posted
I have been diagnosed with lyme for almost a year now and am in my 5th month of IV therapy. My question is, does anyone also have autonomic dysfunction with their lyme? I have episodes of tachycardia, burning in my arms and legs, gooseflesh, and very low blood pressure. I was diagnosed with dysautonomia three years ago. My lyme doc feels that the lyme cause the dysautonomia by getting into my brain stem. I was just wondering if anyone else has this and if the dysautonomia gets better over time with treatment.
Thanks all!!!
Posts: 44 | From GA | Registered: Nov 2005
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posted
I have that too but that diagnosis, thyroid & inability to produce growth hormone came a couple years before the lyme diagnosis.
When my blood pressure goes down my pulse starts racing and visa versa. Had lots of palps but the most disconcerting was when I would lie down at night and my heart, pulse & bp would go nuts.
Went to the ER twice for that and even tho it took them hours to me back to normal they found nothing wrong and no reason for the episodes. I quit going and found if I sat up the minute it started it would stop.
I slept many a night sitting up. Uck. Then that all stopped for a year or so and as soon as it got cold I had several nights of the same thing again. I was also suffering from intense cold body. I increaded my thyroid meds. The cold body, numb fingers etc subsidded and havnt had a lay down haywire event since then either.
I will talk to my endo. when I see him next month. My growth hormone was so low that my insurance pays for the daily medication but my TSH was always in the normal range.
Thank goodness I have an endo who saw me shivvering in his office, with a winter coat on in May and treated my symptoms instead of a lab test.
Thyroid can be just like lyme. Often it has to be a clinical diagnosis.
Posts: 561 | From connecticut | Registered: May 2004
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WildCondor
Unregistered
posted
I have this too. It definetly improves over time but you have to stay on top of it. Treatment for co-infections is essential. I have been on Atenolol for the NMH (Neurally mediated hypotension) for years. I have links on my site that explain more about NMH and what to do about it. It does get better!
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arg82
Frequent Contributor (1K+ posts)
Member # 161
posted
I have Dysautonomia, too. I was only diagnosed with it officially in February of this year (been diagnosed with Lyme since 1997) but I have definitely had symptoms of it since at least 1999 (they started becoming very bothersome when I got my first job - working as a cashier at a grocery store - which required me to stand up for long periods of time). I really believe that Lyme can cause Dysautonomia or at least trigger it or make it worse. I think each of us is predisposed to different things and the Lyme goes to whatever our predisposisions are and cause those kinds of problems - like how it attacks places that have been injured before (like injured joints) more so than healthier joints.
My LLMD is knowledgable about Dysautonomia and has been treating me for it and it has gotten a little better with the treatment (I infuse a liter of saline intravenously everyday because the oral medications weren't helping) and I expect it to get better when my current Lyme treatment starts doing some good.
Dento-facial toxins, Jaw bone toxins (thioethers and mercaptans, toxic root filling materials, dental plastics, metals and glues).
There is a great article on our doctor's website of a lecture he gave earlier this year wherein he mentions that every chronic illness is preceded by ANS dysfunction, etc. etc. Some of you might want to read it. www.neuraltherapy.com/articles, Toxicity of Autonomic Ganglia and Plexi, Diagnosis and Treatment.
My autonomics were grossly "out of order". It is all fixable, but it took a long time and a lot of patience more than anything else.
Take care.
Posts: 9834 | From Washington State | Registered: Oct 2000
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