cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
it hurts when i pee....and i have no feeling in my back or down there when i do so...it just burns. its like i have no back muscles. I dont know if this is lyme or something else...but im super scared. I go to see the duck today but not sure that he can help. I dont think i can have a BM either...what is going on with me???
Is this lyme should i call the LLMD? but at this point what can be done. Oh and sometimes i dont get the singnal that i have to pee....this just started yesterday.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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char
Frequent Contributor (1K+ posts)
Member # 8315
posted
Call a LLMD! Do you have one?
I have seen posts where people with lyme have had those symptoms.
I hate for you to be suffering like this...
You need a dr. who knows about lyme to help you sort through all this. It is too much for us to figure every aspect out, especially when you feel so sick.
Keep us posted. I bet more will come along, especially those who have had similar symptoms.
posted
I would definitely call the LLMD. Could be Lyme, but you want to run this by him.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
yes i do have one but i just called him yesterday.....i need to calm down...but sheesh this is just too much for me.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
the receptionist said i will probably have to go to the ER to get checked out.... i feel like my whole body is about to go paralyzed...legs are tingling arms are tingling.....what the hell is going on.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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quote:Originally posted by cantgiveupyet: the receptionist said i will probably have to go to the ER to get checked out.... i feel like my whole body is about to go paralyzed...legs are tingling arms are tingling.....what the hell is going on.
Nerve damage can be a symptom of lyme. The ER is great if you have a heart attack or if your in a car crash. As far as chronic diseases/infections, they were of little use to me. best of luck.
Posts: 731 | From Humble,TX | Registered: Feb 2005
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posted
Brent. have you taken a new medication or added new supplements. I've experiened almost the same feeling when taking the sleep medication Zyrem.......better get this checked out quickly..........I went through the entire night and until 10:00 a.m. the following morning before it subsided..............I knew it was the Zyrem because right after I took the first dose to sleep, these symptons began.........I truly thought I was paralayzed for life..........I know what you are feeling and hurt for you..........please see about this.........Sorry, Dalphia
Posts: 97 | From Tennessee | Registered: Nov 2005
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
waiting for the lLMD to call back. My brother calmed me down, thank god he is hear today.
Now that pulsing muscle in my left side is back...yesterday it was there when i urinated...and today because of a BM.....but i was able to go to the bathroom... now my left side and stomach are twitching i guess you would call it.
i started doxy a week ago that is it...
i hate lyme...all these scary symptoms...everything is taken turns being numb or tingly today.....shees and i thought trouble breathing was a problem.....
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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Andie333 has written a lot about her expereince, where I think she was completely paralyzed for 5 of the scariest hours of her life. And then it went away. She attributed it I think to a huge herx.
Hang in there....try not to get too scared (easy for me to say). Hopefully it is just an awful herx that will pass in a few hours.
Alison
--------------------
The obscure we see eventually. The completely obvious, it seems, takes longer. --- Edward R. Murrow Posts: 923 | From California | Registered: Aug 2005
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cantgiveupyet
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Member # 8165
posted
i think i have andiee's email i will give her a try....i stopped taking the doxy and im still feeling this bad. I cant stop crying. but im hanging in the best that i can....i keep telling myself the squiggles that are living are mad because i killed off their friends. ( i know sounds funny...but it gets me thru it.) if i could get back the sensation to pee i would feel better.
there is this odd bump on my hand now too like on my bone.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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posted
Can"t, The exact same thing happened to me. Feels like all functioning in that area is paralyzed, and the involuntary impulses for BM included..It passed for me in a few hours...and it scared me to death! Hold on...it will pass. For me it was babesia...kt
Posts: 740 | From BC Canada | Registered: Mar 2003
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
thanks krazykt....im much appreciative of your post :-) this is so scary. the lack of feeling and the pulsing bowel muscle on my left side. I fear having to go to the bathroom.
Guess what my LLMD on the 2nd visit thought i might have babs...i wonder if this will confirm it. Im still waiting for his call but he is a busy LLMd. I have the duck appointment at 245.....
