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» LymeNet Flash » Questions and Discussion » Medical Questions » Anyone been diagnosed or tested positive for an infection not discussed much here?

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Author Topic: Anyone been diagnosed or tested positive for an infection not discussed much here?
sunnyslumber
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For tick-borne infections that haven't been discussed a lot I just meant things other than Borrelia, Babesia, Bartonella.

Please mention the common one's you were diagnosed with or tested positive for too!

I was thinking a while back, having tested + for Lyme on the Igenex IgM and + for Babesia on FISH, that both these infections seem to be very ubiquitous. That means they could have both basically been around a long time. However, cases of Lyme(I believe) and CFS (which I think is at least a significant part of the time Lyme) have risen a lot since the 1970s-1980s.

From reading a book about CFS, I know one doctor charted his patients illness onset by year, and found that before ~1970s CFS was practically nonexistent. The outbreaks that did occur happened at places like hospitals where people might be exposed to new or exotic diseases.

So if lyme and babesia have been around a long time (I don't know, this just fits the fact that they are spread throught the world, i think i read babesiosis in cattle was documented in the Bible) then you might expect one of two reasons for why people started to suddenly become sick in the 1970s:

Young adults (maybe, most often, the full onset of symptoms only happens when you reach a certain age) from that time would have been born in the fifties the first generation that had access to antibiotics throughout all of life. So maybe these infections are really common, and the people from previous generations that got them just died off so young because of not having antibiotics and the people in the first generation with antibiotics kind of unknowingly held the infection in check in childhood and youth just by using antibiotics. That would mean the infection was around forever, but since people really sick with it before antibiotics always died at a young age (like maybe from a different infection, as in AIDS) nobody realized there was this infection.

Secondly, maybe there is an agent that has been newly introduced in the past 30-40ish years to where we live that makes people which have these infections (borrelia etc.) become totally symptotic.

If so, it would be kinda interesting to see if anyone has tested positive for an "non borrelia/babesia/" disease that might be overlooked or considered somewhat exotic by Medicine over the past decades (even if it was exotic 30-40 years ago, maybe it is not now!).

Hope my reasoning makes sense to everyone! For that matter, hope it just does actually make sense!

Anyhow, it would be really interesting to see what infections, if there are others, in addition to the "Big Two or "Big Three" some of us have been diagnosed with or tested positive for!


Thanks,


john duncan

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Moosie
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Your reasoning makes perfect sense to me.

This ties in real nice with the other thread going around on CMV and EBV infections. While not exotic, I do have positive testing done for the active titers of those viruses, etc.

Viruses that should be suppressed by my immune system but aren't because "something" else is taxing it, i.e., lyme or other tick born infection.

I've been trying really hard to remember the name given the "parasite" I was diagnosed with in about 1978 after being in the Carribean for a year and a half. It was a spirochetal infection, not syphyllis. I don't think it ever was named other than me being lectured on STD's (I really wasn't sexually active at the time, and had never been).

I was treated with Keflex, Flagyl and Amakacin and remained well for about 3 years. It attacks my kidneys and/or bladder every 3-5 years since then.

I've wondered about its part in all my stuff now and over the years since then. Or whether they had actually caught the lyme bacteria in me then, but didn't know what it was.

Really good thinking and questions here.

God bless, Moosie

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Trying to figure it all out.

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mlkeen
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In addition to lyme and bart I have tested positive for Rocky Mountain Spotted fever and mycoplasma.
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trueblue
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Not sure if this helps or answers your question or not.

I was diagnosed with Staph Aureus(sp?) prior to being diagniosed with Lyme in 1993. I had my first herxes while attempting treatment for it. I went through about 10 ABX thinking I was allergic to them all.

I was also diagnosed with Hep C, 8 years ago, a month after getting a weakly positive B. macroti IGG. I wonder if I didn't pick them up together. Maybe from a mosquito???
(I've never been transfused, have no tattoos and have never had my nails done. I doubt it was from some youthful indescretion, although not completely impossible.)

A few months ago I tested as having recently reactivated EBV and Coxsackie A viruses.

Who knows what else is lurking?


(ps. I am in the age group you specified.)

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more light, more love
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sunnyslumber
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Thanks Moosie, mlkeen & trueblue,

Hey Moosie was it relasping fever? Or do you mean a parasite like a worm?

Just for me (to answer my own question):

I have been tested positive for (in order of time):

Human Herpes Virus 6 (no EBV, though)
Mycoplasma
Borrelia (on IgM WB)
Bartonella (on ELISA)
Babesia (on FISH)

Also I have had suspected Coxsackie or Echovirus but it was never proven. Out of those I tested positive for I was diagnosed as having all of them at some point.


Thanks for your guys' replies! I hope some more people chime in, maybe there's infection we've missed...

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kumba
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Hi sunny,
I have positive IGG tiers for CMV, EBV, pretty common viral infections. But recently I tested positive for Toxoplasmosis, a parasitc protozoan disease. Many people in the US test IGG positive and most remain asymptomatic or maybe a week or two of flu like sx. for the immunocompromised person it can cause a host of problems. I suspect I have lyme with a toxo co infection. I dont think toxo alone could have caused me such widespread problems.

