posted
I was wondering if anyone has statistical proof of how reliable the lab test that MDL offers for solid tissue tesing of TBD's.
My daughter's gastro. doctor (first visit last Mon.) is dead set against this test. She refuses to be any part of it. Says it is not reliable and in no way will be associated with it. This doctor was previously in practice with the well known pediatric gastro doc from NJ that has published all the articles on lyme and its effects on the gastro. tract. Unfortunately, he is no longer doing endoscopies.
Has anyone else run into this kind of resistance??
Thanks for any info,
lymedesign
Posts: 263 | From Georgia | Registered: Feb 2006
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posted
Not at all uncommon for non LLMD docs to refuse to send samples -- blood, CSF, tissues, whatever to non-standard labs.
Most only use Quest or LabCorp or hospital lab.
Hubby had a neuro promise to send CSF sample to PCP to send off to either IGeneX or MDL -- didn't happen. Unfortunately this was the only time hubby had elevated protein and of course hospital tests were all negative.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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posted
I had an endoscopy done on my stomach tissue and it was positive through MDL for the lyme in 2004. I was having such trouble getting a positive blood test- I only had a positive urine PCR. I desperately wanted to go on the IV. I had red spots (not ulcers though!) from a previous endoscopy when I was having terrible pain. They decided to do another to test for the lyme. The tissue sample helped my cause. My Dr. in NJ at the time only used MDL. I don't recommend them for the coinfections since most of mine were finally found through Igemex and me going to Dr. B on Long Island.
Before you do anything like that, I just suggest, if you haven't already, get a thorough blood work up through Igenex. I test positve now through Igenex for the IGM lyme Western Blot. It kills me because if my dr. in NJ had used Igenex and probably wouldn't have had to do another biopsy. ALl my blood tests were normal from MDL.
Best wishes- I hope it works out for you.
Posts: 238 | From Bethlehem, PA | Registered: Oct 2004
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WildCondor
Unregistered
posted
I would find another GI doctor! I can't stand that closed minded arrogance. I had stomach biopsies sent to MDL for bartonella and Lyme, what the heck is the big deal.Who knows how accurate they are, we need more money for research and Lyme studies. Blame the government! All the Gi does is put tiny pieces of tissue in sterile solution and give them to you to mail. The GI really needs to get over themself. Besides, its the LLMD that will get the results, not the GI doctor. All they have to do is take the biopsy, which they should do for their normal tests anyway, its just a few more random biospies that take them a few minutes. Go to a new GI, this one sounds like a whining, and uncooperative duck set in their ways.
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posted
It sounds to me like she is backing away from anything that would diagnose lyme, probably in response to the current all out persecution of NJ lyme docs. This is fright, not ignorance or being set in her ways.
I had a doctor scream at me that I didn't have lyme and she would not test me. This was in spite of being in a high risk occupation and a whole raft of serious symptoms. She used to treat lyme patients in the area, but got out of it because of the controversy. Fright, not ignorance.
Posts: 8430 | From Not available | Registered: Oct 2000
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