Yes. It was the first diagnosis I had and after that, my life was never the same. It was over half my life ago so I don't remember if I had a blood test or not.
I had initial fatigue, sore throat and headaches then after a week or so, I felt fine. I was a bit surprised that I wasn't bedridden for longer but never thought much more about it.
Corgilla
-------------------- "I'll never forget good old Whatsisname." Posts: 694 | From PA | Registered: Jun 2003
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posted
Corgilla - That sounds just like me! I wasn't bedridden with mono like you hear about. Sore throat, aches, fever, fatigue etc but I got better and then all these crazy symptoms started popping up 2 years later.
No clue where I would have gotten mono! I knew no one with mono.
-------------------- Cutie Posts: 125 | From Atlanta | Registered: Dec 2005
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posted
Absolutely - Your mono titers can become elevated if you have Lyme.
That happened to me years ago when I was the sickest person I ever saw.. GP said I had elevated Mono titers and Lyme titers...suspected Lyme then called an Infectious disease Dr...then called me back and said
" No you dont have Lyme, your Mono titers just elevated your LYME titers" !!!!!!!!
So lesson from the Idiot dr is: I guess we ALL must have Lyme titers in our bodies!!
posted
Just forgot to add that i had a bad case of Mono when I was 17....and we also believe I have been infected with Lyme since childhood.....
Posts: 437 | Registered: Sep 2004
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Come to think of it, I didn't know anyone else with mono then either. I even had a boyfriend and he didn't get it. Non-transmisable mono. There's a new one.
Christine, That's interesting about the mono titres.
Hurrumph is all I have to say.
Corgilla
-------------------- "I'll never forget good old Whatsisname." Posts: 694 | From PA | Registered: Jun 2003
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posted
Look what I just found on the Mass gov't web site:
"A false positive test may occur if a patient is producing antibodies which cross react on the test, either for unknown reasons, or in response to a disease such as rheumatoid arthritis, infectious mononucleosis, systemic lupus erythematosus, spirochetal periodontal infections, relapsing fever, leptospirosis, Rocky Mountain spotted fever, or syphilis."
posted
Wait, so what does that mean? That a person may test positive for lyme if they're producing antibodies to any of the above listed? What about a false positive for mono if you have lyme?
-------------------- Cutie Posts: 125 | From Atlanta | Registered: Dec 2005
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posted
I was diagnosed with Epstein Barr Virus...I kept questioning the doctor that diagnosed me...I don't remember ever having mono which is what precedes EBV.
Turns out 95% of the population has antibodies to EBV...it is that common. So when physicians blame Chronic Fatigue symptoms and Fibromyalgia like symptoms on EBV - in many cases I feel it is bogus.
-------------------- �Pride is concerned with who is right. Humility is concerned with what is right.� - Ezre Taft Benson Posts: 655 | From NC, Exit 88 on the Deer SuperHighway | Registered: Dec 2004
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In all of the stuff I've read about TBDs in the past 4 years, I've never seen anything like the statement on the Mass website.
I think it's all bunk. I just posted it to show cutie et al where some of this misinformation comes from.
The funny thing is, a lot of the stuff on there is very good. That's how bad rumors get started. You put a little bit of junk mixed with good info and everything you say seems golden.
I hope my posting that quote doesn't make people think that their positive lyme test means they really have RA or something.
If I start seeing that, I'll remove my post. Let me know if you think I should; either with PM or on this thread.
Take care,
Corgilla
-------------------- "I'll never forget good old Whatsisname." Posts: 694 | From PA | Registered: Jun 2003
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I was just posting a reply to your Martha's Vineyard Post. Thanks for that link...it was very interesting and helpful to me in regards to the Tularemia. That is extremely interesting to me.
I am starting to think that is what I had/have. I have always herxed the hardest on doxycycline - although Mepron was viscious too and flagyl...so who knows...Tick Soup I guess.
I think people will realize what your post means on this thread. So many lyme patients I know have high EBV titers...at one point I wondered if it was a cross reaction in testing or it was just proof that the immune system was in overdrive.
Take care...
Posts: 655 | From NC, Exit 88 on the Deer SuperHighway | Registered: Dec 2004
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I was blood tested positive for mono after being sick for months with sore throat, etc. This was like the final straw that put me in bed for the past 2 years.
Of course I had Lyme, but I was interested that I tested positive fo mono as well. And I think it was the type of test that can tell the difference between an active and inactive infection, though I am not sure.
I think that it is entirely possible to have both diseases concurrently. I think that the mono may even become activated to help the body destroy the high amount of dead and dying cells produced by the lyme and co-infections.
Alison
--------------------
The obscure we see eventually. The completely obvious, it seems, takes longer. --- Edward R. Murrow Posts: 923 | From California | Registered: Aug 2005
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mbroderick
Frequent Contributor (1K+ posts)
Member # 5220
posted
I believe that there are many strains of Epstein Barr virus (mono) and that people with Lyme are very susceptible due to a compromised immune system. I test positive for Lyme AND EBV, as do quite a few others.
Posts: 2097 | From PA | Registered: Jan 2004
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BostonLyme2005
Unregistered
posted
Hi,
I had Mono before and it was nothing, Nothing, NOTHING like this.....LYME!
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henson2
Frequent Contributor (1K+ posts)
Member # 463
posted
I seem to be the odd one out here. I had the showing of "old infection" for mono, i.e. that my body had been exposed (as most of us have) but had fought it off.
As for a positive current infection mono test, it came back negative, time and time and time again. Despite all the sx that made it impossible to deny that I was truly sick w. something.
Thank God, really, as it was a CFS person who said to me: "Um, you sound to me an awful lot like you might have Lyme." I didn't even believe her at first, because the Drs couldn't have been wrong for almost 6 years, could they?
Yes, they were wrong! Lyme diagnosis was finally confirmed.
This woman is my guardian angel.
I never once showed positive EBV (mono) or CMV (another virus) test.
Just goes to show how different we all are.
Best and warmest good wishes to all.
Posts: 1066 | From East Coast | Registered: Dec 2000
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