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» LymeNet Flash » Questions and Discussion » Medical Questions » Are there many UK sufferers

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Author Topic: Are there many UK sufferers
Karl
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Are there many UK sufferers ?
Or is my GP right.
I am posting alot to try and get ammo to shove in his face when i see him next week?
He is so sure i cannot have lyme and is more bothered about getting my BP down it is only borderline anyway.
This despite the fact i had many bites recieved may 2005 one that actually drew blood and symptoms started since. Prior to that last visit to doctor in 2001 when i changed GP.
I had a bout of CFS or ME in 1993 knocked me on my back for 4 weeks then almost a year to get back to normal.
I need to prove to him its not in my head so i can at least get tested.
Is he putting me off because i am allergic to penicillin??
Is there hope??
Thanks again
Karl

Posts: 10 | From uk | Registered: Jan 2006  |  IP: Logged | Report this post to a Moderator
mbroderick
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Penicillin isn't used to treat Lyme so that can't be a factor at all! There are numerous articles and medical abstracts on LymeNet that you could print out to take to your doctor. Perhaps that would help convince him to, at least, get you tested.

Be sure to insist on a western blot through suggested labs...

Posts: 2097 | From PA | Registered: Jan 2004  |  IP: Logged | Report this post to a Moderator
Truthfinder
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Keep fighting, Karl. I have heard that the "Lyme denial" is worse in the U.K. than it is over here.....

I know there is a really good Lyme doc over there - a doctor W. Have you heard of him? Seeing him or talking with him might be an option if you don't get anywhere with the doc you have now....

Tracy

--------------------
Tracy
.... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�.

Posts: 2966 | From Colorado | Registered: Dec 2005  |  IP: Logged | Report this post to a Moderator
liz dobell
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Hi Karl,
I'm in the UK. you can PM me direct if you want some more doctor info [Smile] ([email protected]). unfortunately there are very few docs in UK with any lyme knowledge
Eurolyme www.yahoogroups/eurolyme is best source of info for UK docs - it's a support group - i'd recommend you join.
hope to hear from you.
Liz

Posts: 83 | From UK | Registered: Oct 2005  |  IP: Logged | Report this post to a Moderator
millymollymandy
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Hi again Karl,
I sent you another private message with the phone number for Doc W. Once you have a consultation with him he will write to your own GP and believe me he will convince your own GP as he has mine! If your gp isn't convinced by that then nothing will convince them!

Posts: 229 | From United Kingdom | Registered: Jul 2005  |  IP: Logged | Report this post to a Moderator
lou
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Karl, this forum is inhabited mainly by U.S. lymies. While anyone is welcome here, the best local info about dealing with doctors in your country will be from a forum based in the U.K., which is why people keep telling you about the euro lyme forum.

Not trying to run you off. We like an international flavor.

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David95928
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Karl,

Mbroderick is mistaken about penicillin not being used to treat lyme. Sorry Marian.

Amoxocillin and Bicillin are both penicillins and used extensively here in the U.S. Other penicillins have not generally been found to be helpful. About being allergic to penicillin, are you sure? Some people with Lyme have herxed and from that concluded they were allergic.

Similarly, I know at least one person who concluded he was allergic after a nurse probably got some into a blood vessel during an intramuscular injection. He felt terrible for about twenty-four hours. Subsequently, he and his doctor re-evaluated and he went on Bicillin without difficulty other than moderate herxing.

There are tests for penicillin allergy. You may want to be sure before ruling out a major group of treatments.

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Dave

Posts: 2034 | From CA | Registered: Jan 2003  |  IP: Logged | Report this post to a Moderator
   

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