posted
FROM DR, JONES: I am grateful to the Lyme community for the outpouring of support for me in my case before the Connecticut state medical board.
We have set up a legal defense fund so that I can present the most effective case before the board.
The details of how to contribute to my fund are set forth in the letter below.
Thank you again for all your help. Dr. Charles Ray Jones _________________________________________________________
Hi folks, A legal defense fund has now been set up for Dr. Charles Ray Jones.
As most of you are probably aware, Dr. Jones has been charged with unprofessional conduct by the Connecticut state medical board, and a hearing has been set for January 26th. The charges were initiated by an estranged spouse in a custody dispute.
Dr. Jones has chosen a new attorney, Elliot Pollock, with impressive experience in Connecticut state medical board issues. This attorney used to serve on the medical board and has successfully handled another Lyme case before the board.
Because of the urgency of this case, Mr. Pollock has graciously agreed to begin work now with the understanding that we will raise the initial retainer of $25,000 as soon as possible. Since January 26th is only a few weeks away, he will try to have the hearing date postponed to give him more time to prepare an effective defense. However, we do not know if this request will be granted.
For those who are new to Lyme disease, Dr. Charles Ray Jones is, for all intents and purposes , the ONLY Lyme literate pediatrician in the country.
He has saved thousands of children from spending the rest of their lives in suffering and disability.
For a biograpical picture of Dr. Jones, please see Pam Weintraub's article from the Lyme Times at http://lymetimes.org/archives/LT32.PDF and click on Page 5.
PLEASE SEND YOUR DONATIONS TO:
The Dr. Charles Ray Jones Defense Fund C/O George Heath, III 26 Fairlawn Drive Wallingford, CT 06492
Please make checks out to "Dr. Charles Ray Jones Legal Defense Fund" and mark "gift" in the memo field.
Legal defense funds are not tax deductible, and our tax exempt Lyme disease organizations are not permitted to contribute to these funds. So it is up to those of us who know what a horror this illness is to help Dr. Jones get the best legal representation possible by contributing to this fund.
Although many of us Lyme patients are eager to launch a grass roots demonstration in support of Dr. Jones, that will need to come a little bit later. The Lyme Disease Association and Greenwich Time for Lyme are working closely with Dr. Jones and his attorney to develop a comprehensive strategy to help Dr. Jones
Right now Dr. Jones' license is really the only protection that thousands of children have against being disabled by Lyme.
Please send whatever you can to the Legal Defense Fund as soon as possible.
During this holiday season, please think of it as a gift to our sick Lyme children. Thanks, Ellen Lubarsky
posted
Oh no, I'm trying to conquer procrastination so I mailed my check last night. I wonder if it will get there.
I recommend new thread entitled "Dr. Jones Fund address correction" to alert more people befor they drop their check in the mail. hatsnscarfs hats
Posts: 956 | From MA | Registered: Nov 2004
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posted
I'll start another thread about the address correction. I think, though, that even the wrong address will get there. Since it has the zip code and there is no "Fairline" Drive in the area, the mailman will probably figure it out. Am I dreaming? Ellen
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Posts: 819 | From New York, NY | Registered: Oct 2001
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posted
I think I got the correction to all the lists. Let me know if I missed any.
The correct address is Fairlawn Drive. I keep from getting confused by picturing a fair lawn, i.e., a lawn that is light (fair) in coloring. I guess it would also help to picure a lawn that's only so-so (fair) in the way it looks.
The entire correct address is:
The Dr. Charles Ray Jones Defense Fund C/O George Heath, III 26 Fairlawn Drive Wallingford, CT 06492
I am going to ask the Heath's to talk with their postman o make sure they get all the posts adressed to the wrong address. in case he does have Lyme. It really should be okay then for the people who used the wrong address, since no such address exists. Ellen
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Posts: 819 | From New York, NY | Registered: Oct 2001
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posted
Topping it.
Posts: 8337 | From the other shore | Registered: Jul 2002
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henson2
Frequent Contributor (1K+ posts)
Member # 463
posted
Up to the top
Think of every child who is sick with undiagnosed Lyme right now, and their parents are getting the run-around with specialists -- getting diagnoses from ADHD to behavioral problems, to "wanting to get more attention."
And meanwhile the kids are getting sicker and sicker and being put on psychotropic drugs because a pediatrician is saying "We don't have Lyme in [fill in the state]".
I saw all of this happen.
And I fear for the kids now who are not getting the right diagnosis.
As grownups, we got to live some of our lives first, before getting sick.
Children are learning that their life is only being sick.
Unless someone gets them the right diagnosis and treatment.
Please do what you can or are willing to do for the kids who are sick right now, and whose parents are frantic trying to help them.
I like what Ellen said - to think of it as a present for sick children.
Warmest good wishes to all, and thank you.
Posts: 1066 | From East Coast | Registered: Dec 2000
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posted
what about our support letters? should they go to the new attorney's address now? I just got mine finished. thanx, pattiecake
Posts: 687 | From PA | Registered: Oct 2004
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posted
I have gotten warm reception and interest in this being a Christmas donation in lew of gifts.
This action, in addition to it's magnetude in and of itself.. is also raising awareness and understanding of the diseases and the situation these children have been in.
An added bonus is that family who may not have totally 'gotten it' before, are more involved.
Mo
Posts: 8337 | From the other shore | Registered: Jul 2002
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sizzled
Frequent Contributor (1K+ posts)
Member # 1357
posted
UP!
Posts: 4258 | From over there | Registered: Jul 2001
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AAAAH - Ha! ..so that's how you spell "lieu", I knew mine didn't look right!
