...

Korinne


Posts: 102 | From henryville. PA, USA | Registered: Jun 2005  |  IP: Logged | Report this post to a Moderator
Lymetoo
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Man, when it rains it pours, huh? We need to talk, girlfriend!

Cipro may make you herx. It's used for bartonella.

I don't know about the PICC line. I know others have had theirs pulled with infections. Hopefully, someone will be along soon with knowledge on that.

------------------
Do not take anything I say as medical advice. I am not a doctor, but I DID stay at a Holiday Inn Express!
oops!
Lymetutu


Posts: 95811 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
janet thomas
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We're here and we hear you!

I can't help with the PICC line question cause I never had one. Maybe somebody else can answer that.

Here's some good news-Cipro is good to treat Bartonella and Bartonella may very well be the most common co-infection.

Did you stop the rocephin?

Lyme really messes with your head and makes everything seem so bad. Sometimes it's hard to have a good thought, at least for me. Try to tell yourself that when it gets too much.



Posts: 2001 | From NJ | Registered: Mar 2005  |  IP: Logged | Report this post to a Moderator
trueblue
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Hey Kori ~ Hang in there kiddo!
I haven't had an infection with a picc line so I don't know. I've also never taken Cipro. Fat lot of help I am.

I have lost my fair share of picc lines for other reasons though. The very first one was put in by a nurse that was being trained and it came out in 2 weeks.

Every dressing change he accidentally pulled it out a little further until it started to back wash out of the site. The nursing company had me pull what was left of the line out, about 3 inches, lol. They got rid of the bad nurse and sent me a very good one to make up for it. Oh, yeah and to put another line in.

I've found that I herx off any ABX I'm given and it's different for every drug. (That's one of the ways they realized I had lyme.) For many years, if anyone gave me ABX for anything I'd be sick in 3 or 4 days. The docs just kept changing the meds and I assumed I was allergic to all of them.

When I got diagnosed for the lyme it was the first time anyone ever told me what that was. I can't tell you how many ducks let me believe I was allergic to everything; don't know if I can count that high.



Posts: 3783 | From somewhere other than here | Registered: May 2005  |  IP: Logged | Report this post to a Moderator
lymie tony z
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HEY TRY AND RELAX...WE'RE WITH YOU....AND THERE IS LIGHT AT THE END OF THE TUNNEL...YOU'RE JUST AT THE BEGINING OF THE TUNNEL....
A LOT OF US HAD HAD INFECTIONS AT THE PIC LINE SITE...SOME HAVE IT PULLED....
NOT TO WORRY THE CIPRO MAY HELP WITH SOME OF THE NEUROLYME STUFF YOU'RE EXPERIENCEING...
I HAD A BAD RASH AROUND THE SITE WITH MY LAST PICC.....THE NURSE USED A SKIN-PREP MADE BY SMITH+NEPHEW...WHICH CLEARED IT UP...

HANG IN THERE.......ZMAN
GOD WILL ONLY LET THE DEVIL TEST US SO FAR.....IF YOU THINK IT'S JUST A CLICHE YOU'RE WRONG......
WHEN I WAS SICK BEFORE I KNEW I HAD LYME I GOT ANGRY AND PLEADED WITH GOD TO FIGURE IT OUT OR I WAS GOING TO EAT A BULLIT...
TWO DAYS LATER I GOT MY ANSWER THRU THE DISCOVERY CHANNEL ON OF ALL PLACES TV....

COURSE I THOUGHT MY PROBLEMS WERE OVER.....
UNFORTUNATELY THAT WAS IN 98....AND I STILL HAVE PROBLEMS......BUT I AM BETTER....I'M JUST 55 YEARS OLD NOW AND WELL WHO'S GONNA HIRE A LYMIE THAT OLD.......

HAD TO DEAL WITH THAT ASPECT TOO...YA KNOW BEING A MALE NOT ABLE TO PROVIDE...ETC....
AND I BELIEVE THE INTERFERENCE BY THE BUG IN MY BRAIN ROBBED ME OF MY SELF CONFIDENCE FOR AWHILE....CRYING JAGS...DEPRESSION THEN ANXIETY THEN RAGE....THE WHOLE ANCHELOTTA....

BUT I AM BETTER NOW.....AND YOU WILL GET THERE TOO.....I PROMISE.....AND I'LL PRAY FOR YA TONIGHT..............ZMAN
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[This message has been edited by lymie tony z (edited 15 July 2005).]


Posts: 2527 | From safety harbor florida(origin Cleve., Ohio | Registered: Jan 2004  |  IP: Logged | Report this post to a Moderator
lymeloco
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I didn't have a picc line, but I did have a midline.

I had gotten two infections, and both times they had to be pulled, and inserted in the other arm.

Once it was pulled the swelling and redness went away.

What did your doc tell you?
Because yours is a picc...don't know if it's the same procedure. Hang in there...it does get better!


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pippy
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Korrine,
Boy do I relate!!
Hang in there sweetie!!!
You are not alone!!
There's lots of us folks who can empathize and cheer for you when you wanna give up!

Sometimes it just sucks and you have to cry!
Your brain is like frying from these buga and inflammation!
You will get better but it takes time...in the meantime its like waiting for a galcier to melt (without the help of global warming! )

feel free to drop me an e-mail anytime...
venting is good, crying is good....
wishing you healing and peace soon...
Here is a big hugg for you!!! ;D
love
-pip


Posts: 446 | From California | Registered: Jul 2004  |  IP: Logged | Report this post to a Moderator
perplexed
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Hi Korrine,

Just me..granny..letting you know I am rooting for you and praying for you also.

Talk with you tomorrow.

hugs...Jean


Posts: 324 | From Lexington, KY, USA | Registered: Dec 2001  |  IP: Logged | Report this post to a Moderator
Tincup
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You said..

"then i forgot to take my birth control pill"

And you want to know what else could go wrong?

Hmmmmmm.. let me think about that one a bit.

OK...

Gained any weight lately?

Now.. I DO want to mention...

Birth control pills are not effective.. or AS effective while on antibiotics... so they say.

Truth is.. I never felt "up to it" while sick as a mutt.. and while herxing with a picc line in... so I don't really know. But in case they are right.. just be warned.

Don't pull the picc line yourself. NOT a good idea.

I have felt the same as you are now. As a matter of fact.. I have been completely horrible with a line in.. so much so that I would have rather died than have it there.

It was the meds talking.

Feel better soon little goon.


Posts: 20353 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
Cher44
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Korinne21
It took me 5 years of fighting to get diagnosed. Thursday I was ready to call it quits because I was in so much pain....tears all day long. Too much to deal with at times.
Friday was a better day....just have to look for the light in that tunnel. It will get brighter soon....at least that's what I keep telling myself. I've been on abx since April and it seems like more bad days than good....but on the flip side that's suppose to be a good sign...go figure.
Hang in there and fight!
Cher

Posts: 46 | From Maine | Registered: May 2005  |  IP: Logged | Report this post to a Moderator
arg82
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Hi Kori,

I'm so sorry you're going through so much right now. I had a PICC line in 2002 and thankfully didn't have any problems with it, but I know how frustrating it can be to feel like you're getting nowhere. I'm now almost to my 8 year mark of fighting this disease (well, 8 years that I know of, I've been infected longer than that) and I'm still really sick. But it does get better! It might not be better forever but there are at least breaks in the clouds and the rain, enough to let you see the sun and remember what it's like to be happy and somewhat healthy!

I can't do much over the internet to help you, but I'm thinking of you and sending positive energy your way! (((HUG)))

Peace and healing,
Annie

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Posts: 2184 | From Rochester, MA | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
   

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