daystar1952
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Rising Up Against Lyme Disease Fraud Marjorie Tietjen [email protected]
Lyme Disease and many coexisting infections are beginning to effect everyone.....whether directly or indirectly. These infections are intentionally being allowed to spread. Government agencies and universities, Yale being one of the main culprits, are blocking the appropriate care of those diagnosed with chronic lyme. Curative treatment is also being witheld from those who have been misdiagnosed with other chronic conditions or autoimmune illnesses. The public's attention is being diverted from this already existing pandemic. In the meantime the authorities are feverishly promoting the fear of acute exotic flu like illnesses whose effect on society so far is nill and cannot even be compared to lyme disease and it's coinfections ,concerning it's impact on society and it's widespread nature.
Microbes which first disable and then later cause death ,attributed to other diseases which supposedly have no cures, are much more effective at debilitating a country than say an acute lethal disease which is quickly recognized and then quarantined and treated. As many of you know, lyme, mycoplasma, babesia, bartonella infections, etc are rarely being tested for and when patients request these tests, they are either offered very inaccurate testing or they are told their symptoms are all in their heads. Some of these microbes appear to be transmitted from human to human through several different routes. Is this why chronic disease in our country is increasing exponentially? Are these moderately contagious germs passing through the population in a stealth manner ,creating a nation which will soon be unable to defend itself? I usually go into more detail as to why I feel this may be happening but I don't really want that to be the focus of this article. This article I hope will be a call to arms. Whatever the motives may be for our denial of treament...we first need to call attention to the seriousness of this issue.
For those of you who may not be aware of the lyme controversey, I am going to list a few facts and then share with you a letter which should make all of us....sick or not sick..... want to stand up for what is right and good.
Facts: 1. Lyme Disease testing is very inaccurate. More accurate testing has been invented but is purposely not being used.
2. Appropriate Lyme Disease treatment is being blocked
3. The Centers for Disease Control (CDC) has written that their restrictive diagnostic criteria should not be used for determining whether a patient does or does not have lyme. Their testing criteria is for surveillance purposes only.
4. The CDC says that Lyme is a clinical diagnosis, based on symptoms and history. However doctors and health departments and students in medical schools are not being educated as to this advice. Lyme Disease embraces an exhaustive list of symptoms and in order for doctors to clinically diagnose (not depending on inaccurate blood test results) they have to be aware of this extensive symptom complex. The symptoms become even more varied when patients also harbor coinfections. This crucial knowledge is not being offered to our doctors.
5. Doctors who openly treat chronic lyme disease are being monitored, persecuted and several have had their medical licenses removed. This of course leaves us with fewer and fewer doctors who will treat us. Many are afraid to treat patients appropriately with long term antibiotics . They are afraid of retaliation. In the past and presently we are realizing these fears to be founded.
6. Lyme patients do not publicly announce who their lyme doctors are for fear they will lose them. This happens with no other disease we know of.
7 We are no longer being treated by local country doctors who know us, care about us and have the freedom to treat the way they see fit.
8. Our government agencies, such as the CDC, NIH, etc appear to be intricately intertwined with pharmaceutical companies, large charity organizations, certain universities and insurance companies. More money is made on pallative treatments rather than on ones which cure.
9. The idea that antibiotic treatment for chronic lyme causes antibiotic resitence may be partially true in some instances but we were always told that antibiotic resistence occurs when an antibiotic is not taken long enough to kill all the germs and that it's the remaining ones which become resistent. This would say to me that we need to take antibiotics for lyme until they are all killed off. I don't believe tho that there is any current testing which would be able to determine this. This is why we need to use clinical judgement. Prophalactic treament for a tickbite is 1 pill of doxycycline. Could this be setting up untold numbers of people for persitent infection down the road and producing more antibiotic resistent germs? Also consider the fact that biowarfare scientists have already intentionally created germs which are antibiotic resistent.
Many people feel that lyme disease is just another separate disease off by itself, unconnected to any health problems they may currently be experiencing. The point I want to nail down is that lyme and it's coinfections are not just passed on by ticks but that there may be several insect vectors involved and several modes of transmission between one person and another. Dr. Lida Mattman (nobel prize nominee) and Dr. JoAnne Whitaker (founder of the Bowen QRrib test) are having a difficult time finding blood samples free of the lyme organism, for control purposes in their studies. In other words , much of the population may be infected with this microbe and it appears that certain factions of our government and Corporate America are trying to keep this secret. I predict that if we allow this criminal silence to remain uncontested our country will become disabled in the near future.
