So glad you are doing better and are past those awful times.
Ann - OH

You wrote:
For those of you who saw my last post( re: possible relapse)16 years of Lyme etc. Just wanted to let everyone know that I am doing much better!

I see two LLMD's one of the LLMDs noted in his file to his PA that due to enlarged lymph nodes, low grade fever, they should consider Bart treatment.

I have positive IGM, neg IGG, neg Bart, neg Babs, but in the past 6 years ago tested positive for Babs and was treated with Mepron, Sulphur, and Larium. Never had a severe Babs attack after that, and maintained myself on Doxy for many years.

To make long story short, I research Bart on line since I had no symptoms like I did last time, excpet for the past year insomnia, choking feeling every now and then and tingling in the arms, and charlie horses (which I have gotten since I was a kid).

I saw that Bart can present with severe CNS symptoms, eye etc. (everything I had) plus extreme pain in the ribs like I could touch ithe spot and feel a nodule.

I have 2 cats, and surprised that LLMD did not ask me this question.

I asked for the Bart treatment from my second LLMD, (who by the way thinks that I dont have it) and I started Avelox along with the doxy I was already taking.

In one week, I saw a huge improvement. By day 6 though, I had what I think is a herx, because my legs started to feel like logs, and then the next day I had extreme muscle pain.

The pain in my ribs has disapeared although I still have it radiating around toward my back, and my spinal disc pain is much better.

My eyes are feeling a lot better- the burning and stabbing pain still slight, but much better- no blurring in left eye.

I am a bit nervous though because the side effects of Avelox are muscle and joint pain, and not sure what the heck is what? Just know that i feel better.

I took Cipro for a long time in the past by itself one of my LLMD who I dont work with anymore but gave me a list of meds I took and when for my records when I relapsed or got re-infected.

Find it hard to belive that i could have gotten re-infected when we tick check, shower, and burn clothes in the dryer, so I am wondering if I always had it, and thats why I never really resolved the Lyme, or caught it from one of my cats who has in the past jumped up on the couch and kneaded y legs to curl up while I as sleeping.

I also have this nodule looking thing on my leg that resembles the one on the web I have seen.

My next question is how long to treat it? I saw other posts, and wouldnt the LLMD treat until you saw complete resolution opf symptoms especially if its in the nervous system?

Has anyone tried Avelox? vs. Levaquin or now I hear Rifampin, but not sure if I am ready for that type of herx. I dont really herx right now, and went through herx hell in June when my first LLMD PA put me on Mepron, Sulpur, Ketek, and Plaquenol and wound up in the emergency room 3X's thinking I had sepsis.

Any help would be appreciated, but just wanted to let all who responded in kind to my last post when I felt suicidal that i am doing much better and see some form of hope now.

(Also, I am doing quite a few supplements with my abx- lots of B's, coQ10, some other disgusting stuf phosphyline? (which by the way should be used on fear factor) high C's, and adrenal essence (all provided by my LLMD)

Havent started his other stuff yet because it contains sea salts, so may buy DR. B's Life Pacs)

quote:

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Originally posted by Ann-OH:
Whoo, Donna! Some of us have problems reading a big block of print, so I am splitting your post up.

So glad you are doing better and are past those awful times.
Ann - OH

You wrote:
For those of you who saw my last post( re: possible relapse)16 years of Lyme etc. Just wanted to let everyone know that I am doing much better!

I see two LLMD's one of the LLMDs noted in his file to his PA that due to enlarged lymph nodes, low grade fever, they should consider Bart treatment.

I have positive IGM, neg IGG, neg Bart, neg Babs, but in the past 6 years ago tested positive for Babs and was treated with Mepron, Sulphur, and Larium. Never had a severe Babs attack after that, and maintained myself on Doxy for many years.

To make long story short, I research Bart on line since I had no symptoms like I did last time, excpet for the past year insomnia, choking feeling every now and then and tingling in the arms, and charlie horses (which I have gotten since I was a kid).

