posted
Was feeling pretty good, but I had to start taking coumadin again to thin my blood. Within less than 24 hours I began experiencing horrible neuro herxing and it hasn't let up yet.
No wonder Dr. C prescribes heparin. It makes the antibiotic work much better by thinning the blood. I sure don't like feeling this way, but know the rocephin has now gone on a killing spree!
-------------------- Posts: 703 | From Almost Heaven | Registered: Aug 2004
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Hubby had a dose of TPA to disolve suspected clot in his chest port.
The next day he was totally completely manic and crazy as a June bug. Sent him to accupunture and she said it was related to the thinning of his blood.
Luckily for me, she was able to knock him down a couple of notches and he was calmer after the visit.
I guess it was some sort of herx, but just watching him in that sped up state was exhuasting for ME!
The home infusion company nurse told me the other night that he was "tired of the black cloud hanging over our house!" I appreciated that.
I hope things simmer down for you soon.
Wizard Posts: 252 | From USA | Registered: Sep 2003
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I'd have to say awesome, punctuated with arrgghh! No pain, no gain with this disease! But I am feeling much better just over the past hour or so.
Wizard,
Doesn't it seem insane that thinning the blood enables the antibiotics to work so much better? I sure can relate to your husband's plight. Sure hope he's doing better! I'm telling you . . . I was feeling loonier than a pet coon yesterday.
-------------------- Posts: 703 | From Almost Heaven | Registered: Aug 2004
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posted
BB, maybe you know this...but the reason it works is that many of us have fibrinogen clogging our veins. The abx can't get through if they are clogged.
Heparin works to unclog the veins, so the abx can get through more easily. I don't think coumadin works on fibrinogen, but it must at least help the abx get through more easily.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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hiker53
Frequent Contributor (5K+ posts)
Member # 6046
posted
For those of us not on a blood thinner, the salt protocol supposedly helps thin the blood, too. I don't know the theory behind it.
What I have noticed is that I take 1/2 dose of nattokinase a day. When I added the salt protocol I started bruising much easier, so my blood must be thinning. It didn't happen when I only took the nattokinase. Our bodies certainly do weird things.
Biting Back, Hang in there. You are on the road to recovery and that road will end one day with good health. Hiker.
-------------------- Hiker53
"God is light. In Him there is no darkness." 1John 1:5 Posts: 8887 | From Illinois | Registered: Aug 2004
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posted
Hey Lymetoo, that was an interesting link you provided! Thank you. Funny that they have the words Blood Curdling Mysteries at the top of their page. And Coagulopathies . . . I learned a new term and I feel very important when I say it!
hiker, I did notice my hands and feet started feeling a little colder when I stopped the salt/c protocol. I don't completely understand the dynamics either, but can attest to the possibility of it having blood thinning properties.
Thanks so much for the encouragement. I really appreciate it and I am on the road to recovery! You hang in there too, okay?
-------------------- Posts: 703 | From Almost Heaven | Registered: Aug 2004
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posted
One abstract in a collation of abstracts by Joachim Gruber(?), strongly suggested a direct binding of Bb to heparin(sulfate?), or one of the other heparins. an in vitro study. it did not suggest nor imply that the heparin was borreliacidal.
posted
Thanks for the link pq, I really appreciate it!
lymelady, Haven't used rife or lumberkinese, so I can't help you much. However, I did bruise easily and hemorrhaged twice. Ended up having a transfusion both times. My blood has always seemed to be very thick and clotted quickly. I gashed my leg from a lyme-related fall four years ago, and although the wound was very deep and required stitches, it did not bleed.
Hopefully someone will see your post and have some opinions or advice for you. Take care.
-------------------- Posts: 703 | From Almost Heaven | Registered: Aug 2004
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best i recall, one negative effect of lumbrokinase may be pneumonitis.
So, if one has lung problems of any kind, they should check with their doc about this.
If one smokes,and has no history of lung problem(s)like asthma, for example, the lungs are inflammed with every drag, and this includes smoking anything else.
if you bruise and bleed easily, see your doc.
Posts: 2708 | Registered: Feb 2005
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quote:I found out yesterday I have a genetic mutation that is called Factor V Leiden and APC resistance which is contributing to my problems.
You may want to consider having a genetic panel done for clotting / bleeding disorders, especially if there is a family history of clotting, stroke, miscarriage, preeclampsia, or bruising easily, etc.
Hmmmmm. Big time family history of bruising, clotting and I've had 6 miscarriages. My sister had preeclampsia and ended up having a double bypass on her heart at age 38. Wow. I really need to have this test done.
Do you know if this is a test insurance provides for? I'm positive my PCP would test me, but you know how dried up the money tree gets while treating lyme disease.
Very, very appreciate of this information, thanks so much!
-------------------- Posts: 703 | From Almost Heaven | Registered: Aug 2004
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