Yes, I've asked family to give this to us for Christmas..
and I am also going to put a copy of the letter regarding the legal defence fund in Christmas cards that I think are good candidates to recieve notice of this situation..
Mo
Posts: 8337 | From the other shore | Registered: Jul 2002
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posted
Thanks for making the point that money is needed immediately. The $25,000 is needed immediately. There no doubt will be more money needed later, but if we don't the initial $25.000 very soon, we could lose the attorney.
From the way people are responding, it looks really clear that we will be able to have the money.
For those who have not yet written your letters to the attorney, you can hold off until you are notified again. The new attorney is not asking for them right now. Ellen
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Posts: 819 | From New York, NY | Registered: Oct 2001
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Linda LD
Frequent Contributor (1K+ posts)
Member # 6663
posted
Sent what I could... L
Posts: 1171 | From Knoxville, TN US | Registered: Dec 2004
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posted
The costs will go well beyond the retainer if the case is presented with the focused work required.
Their's great strength in our numbers, I'm sure if we each give whatever we can we can provide much of the needed funding.
Mo
Posts: 8337 | From the other shore | Registered: Jul 2002
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sizzled
Frequent Contributor (1K+ posts)
Member # 1357
posted
UP!
Posts: 4258 | From over there | Registered: Jul 2001
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henson2
Frequent Contributor (1K+ posts)
Member # 463
posted
up
Posts: 1066 | From East Coast | Registered: Dec 2000
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oxygenbabe
Frequent Contributor (1K+ posts)
Member # 5831
posted
It's fine that you all want to get together and contribute to Dr. JOnes' defense as he has been from what I hear a great doctor, however, I cannot believe this woman Kay spams my email addy constantly. Spam spam spam and I asked her to delete me and she claims she can't "find" my email address or she would. Well how did she get it in the first place? I just blocked her permanently. SInce I never went to Dr. Jones or any other LLMD and am not interested in antibiotics as the ultimate cure for lyme, I can't and wouldn't contribute. I also think as great as he is he deserves a reprimand, no doctor should prescribe drugs to a patient he never saw. I think it would be a crime if he were taken out of practice, BUT he should not have done that.
But this just shows how irritating the lyme community can be sometimes. This woman doesn't care that I have no interest in the case personally. She just spams me with every single email about Dr. Jones.
I hate it when lymies are that intransigent.
Just venting.
Sort of like Dr. J...in N. Carolina. From things I'd heard years ago I thought he was overly aggressive.
There are good lyme doctors who are careful and save lives at the same time. There are a few I recommend to those who want intensive abx and as far as I know these few have never gotten in any trouble.
Posts: 2276 | From united states | Registered: Jun 2004
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riversinger
Frequent Contributor (1K+ posts)
Member # 4851
posted
Jones is trying to point out a desperate need for treatment in the stand he is taking.
You may disagree with these doctor's protocols, but the fact is that they have been important in helping many recover their health, and the charges are on on issues of importance to all of us. It isn't about the individual doctors.
posted
It isn't about the individual doctors NOR is it about the individual patients, for goodness sake..
it's about the diseases.
Noone has an absolute cure yet, but we have so few treating AND ACKNOWLEDGING AND DIAGNOSING these persistant infections, and many of them are helping a large number of patients with TBD's.
Come on, guys.. we are all in the same boat no matter what your preferred protocols. We should be protecting the community as a whole.
I know we are all suffering and many with longterm hardship and confusion.. but what do you think it will be like when Lyme is dubbed in all accessable corners of the nation as a limited disease..cured in 2 weeks (or 10 days as the IDSA is planning to release)
This is a War against those who want to squash all acknowledgement of this disease condition
They are not arguing abx use, they are arguing the existance of the chronic condition in the first place.
Therefore, does it really matter whether you use abx protocols, or HBOT, or Rife, or anything else in this fight?
Besides....think of others....many of them couldn not begin to know how to go alternative to the extremes needed here.. they need to be diagnosed and guided, and many DO benefit considerably, and many are effectively treated..by these docs to boot.
Children are helped at a very high percentage with Doc J, they are entirely different than adults in disease manifestation and treatment success.
Mo
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posted
top
Posts: 8337 | From the other shore | Registered: Jul 2002
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Linda LD
Frequent Contributor (1K+ posts)
Member # 6663
posted
From what I understand Dr. J in Charlotte is really into the pulse method and not a big IV advocate...maybe I heard wrong, but those folks must have had a lot of problems to be given IV by him...
L
[ 22. December 2005, 09:34 AM: Message edited by: Linda LD ]
Posts: 1171 | From Knoxville, TN US | Registered: Dec 2004
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posted
Please let's keep our eye on the main issue of this thread.
Dr. Jones is the Pediatrician who sees almost ALL the Lyme kids in the country. He needs us to contribute to his legal defense fund so that he can continue helping kids.
This is urgent. Ellen
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Posts: 819 | From New York, NY | Registered: Oct 2001
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"This is NOT a situation where any of us can afford to "let someone else do it." We need too much money in too short a period of time.
Please think of this as an emergency and contribute as soon as you possibly can.Posts: 8337 | From the other shore | Registered: Jul 2002
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posted
How much or how little money we have will matter little if we loose this pediatric LLMD with 7000 cases under his belt, his writings, findings -- and the lifetime quest to acknowledge and acurately diagnose TBD's in children and execute effective treatment.
Give everything you can and send this to everyone you know.
...for the children in his care and those yet in need.
Mo
Posts: 8337 | From the other shore | Registered: Jul 2002
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posted
There is noone who has fought harder for kids with Lyme, and noone we should fight harder FOR!!!
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posted
Please give whatever you can to the most important cause for the children of Lyme.
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