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Originally posted by iceskater:

visited the neuro opthamologist who works with lyme. I failed contrasensitivity test terribly
(much like Dr S test for questran use) the color discrimination, optic nerve ultasound and VRG.

It appears that my LYME AND CO-S have demylinated a major part of my body and has attacked the optic nerve. Optic neuropathy .

He is going to review the tests and call for where we go from here. It looks like this could be permanent and can't tell me if this will progress.

It sounds to me like it is doing compreble MS/ALS damage in my body.

I was so weak that my parents driving me home (3 hr trip) I layed in back seat and couldn't even go into Bob Evans to eat lunch at the half way mark coming home.

Walking into the office and the car is a major Olympic event now. This could explain why my skin has been numb for six months too.

I am beginning to think that being terrfied every second of your life is getting to be normal. Constant numbness and blindness.

Has anyone else had this amount of eye demylination? Any suggestions?

Trying to get an appt with my MD and the LLMD neurologist to see what else can be done.

Thanks for all of your thoughts and prayers.

Will get to my PM later today for people that I regularly chat with. Going to try to take a bath and go back to bed and try to rest.

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Iceskater, so glad you posted, but very disturbed you got such rotten news and the possibility it could be permanent damage!

I emphasized several things so they aren't missed by those people knowledgeable in severe eye problems such as yours.

Welcome back my friend.

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