Laboratories which are finding the lyme germ in much of the population are being harrassed and told to dilute their testing so there will be less positive tests reported. Some of the reasons for this may have to do with profits concerning vaccine patents, drug companies and insurance companies. Large Charity organizations also do not want to lose their individual diseases or their organizations would cease to exist.
We are hoping that when parents discover that their children , who have been possibly misdiagnosed with Juvenile arthritis. learning disorders, mental disorders, Fibromyalgia, stomach and muscle problems and an infinite array of neurological symptoms, may really have Lyme Disease, that they will be hopping mad and that hopefully this dire threat to our children's health and future will be enough to shock us out of our complacency. A good friend , Sue Vogan, who has just written a book called NCO : No Compassion Observed, came up with an idea to organize irate mothers into a group we could call "Get MALED"......Get Mothers Against Lyme Disease. We have Mothers Against Drunk Drivers ,which became very successful so why not organize a similar group for one of the most important causes there is......the health and future of our nation...which is our children.
The truth of this inhumane crisis must be broadcast everywhere, for it affects everyone. Share appropriate lyme information with doctors, nurses, educators and those who may be misdiagnosed. What used to sound far fetched is going to begin to make sense to many people as more and more are affected. Let's rise up together against the ignorance and criminal activity concerning lyme, before we are all disabled and there is no one left to help us.
The State of Connecticut has only one pediatrician who openly treats chronic lyme disease in children. Dr. Eugene Shapiro at Yale is currently trying to have his license removed for "Doing No Harm" or to force him to retire. We must ask ourselves what the real reasons are behind this. The name of this doctor, who is dearly loved by many, is Dr. Charles Ray Jones. He was recently given an award at a Connecticut lyme conference this past spring, by our Attorney General, for all he has done for the children. If it wasn't for him many would have died or have become totally disabled. In fact, many who came to him in a desperate state were already disabled. Dr. Jones sees the sickest of the sick and is one of the most compassionate doctors alive. He has given hundreds of children back their lives. We musn't sit back and do nothing any longer. Here is the account of what happened in Dr. Jone's own words.
"First Do No Harm
As a physician in the practice of pediatric and adolescent medicine, I have evaluated and treated over 8,000 children with Lyme and other tick-bourne diseases from every state in America, from most provinces in Canada, from countries in South America, and from every continent abroad. No other pediatrician in the world has my experience in evaluating and treating these diseases.
My office receives 5-10 inquiries per day from parents who are desperate to obtain an adequate evaluation of their children with Lyme and other tick-bourne diseases. Due to my very busy 10 hour per day, 6-7 day per week Lyme practice, there is a 5-6 month delay between office contact and an actual office visit. In order to do no harm by delaying evaluation and treatment, a history and lab test are obtained. Treatment is initiated prior to an office visit if a probable diagnosis can be made. Most of these children have already suffered from a delay in diagnosis and/or inadequate treatment of their tick-bourne disease.
This is the background that led me to evaluate and treat two children from Nevada prior to my seeing them. My diagnosis of probable gestational Lyme disease and tick acquired Lyme disease was made on the basis of the history presented by their mother and my over 30 years of treating children with tick-bourne diseases. I have been reported to the Connecticut licensing board and have been charged with making the diagnosis of Lyme disease and initiating antibiotic treatment prior to examining them in my office and therefore am in violation of the ``usual and customary standard of medical care''.
I have been offered the opportunity to have these charges dropped by retiring and surrendering my license to practice medicine in the state of Connecticut or I can appear before a panel of the Connecticut Medical Examining Board to include Martin Harwin, M.D. (a retired pediatrician) and Eugene Shapiro, M.D. (Yale-New Haven Hospital) for a formal hearing to take place in late January, 2006.
I do not intend to retire because I still have a firm calling and commitment to continue to help children with Lyme and other tick-bourne diseases. So as not to go before the board unarmed, my attorney Carl M. Porto, Sr. will need your help and support. Mr. Porto can be reached as follows:"
Charles Ray Jones, M.D. >>>>>>>>>>>>>>>>>>>>>>>>>> Please contact me ( Marjorie Tietjen) by e-mail if you want to help [email protected]Posts: 1176 | Registered: Oct 2002
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