I only made it a week on doxy...200mg a day...how will i ever be able to with stand more.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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Nal
Frequent Contributor (1K+ posts)
Member # 6801
posted
Please hang in there!!! I so hope your LLMD has gotten back to you by now. Hope you duck appt isn't too awful but maybe they can help-there is always hope!!!!
Nancy
-------------------- Life is 10% what happens to you, 90% how you respond to it!
-Chuck Swindoll Posts: 1594 | From Colorado | Registered: Jan 2005
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Andie333
Frequent Contributor (1K+ posts)
Member # 7370
posted
I got your message and sent you an email reply; hopefully, you've received it.
Your symptoms are a little different than mine were (I had full body paralysis twice), but as others have said, the ER doc didn't do much to help. Plus, my feelings of anxiety were just compounded by the ambulance ride and the time in the ER. The second time it happened, we just rode it out. Each time, it lasted more than 4 hours.
I also think it's really important to let your LLMD know. And your brother's right -- try to stay as calm as you can. Maybe drink a cup of relaxing tea or something (no caffeine). I'm glad he's there with you.
This paralysis stuff is nasty business, and like Alison said, I had been tracking my sx and figured mine were both herxes.
I still get occasional numbness in my fingers and face but nothing like the paralysis I had before. That was just awful.
Stay in touch via email. I'll be checking messages until about 5:30 est. I have a client then and won't be available for the next hour and a half or so.
My thoughts are definitely with you and your brother!
Andie
Posts: 2549 | From never never land | Registered: May 2005
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cantgiveupyet
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Member # 8165
posted
thanks andie,
i havent gotten them email just yet...
My duck wasnt so bad, he did believe me...and told me that the stomach twitches are kinda like your eye twitching..type of thing....made sense to me. He said the nuero symptoms are usually late stage lyme ( i just played a long with him) he wants a progress note from my LLMD.
paralasis has subsided, but i have the twitches...and bladder pain, and dryness down below... no appetite.
I have to call my LLMD back he left a msg while i was at the ducks...the message said it was a herx...but i just want to run the symptoms by him and have him say it to me directly. this is awful...and they want me to go back to work....sigh
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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Andie333
Frequent Contributor (1K+ posts)
Member # 7370
posted
I'm so glad you got to the doctor; it sounds as if you have a pretty understanding duck. That's great!
I also had some twitching and jerking, especially the second time I was coming out of the paralysis. Again, try to drink some hot tea or something. Maybe that will calm you down.
Also, in the email I told you that after both those incidents, I felt completely and totally wiped out for at least a day.
If you can, give yourself some time to rest.
Take good care!
Andie
Posts: 2549 | From never never land | Registered: May 2005
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posted
Hello, Before I found out I had Lyme I lost feeling in my bladder. It would fill up but the message was not getting sent that I had to go. I got so scared and had to force myself to pee. No docs good figure it out. I even had a cathedar and bag emptying my bladder for a few days and said hell with that. It was painful. The docs kept saying it was maybe due to the fact that I had a baby recently. Well anyway I then went on to the MS testing and nothing was showing. I had trouble with bowel movement and lost feeling in one of my butt cheeks It lasted me about a month of this no bladder feeling. That probably will not be the case with you. But I just wanted to let you know this and that It did come back and I went from not peeing enough to going way to much. Ughhhhhh!! It is very scary but just make sure you keep your bladder as empty as you can so you don't get an infection. The more I thought about it the worse it was. This all just sucks. I also get twitching in my stomache all the time. It feels like a baby is kicking and sometime I swear I am having contractions. Maybe there is an alien in my belly. Posts: 79 | From Oxford,MA,01540 | Registered: Jul 2004
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
thats it....i have an alien in my stomach!!!
thanks shelly for your post. My left butt cheek is numb right now. Im sure the frequency will start up again....as it always does.... your right the more i think about it the worse i get. Now of course my throat is numb...cant just have one thing to deal with can we??
Im glad that all your sensations came back...mine probably will too. My llmd prob thinks im a wuss!!
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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