I saw that Bart can present with severe CNS symptoms, eye etc. (everything I had) plus extreme pain in the ribs like I could touch ithe spot and feel a nodule.

I have 2 cats, and surprised that LLMD did not ask me this question.

I asked for the Bart treatment from my second LLMD, (who by the way thinks that I dont have it) and I started Avelox along with the doxy I was already taking.

In one week, I saw a huge improvement. By day 6 though, I had what I think is a herx, because my legs started to feel like logs, and then the next day I had extreme muscle pain.

The pain in my ribs has disapeared although I still have it radiating around toward my back, and my spinal disc pain is much better.

My eyes are feeling a lot better- the burning and stabbing pain still slight, but much better- no blurring in left eye.

I am a bit nervous though because the side effects of Avelox are muscle and joint pain, and not sure what the heck is what? Just know that i feel better.

I took Cipro for a long time in the past by itself one of my LLMD who I dont work with anymore but gave me a list of meds I took and when for my records when I relapsed or got re-infected.

Find it hard to belive that i could have gotten re-infected when we tick check, shower, and burn clothes in the dryer, so I am wondering if I always had it, and thats why I never really resolved the Lyme, or caught it from one of my cats who has in the past jumped up on the couch and kneaded y legs to curl up while I as sleeping.

I also have this nodule looking thing on my leg that resembles the one on the web I have seen.

My next question is how long to treat it? I saw other posts, and wouldnt the LLMD treat until you saw complete resolution opf symptoms especially if its in the nervous system?

Has anyone tried Avelox? vs. Levaquin or now I hear Rifampin, but not sure if I am ready for that type of herx. I dont really herx right now, and went through herx hell in June when my first LLMD PA put me on Mepron, Sulpur, Ketek, and Plaquenol and wound up in the emergency room 3X's thinking I had sepsis.

Any help would be appreciated, but just wanted to let all who responded in kind to my last post when I felt suicidal that i am doing much better and see some form of hope now.

(Also, I am doing quite a few supplements with my abx- lots of B's, coQ10, some other disgusting stuf phosphyline? (which by the way should be used on fear factor) high C's, and adrenal essence (all provided by my LLMD)

Havent started his other stuff yet because it contains sea salts, so may buy DR. B's Life Pacs)

Regards
Donna

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I haven't done Avelox, but have done Cipro now for two months. My nodes have decreased in size, eyes improving, some improvement with neuro symptoms also.

I believe Bart could be at times a bigger culprit than Lyme itself. I had the same type of herx as you. It hit day 6 also.

I felt stuporous, heavy legs, muscle pain, increased dizziness etc.. I had to cut back for two days and then resume at half the dose for a day.

The herx lessened, but still hasn't let up completely.

I don't know where you live, but the northeast has high incidence of bart. I'm glad you're improving with this and THANK YOU for sharing what's working for you.

It is just that I have trouble reading solid blocks of print and so split it up for myself and others who have the same problem.

Here is some info on Phospholine from RXlist.com which is a great resource:

CLINICAL PHARMACOLOGY

Clinical Pharmacology: Phospholine Iodide is a long-acting cholinesterase inhibitor for topical use which enhances the effect of endogenously liberated acetylcholine in iris, ciliary muscle, and other parasympathetically innervated structures of the eye. It thereby causes miosis, increase in facility of outflow of aqueous humor, fall in intraocular pressure, and potentiation of accommodation.

Phospholine Iodide (echothiophate iodide) will depress both plasma and erythrocyte cholinesterase levels in most patients after a few weeks of eyedrop therapy.

I had some bad tendonitis problems with Avelox as did another friend, so you should be aware of that. Other people did fine on it. You could look it up on RXlist.

I do hope you get everything sorted out and get some more replies here.

I've been on rifampin/ketek for a month, and also get the painful ribs and throat, and fluctuating fever. If I forget the rifampin for a few hours, all the old symptoms come back.