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klutzo
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Hi,
I was positive for:
Borrelia
HHV6a
CMV
EBV
Coxsackie B3
Ekrongruben fiber (tick virus, not sure of spelling)

Klutzo

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mjo
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AIDS patients brains were found to be full of toxoplasmosis, at least in the 80's. Wonder if this is still true? And then the question is why? Did they all have cats? No. Clean up the neighbor's cat litter? No. So why? Make me wonder about how many of these things we all carry and how many are "re-activated" as mentioned.

Relapsing Fever is also from Borrelia, but not burgdorferi. Yaws is another Borrelia but not sexually transmitted.

I, too, have had Hep C. Interesting how Medicine first said Hep C was sexually transmitted, then they said it was not sexually transmitted, then they said it was ok to have sex unprotected if you were in a monogamous relationship(??), and then they decided again that it wasn't sexually transmitted or the risk of it being so was infinitessimal, which is not true.(They called it Non-A Non-B back when I got it and were just coming into calling it Hep C.)

Good thread! Interesting. Keep it going!

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tailz
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I agree. I think we ALL carry these infections; it's just a matter of time before they express themselves.

My theory is that infections like Lyme are the reason we begin to grow old and die even. By our 40's, our filters (liver, kidneys) are clogged or just plain damaged from infection.

I wonder if maybe we weren't meant to eat meat. I won't touch it now.

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antsettler
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in any case averything are milenary parasites, really is rare the growth in last years; perhaps some afect directly our immune system;
my family in generations worked in heavy industry and had more contact with heavy metals, but not cfs in them;
perhaps patogen fungi, are parasite in long time, not contagious, and need the same type of defense that block the bb and bab; but i don't see references asociated with us;

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bettyg
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Here are the very DETaILED results of all my complete body lab testings 4-06 if you are interested in reading.

Bettyg's 4-20-06 new LLMD in Minn. Office visit summary, complete BODY lab results of 15-18 labs nationwide, all info the lab sent back about specific high/low testing, $$ costs involved, and what each test specifically involved what ... VERY DETAILED! I did this for other newbies who had NEVER had complete body testing like I did!

Hoped it would give them guidance what they entail, how costly if OUT OF POCKET PAID, and which specific labs nationwide are the best for these SPECIFIC lab work.

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=043234;p=1

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Rene
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I tested positive for tularemia.
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clpgotlyme
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In addition to the "big 3", I have also tested positive for:

Salmonella
Mycoplasma
EBV
Parvo

No wonder I feel so bad!!!!!!!!!!
Cindy

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Cindy

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sunnyslumber
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thought it might be worthwhile to bring this thread to top

john

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shizuko
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I have been tested positive for:

Lyme
Human Ehrlichiosis (both Monocytic & Granulocytic)
Salmonella (multiple species)

shizuko

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sickandtiredofbeingsandt
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Hmmm, Interesting topic! I am wondering now about brucellosis. My older sister recently informed me that she had that (also called undulating fever) when she was young. At that time, we had milk cows and she had to clean the vats as well as she did drink some of the milk.

My mother liked raw milk and she breast fed me. Not sure if I was ever fed raw milk but my husband grew up on it. So I'm wondering about that now. Is there a test for it? Hmmmm

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Sick and Tired of Being Sick and Tired

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sickandtiredofbeingsandt
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Found this article. It has some very interesting comparisons. My Lyme brain doesn't comprehend it all but maybe someone here can.

http://www.emedicine.com/neuro/topic42.htm

Interesting too that this doctor recognizes chronic and late neurobrucellosis. Of course, his credentials do NOT include the IDSA.

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Sick and Tired of Being Sick and Tired

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Gabrielle
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In European Lymies one of the big coinfections is

Chlamydia pneumoniae

I'm really very very surprised that no-one in the US is talking about / and testing for that. They are so common, they can be hell and are extremely hard to erradicate.

If we have them here - you certainly have them, too.

Gabrielle

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sickandtiredofbeingsandt
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Gabrielle,
I have an appointment next month at a LLMD. The nurse in his office mentioned testing me for Chlamydia Pneumoniae. So, it is known here. Don't know what the symptoms are so don't know if I have it but I will be finding out.

Could be it's not that common here but this doctor tests for it.

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Sick and Tired of Being Sick and Tired

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AP
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Besides babs, bart and Lyme, I have low IGF-1 (something thatw asn't a problem before all this)

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grace1
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where is the best testing for such other coinfections such as tularemia, q fever, mycoplasma, chlamydia pneumonaie, etc.?

why do the lyme docs not test for tularemia, q fever, and mycoplasma, if they are known tickborne diseases?

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Elinor
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Hi,

for info on chlamydia pneumoniae, which is a significant co-infection for many people, look here http://www.cpnhelp.org

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Truthfinder
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Gabrielle,

I think you are right - I think C. pneumoniae is a bigger player here than anyone realizes.

