cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
This is the only place I know of where people actually understand. I went to see my parents dr tonite...he was also my dr on and off during the last few years...he is in his 70's...anyway, i start to tell him my symptoms...he writes them down...then I give him the blood work.....yea, typical response...he gets to the Lyme page and says "i dont know why they did lymes you have No symptoms" well it was then I knew he would be of no hope...and i didnt even mention all of my symptoms...ugh. He says i dont think we are dealing with somethng organic here...i think it is more depression!!!!!! e asked if i felt sad...or didnt like being around people... He gave me a prescription for something...why is it dr. jump on the depression/anxiety bandwagon...but refuse to believe it maybe lymes..Its like that neg result is there to haunt me. I mentioned my symptoms seem to worsed during my menstrual cycle..and he wants me to go see my obgyn..cause it could be hormone related(i saw the endo and he said it wasnt hormone linked) Not to mention my other dr hasnt submitted my short term disability paperwork, my manager needs to know when i am coming back....I guess im going to have to go back sick...and work with sunglasses..not sure how im going to deal with getting sick when driving.
Thanks for listening and letting me vent....im going to call a few lyme Dr. tomorrow....i just feel like im loosing it!
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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I've been there! I know what it feels like after you get home from one of those frustrating appointments and it feels like you're never going to find a health care provider that understands what is going on.
I think it's a great idea to contact some LLMD's and get an appointment with one.
I remember seeing my doc at Kaiser and she kept suggesting that I get a psych evaluation and I kept telling her, "I'm NOT depressed, I'm sick!" And I know what depression is like because I had it for 15 years.
I also remember noticing that my symptoms got worse around my period also. Lyme messes with all your hormones, but of course doctors always want to get all specific with the symptoms.
I'm just sending you a big hug and hope you stay strong and believe in yourself. And remember this silly joke that my mom told me:
What's the difference between God and a doctor?
God doesn't think he's a doctor.
Ha ha.
Anyway, good luck and hang in there,
Alison
--------------------
The obscure we see eventually. The completely obvious, it seems, takes longer. --- Edward R. Murrow Posts: 923 | From California | Registered: Aug 2005
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
Thanks so much for your post. Im sitting here crying, because you understand. I guess that would be sadness the dr was talking about LOL... So your symtoms became worse around your period as well?? So, it isnt all in my mind. Im going to start tracking them...
Im glad my mom was with me tonite..because she was like i just think they are going down the wrong path with this...i dont think it is anxiety..i dont think it is depression... The doctors add that doubt to your mind though...and that is what i hate.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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lyme_suz
Unregistered
posted
Hi,
I am sorry that you are having such a hard time with your health.
I have had lyme for 5yrs and been treated for 7mos. I have been on 2 antibiotics at a time and it has really helped. I has so little energy that I had days where I "took a nap" at 3pm and just didn't get up til the next morning. I was miserable, and it is hard to describe without swearing. It was all I could do to feed myself and kids and get to dr and video store. Good thing my kids are big and can scaveng something if need be. I was so glad when the day was over!
I can relate to the light sensitivity. I am wearing sunglasses- mirror John Lennon type quite a bit. I keep thinking that I should invest in a good pair since I wear them in the house and out. But I don't have the energy. Go ahead and be fabulous at work. Let them wonder.
Actually, I am feeling miraculously well. The improvement was very slow, but steady. Then all of a sudden I had a reasonable amount of energy.
I have a ways to go, but I am so grateful to be able to do daily needs without being completely overwhelmed. And I am even able to socialize some.
Anyway, I think that it is smart for you to get into a lyme dr.
With the right treatment, you will be able to beat well.
It's just hard when you have all these so-called "experts" telling such silly things and deep down you know something is physically wrong.
I was told so many different things, but I just got to the point where I decided that instead of listening to doctors, I was going to do my own research and figure it out myself.
That's when i discovered lyme, and sure enough, that's what I have.
So you are now armed with knowledge, and there are so many wonderful people here on this site who have been through EXACTLY what you have been through. You are not alone.
There is so much great support here.
Another hug just for the heck of it,
Alison
--------------------
The obscure we see eventually. The completely obvious, it seems, takes longer. --- Edward R. Murrow Posts: 923 | From California | Registered: Aug 2005
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