posted
Has anybody found this combo to be effective for neuro lyme. If so, what was the herx like and what was the dosage. Thanks much.
Posts: 7 | From Peekskill, NY | Registered: Jul 2005
| IP: Logged |
posted
I don't have experience, but this is what Dr. D (Cape Cod) does with most of his patients, so it must be working pretty well for somebody. My mother just started this with him, but it's too soon to tell anything.
Posts: 977 | From Austin, TX, USA | Registered: May 2004
| IP: Logged |
liz28
Unregistered
posted
I found these drugs to be almost useless. A lot of people like them, though--especially plaquenil for alkalizing the body.
It would not be amiss, however, to say they are weaker drugs compared to other treatments available to you. My impression has always been that they were the best drugs a couple of years ago, because they do reduce symptoms and provide some relief, so at least they gave people hope.
While I can't speak to the various alternative treatments on the market, the trend with antibiotics has been to combine a macrolide with a cephalosporin, and add in a cyst buster (rifampin, flagyl, or tinidazole). People also treat co-infections without waiting to get test results, and watch to see if they improve.
The overwhelming consensus on this board is that you cannot recover from Lyme if you have co-infections. While plaquenil can help a little with babesia, you should not, under any circumstances, rely on it.
[This message has been edited by liz28 (edited 17 August 2005).]
Mathias
Frequent Contributor (1K+ posts)
Member # 5298
posted
That combo did nothing for me. I actually think the Plaquenil supressed my immune system and allowed an untreated co-infection to get worse.
Posts: 1242 | From New Jersey | Registered: Feb 2004
| IP: Logged |
posted
I am on this combo now and it is helping with my neuro symptoms.
The first few days were rough but after my body adjusted I have virtually no side effects. My energy level and brain fog are vastly improved. I have minimal herxing.
My neuro symptoms are going away. I have whole days now without any tingling or numbness in my back, arms, legs. The feeling is returning to my face slowly but steadily. I don't feel pinpricks or bugs crawling on me anyore. My feet haven't gone numb since June.
For me these drugs have been much easier than doxy or tetra and improvement steady. They have also given my stomach a needed break.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/