Topic: Anyone? 12 day cycle, 3 days fever, sweats, 9 OK days
minoucat
Frequent Contributor (1K+ posts)
Member # 5175
posted
Anyone else experiencing this?
Cycle is -- 9 days of feeling somewhat OK, although fatigued and with muscle weakness. 3-4 days of feeling very lousy, with a lot of muscle pain, intense brain fog, extreme fatigue, and night sweats and mild fevers.
Hubby's gone through extensive tx for Bb, babs, bart. He has the sx described above -- we're thinking it's still babs, possibly a virus (bloodwork pending). Does anyone else has the same sx with the same timing on the cycle?
Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707
posted
Good morning Sweetheart,
I am sorry to know that hubby is having problems.
I was thinking Babs too.
I don't necessarily have that same cycle...well, I do have the cyclic thing going on, but at a much shorter duration.
The SYX are all very familiar though.
It is one of the most difficult and frustrating things the we have to deal with- trying to distinguish the many symptoms from one another into a neat little box for one of the many illnesses.
But I do think now that I have the Lyme and Bart loads done, that my remaining things are mostly Babs related.
Fatigue, muscle weakness and pain (especially around the shoulder and neck areas), sweats, brain fog, fluctuating temps, and headaches are all key issues here too.
As we know- Babs is one mean and persistent bug.
Sending my best to you and your love, M
Posts: 7052 | From Colorado | Registered: Mar 2003
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trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
Minou, I have a cycle that seems to be almost 2 weeks in duration until it repeats.
I'm not sure where beginning and end are but 4 or 5 days are completely miserable (and for me weepy to boot, ugh).
My symptoms are very similar.
I have a lot of low grade fevers, especially in the evenings, shaking chills, sweats and waking and feeling like I'm starting to burn then sweats, exploding headaches, lots of pain, an awful lot of cognitive problems and brain fog.
I have untreated Babs and think my symptoms are primarily that, who knows. Then again, who knows what all else I have going on.
I hope it's figured out and he feels better soon.
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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trueblue
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posted
Actually, now that I just re-read what you asked, I'm almost exactly opposite. Sorry, I'm more the 9 days sweats and stuff and the 4 days everything else.
(No doubt I'm in the midst of the confused phase of this.)
Um... nevermind.
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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minoucat
Frequent Contributor (1K+ posts)
Member # 5175
posted
True -- no, not opposite, since the overall timing of relapse-to-Okayness is pretty much the same. Perhaps the difference in the duration of feeling lousy is due to you being untreated and the babs being still unregulated. I'm still trying to figure out what the deal is -- is this some sort of toxic effect of babs die off, or what?
Surely the length of cycles means something -- I was hoping it might be a distinguishing characteristic, as in 2 week cycles for babs, 1 week cycles for viruses, etc. Silly me, as if it would be that simple. But before treating the coinfections there was no definate cycle, so that has to be significant somehow, no?
If anyone else has notes on their cycles/timing I'd love to get that info.
Melanie, I'm so sorry to hear that you're having to fight your way through sx again, although it sounds as if you're actually managing pretty well. I'd love to see some photos of the gardens you've done -- is there a website anywhere with that? And speaking of which, I'm having a STELLAR year in roses. I have to sneak around in the early morning and late evening to garden, because of the doxy, but I'm pretty happy with all my lovely blooms.
-------------------- ********************* RECIDITE, PLEBES! Gero rem imperialem! (Stand aside plebians! I am on imperial business.)
posted
Hi, my babesia cycle resembled the one you described before starting mepron almost two years ago. It did a great job for a year, and when it finally failed, the cycles were relapsing every 24 hours.
The symptoms have been greatly reduced over the past three months, and the strength of mepron temporarily restored, with primaquine, a drug used to get rid of the dormant form of plasmodium vivax, or relapsing malaria. But lately, the bug was getting more powerful again, and the babesia symptoms returned every twelve hours.
I've just started on the classic drug treatment for relapsing malaria, which takes 2-3 months to complete. Since it's only Day 1, well within the parameters of a placebo effect, the most I can safely say is there has been no return of fever, no seizure activity, and intense fatigue.
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Sorry to hear about your hubby still having problems with the babs. I am on the same boat.
As you know I been under heavy duty protocols for babs for two years, with only one month of a break on which I relapse within a week. I do OK/good under mepron but I soon as I quit BLAM!!!!!here come the babs.
I am on day 23 of primaquine + mepron, etc, etc; and I had been since day #4 in and out of herxing throughout the day, old symptoms are back, really intense but on a quick version. Night sweats had not stopped at all.
However, day #9 and #10 on this combo was misery, all day long, exhausting with intense knee-hip pain. And I got a repeat of this every 6 days (so that was day#16 and day#23, yeah! today is my lucky day).
Overall, everyday, I feel worse since I started the primaquine; haven't seen any improvement yet and like I mentioned before I am just in and out of herxing all day long; with that very strange feeling that I am going to get paralyzed 45 min after I take the primaquine.
Take care, hugs to you and hubby, Lymster in WA
Posts: 303 | From WA | Registered: Jul 2004
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Boomerang
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Member # 7979
posted
Hi.....my hubby was on pretty much four week cycles until he took the flagyl. That sent him into a herx that still hasn't ended...... Now he has a couple of good days, before crashing again.
Take care.
Posts: 1366 | From Southeast | Registered: Sep 2005
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posted
This is a very discouraging thread. Sound like some of you have had very long-running battles with babs.
Hubby is back on the quinine/clindamycin protocol for babs and I can't figure out if he is making progress or not.
Besides the sweats, do any of you have inflammatory reactions from Babesia treatment? Normally hubby has no pain problems, but this time around he is hitting the Ibuprofen pretty heavily -- the all over body aching comes on mostly in the evenings and overnight on the days he is on the Quinine/Clindamycin. Herbal anti-inflammatories don't seem to do much.
