posted
Everytime austin gets his iv he gets a tickle in his throat. Is this normal? Does this happen to anyone else.
I give him water and it seems to help he says it feels like a cough that is stuck??
Posts: 78 | From Port Jervis, NY USA | Registered: Aug 2005
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posted
Well after finishing the claforan this morning austin started coughing alot. He started throwing up pretty bad.
I put in a call to Dr J awaiting his return call. I wish I knew what was going on with austin. Dr J stopped meds the other day cause of fever and when WBC came back fine he said resume meds.
So I started them up last night and thats when he started complaining of the tickle in his throat after the IV was started. This morning he had pains in legs that subsided.
Then I gave him the IV and thats when all this started this morning. I am so scared for him. Does anyone think i could be the picc line??
Posts: 78 | From Port Jervis, NY USA | Registered: Aug 2005
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posted
Thank you for all the replies well after I posted that I looked at austin in the light he was covered head to toe with a rash.
Dr J called he expressed no more claforan and to take him to the ER just to be sure. Well we were going to go to the intial hospital that diag him with lyme. We did not make it that far. Austin started getting a really bad headache and was crying and screaming in pain.
So we ended up here in our local hosp. Which I was pleased with the doc. He was the only doc that would actually listen to me about the lyme and agreed to talk to Dr J.
Well ER doc said that he has developed a sensitivity/ allergic reaction to the claforan. He did have a temp they gave him motrin and they also gave prednisone for the rash.
He spoke with Dr J and he said Dr J said to get in touch with him about a different IV med.
Posts: 78 | From Port Jervis, NY USA | Registered: Aug 2005
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posted
Well the strange thing is that austins rash on face cleared up last night but not on the body. Then this morning its back on his face and it looks worse. And the rest of his body has more of a rash too.
They gave him prednisone to take but its once a day for 5 days. I am going to call Dr to find out if I can give hime the prednisone now or do I have to wait til later.
Posts: 78 | From Port Jervis, NY USA | Registered: Aug 2005
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posted
Well Dr J called last night wanting to know how austin was doing. I told him that he was doing better the rash finally cleared though he still has some intense itching. We are giving him benedryl for that. So Dr J said to call tomorrow to get the plan for new meds.
Well I called today and the nurse called me back later but I was not home. She left a message stating that Dr J wants austin to just start the zithro back up and for me to call every other day to let them know how he is doing with that.
They called the pharmacy and told them not to send any more claforan. She said if all goes well then they will just stick to orals. That made austin happy so they can take that picc line out. I am going to have austins home nurse call tomorrow while she is here to find out if she can remove the picc line.
I also learned today that one of the kids on my sons football team has also contracted lyme. Including my son that makes three children I know that have lyme now. Ya know what there is probably more just don't know it yet.
Well I will keep you informed of his progress on just the zithro
Posts: 78 | From Port Jervis, NY USA | Registered: Aug 2005
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kgg
Frequent Contributor (1K+ posts)
Member # 5867
posted
I am so glad that Dr.J is so attentive in a situation like this. It is so scary!
I was on Claforan for a month. I loved it. Then at the 4 week mark I started to have incredible ischemic pain in my arms and legs. So I had to switch too. I am so sorry that your son had to go through that!
Two thoughts: Ask if you need to continue to flush the PICC line even though you are not regularly infusing. I would hate for a clot to form. Or has it been pulled already?
Second thought he may now be considered allergic not only to Cephalosporins but also Penicillin as they will cross react. Please check with doc on this.
I hope your son is feeling better soon.
Karen
Posts: 1692 | From Maine | Registered: Jun 2004
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WildCondor
Unregistered
posted
How fast are you running the IV? It could be running to fast and thats whats causing the vomiting. I had that problem with mine, slowed it down and did much better. The caughing I am not sure about though..call your doctor to be sure.
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posted
They never said anything about flushing the picc line I just automatically do it. When his home nurse came yesturday she asked if I have been flushing it everyday. So its a good thing that I did it.
His home nurse asked if they wanted her to pull his picc line but they said not yet. Well I started him back up on just the zithromax yesturday. Today he goes for his second gall bladder ultrasound. To see if the sludge has gone away now that the rocephin was stopped over a month ago.
As far as the meds running too fast. His IV comes set in an infusable ball and was running for 45 mins. So there was no way for me to slow down the rate it was going at.
Posts: 78 | From Port Jervis, NY USA | Registered: Aug 2005
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Foggy
Frequent Contributor (1K+ posts)
Member # 1584
posted
I was on it for a few months and became Neutropenic. Had to stop. LLMD felt it's better to take days off then risk WBC drop.
Posts: 2451 | From Lyme Central | Registered: Aug 2001
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posted
Well Austin is just taking the zithro 1 x day for now. Dr J wants me to call every other day on his condition. They want to make sure before removing the picc line that he will do ok on orals.
Posts: 78 | From Port Jervis, NY USA | Registered: Aug 2005
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posted
Hi, My daughter just went on Claforan. I'm curious to know what dose Austin was on? Thanks
Posts: 164 | From USA | Registered: Jul 2005
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posted
I had the same kind of problem with claforan, but not anything else including other drugs in that class. Don't really understand it. Seems to work well for some people, but not for others.
Sounds like you have the situation under control. IV zith was good to me.
Posts: 8430 | From Not available | Registered: Oct 2000
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