It appears that the tests for C. pneumoniae here in the U.S. are very inaccurate.

Is it the same way in Germany?

Heart disease is still the #1 killer her in the U.S., and you would think we would be looking hard at C. pneumoniae since it has been implicated as a contributing factor in many heart issues.

Tracy

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Tracy
.... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�.

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Gabrielle
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Tracy,

I think the tests for Chlamydia pneumoniae are also very unreliable in Germany. C.p. are said to be very contagious and my hubby has high titers. My test (same day, same lab) came back negative. How can this be?

Or is it the same as with Lyme testing: when your immune system is not working anymore you don't make antibodies in your blood which could be measured.

Hubby is feeling far more better than me and also has higher Lyme titers than I have.

The people in the http://www.cpnhelp.org forum certainly know more about the reliability of C. pneu testing.

Gabrielle

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lou
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If chlamydia is commonly found in the population, like h. pylori, from previous exposures, how do you know if it is reactivated or just old and inactive from the test results? Doesn't make sense to me to be treating for suspected reactivated germs without some symptoms.

I have the feeling that docs are looking for reasons why it is hard to get rid of lyme, apart from the critter's own sneaky practices, and they have come up with umpteen theories. The fact is that we are exposed to a lot of germs which our immune systems hold at bay or get rid of. If we test positive for these, it may not mean they need treatment. I am not saying reactivation never happens, since my shingles episode was surely of this type.

Someone said docs should be checking us for more of the other germs. Well, I was and the results were variable, the tests not always rock solid, and the symptomology not consistent. Another quagmire, in my opinion.

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Tj33
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Happy to see that someone else is beginning to put 2 and 2 together....

Since the addition of artificial (man made) fats to the human diet cancer and many strange disease suddenly increased in humans. It started on a large scale in WWII to save natural animal fats for the war effort.

The man made fat makers discovered that there was a very high profit margin in selling artificial fats.

A propaganda blitz was launched in the '50s to sell the public on using this garbage..

Then we have the Cholesterol theory was launched. The first study done was the Farmingham study that was inconclusive regarding high cholesterol and blocking arteries.

But, with so much money at stake with the Food and drug (statins were just discovered)makers, a committee of doctors on the Govt and drug company payrolls said that low cholesterol and low animal fats were good for humans....

Thousands of years of human evolution was ignored...

In fact reality soon showed quite the reverse...

Ever since there has been a rash of strange diseases attacking humans previously unheard of...

Dr. Mary Enig (Fat biochemist U of Maryland) has written several books on Fat and Lipid chemistry in the human body. She shows how the human immune system is dependent on Cholesterol and a natural animal fat diet to sustain it. Like it or not humans are meat eaters.

The good Dr. tells how transfats (byproduct of man made fats) is really very dangerous. Plus it is transfats that are blocking arteries not cholesterol...

Plus Dr. Enig highly recommends getting rid of all man made cooking oils and using only butter, olive, and coconut oils to cook with... Coconut virgin oil being the best for the immune system...

Well worth reading Amazon has them.

Remember: A Plague is always preceded with famine.

Now we have a man made famine of junk transfat foods (the belly is full, but the body is starving) and many plagues are breaking out.

You have to understand how the immune system works and eat the proper foods that support it....

Tj

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TerryK
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Check out the book Lab 257 for another possibility.
Terry

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StuckonLyme
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i was diagnosed with

EBV
erlichiosis
RMSF
chronic strep
+the 3 common ones in lyme bart and babs.

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Misunderstood
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I have clamydia pneumonae 1:1024. Extremely high titers! Also, mycoplamsa, HV6, EBV (active and chronic)and candida.

I get stabbing chest pains that wake me up in the middle of the night.

I just tested again through igenex for lyme and got only 2 bands (31 and 39) that were IND.

I need Dr. House to figure this out!!! I welcome any comments from all of you knowledgeable people.

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nellypointis
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quote:
So maybe these infections are really common, and the people from previous generations that got them just died off so young because of not having antibiotics and the people in the first generation with antibiotics kind of unknowingly held the infection in check in childhood and youth just by using antibiotics. That would mean the infection was around forever, but since people really sick with it before antibiotics always died at a young age (like maybe from a different infection, as in AIDS) nobody realized there was this infection.

John,

I think (I know?) that people got sick in very similar ways with very similar symptoms at least since the 1900s, as my own grandmother (who grew up in rural France) got very very ill when she was 19 and from what I can tell it looked awfully like TBDs to me, she was sick all her life, had ACA on both legs at the end of her life but she lived to the ripe old age of 90.

What most people do not realise, or can't accept, is that medicine hardly ever looks for etiologies, doctors just vaguely "manage" symptoms (or cut you open and remove bits), so nobody really knows what is going on, except for a few well identified things which have a very specific clinical picture and/or very easy to identify causes.

I keep reading these assumptions that "these" illnesses (CFS/ME, Lyme, chronic EBV etc) only started in the 70s. I think there is absolutely no evidence that it is the case. Illnesses only emerge when they are allowed to.

Nelly

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