The first time he treated for babs he had no herx symptoms, but just started feeling really good with more energy and was able to resume walking for exercise and had less frequent seizure-like episodes. Since he is feeling so bad this time around does anyone think this means the treatment is working better or is it just wishful thinking on my part?
Minoucat,
Hubby's cycles have always been daily so I can't help you out there.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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Bea S: Yes, I am having inflammatory reaction on this combo for babesia (mepron-primaquine-zithromax-omnicef), my knees/hip are really bad; never had this symptom so intense before. And it puzzles me, because I believed the knee pain was from Lyme not Babs.
I have the "everywhere muscle pain/fatigue" that comes with Babs also, but the knees; WOW! is like someone is drilling in them and they just get "stuck" especially when going up stairs. Sometimes even just when standing up from a sitting position.
This was one of my long time symptoms for eight years before I got a Lyme dx, but never this bad.
HOWEVER, I take faith on the progress I had made. It took me 6 months to feel human again when I just started Lyme treatment (2 years ago) and I took 5 steps back for every step that I advanced. So.... I strongly believe this will work again.
Take care everyone: Lymster in WA
Posts: 303 | From WA | Registered: Jul 2004
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I know I read somewhere recently (can't remember where) that Babesia is often in the tissues so I guess that explains the overall whole body aching thing -- guess the meds must be getting into the tissues where they are needed.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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liz28
Unregistered
posted
Lymster--
I can identify. The first time I did primaquine, the paralysis hit on the fourth day. Six days later, I had to stop, the dizziness and exhaustion were so overwhelming.
The second time round on primaquine was sheer misery in a whole different way. It was like having Alzheimer's disease, my memory was so awful. And the Lyme went completely haywire after a year of being under control, with a relapse that lasted at least a month. I was falling asleep at my desk with exhaustion, and taking Provigil to stay awake. Finally, my body actually started to send out messages, saying look, get it together right now.
After two months of this, I cautiously began walking on a treadmill every other day, and that was tough. I would be very sick every evening, and just continued on faith that the feverish symptoms might clear with a little exercise. Usually, they did, but sometimes they didn't.
After three months, I started jogging again, VERY slowly and carefully. And this weekend, I ditched the mepron and switched over to a short-term course of chloroquine, a full-blast malaria drug. It's working quite well so far, but if it isn't enough (since you can only take it five days in a row, and then have to cut back), I'll do quinine/primaquine next.
Although I can still feel it if I take a day or two off primaquine, it no longer has much effect when I do take it. So maybe it has completed its task, or maybe your body just gets used to it.
Regarding your knees--there's an old-time theory that babesia protects Lyme by giving it a hiding place from antibiotics, and that when you start killing babesia, you dump lots of Lyme back into your system. Who knows whether there is any truth to this at all, but it might be worth looking into.
Also, primaquine is not an antibiotic, and it has a cumulative effect. You can take a lower weekly dose over several months, and still get results. Many people take two 15mg tablets once a week for 30 weeks, and there are reports of people taking it for 50 weeks with no adverse effects.
Here's some bait to keep going with your current protocol:
It's possible to jog again, though more slowly than before.
The hand and leg seizures have almost completely gone away.
It's possible to have a regular, everyday cold again.
Chronic facial rosacea has cleared up considerably, getting rid of the unfashionable beet look.
I can actually consider dating this cute guy from work, not only because of restored physical sensation, and a rising energy level, but because of greater emotional calm and deeper concentration on other subjects besides health.
Thank you so much for the words of encouragement (sp?), really need them on day like today.
Haven't been able to come out of herxing this time around, started on Saturday (day 23 on primaquine) and keeps going. I am thinking is the famous 21 day Lyme cycle, maybe the menstrual period that hit at the same time or maybe a combo of everything.
Before Lyme I used to be a runner (5 mile 4-5 tx per week), when Lyme hit me I couldn't even walk to the bathroom without "hanging" to the walls. Soon after I started Lyme treatment I started walking, little at a time and it took me forever to finish one mile. Now, I am back to walking 5 miles daily at a good pace; can't run, my knees hurt a lot. I don't know if I will ever be able to do it again but I will keep trying.... and... even days like today I push myself to do limit and I do my walk, it help me sweat and I do feel better after.
Thank you again, so happy that things are going well for you, keep it up. We will beat this thing and say hello to that cute guy from work.
Lymster in WA
Posts: 303 | From WA | Registered: Jul 2004
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trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
Minou, When I tried to treat Bart, however badly... one of my cycles was a week. (Although I was pulsing 4 days a week, might have something to do with it.)
Having not treated Babs ever (I tests low positive b. microti 8 years ago).
Anyway, on the Levaquin the Babs symptoms increased dramatically. I've been off the levaquin for 16 weeks and I seem to have a fairly clear 2 week cycle along with at least one other, maybe 2, cycles. (I have to look again.)
I have a question, perhaps someone can help me with. I'm having a devil of a time tracking symptoms and cycles. How are you going about it?
I've just been writing things in a calendar but there's so much, so only the highlights get in and, I'm having trouble tracking things.
Any advise for the recently, increasingly, cognitively challenged?
Thanks for any advice.
Oh, one other thing I've been wondering since I haven't started treating this yet. I see so many Babs relapses after stopping Mepron but didn't see if anyone had tried tapering the dose instead of just stopping. Have I missed that as a possibilty? Has anyone done that and do you think it would help with the relapse rate? I'm hoping to do this once and be done with it, idealistic as it sounds.
Please excuse me if I've asked a stupid question most of the Babs info is fairly new to me. (I've been reading most everything but am only retaining so much.)
Thanks, true
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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