posted
Not to be gross, but we're all adults here (I hope). As a quick background, I was diagnosed as relapsing remitting MS years ago, but on my own pursued LD. Was not CDC postive on my Igenex WB but did have lyme specific bands. Am seeing Dr D in Boston. Have had 6 months of tetra and a month ago switched to the biaxin/planqunel combo. Have tolerated the meds well, no huge herxes to note.
An issue that I have always had has been bladder issues - either urgency or some slight hesitancy. Last week, I was hit first time with full blown bladder retention (i.e. I couldn't go even tho I was full). It was so painful that on Friday I went to the ER and was catheterized for relief.
(btw the ER folks called Dr. D a quack - go figure)
Now... my question finally... Do you think the retention episode was a herx. It seems like bladder issues are common but there's not much specific info on it with regards to LD.
Anyone? Thanks - feesher
Posts: 36 | From Boston, MA | Registered: Sep 2004
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posted
In my opinion the cause of some bladder issues with Lyme disease is the same reason for some G.I. and heart issues with Lyme disease -- all are controlled to a large extent by acetylcholine.
Anticholinergics such as Ditropan XL are given to reduce urinary frequency.
My suggestion would be to take phosphatidylcholine -- might be of benefit.
Without choline/acetylcholine bladder will not function and peristalsis will stop.
Got to provide the necessary nutrients to heal the nerves -- phosphatidylcholine, other good fats, B vitamins etc.
This is just my opinion and not medical advice.
Bea Seibert
P.S. Babesia and Lyme both rob the body of acetylcholine.
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
My daughter has this problem as well. Either she's going every five minutes until 4am, or she can't go at all. The other night I almost took her to the ER, but told her to lay down and breathe deep to relax.
I don't know what those compounds are that you mentioned, is there a shelf name for them? Can the doc prescribe?
Posts: 2903 | From AZ | Registered: Feb 2006
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posted
feesher, I had a similar problem to you as people here can attest right before I got married three weeks ago. I couldn't pee. I felt very full and about to burst, but it wouldn't come out.
The problem went away (or at least got better) in the subsequent days, however, I still suffer from some hesitancy issues.
I will be bringing it up to my LLMD at my appointment tomorrow. If there is any news to share from that meeting, I will enlighten the group.
Posts: 331 | From virginia | Registered: Nov 2005
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posted
The cheapest source of phosphatidylcholine is lecithin -- need to make sure it is high quality and has not gone rancid.
It is derived from soybeans and is available at any health food store.
Choline is one of the B vitamins -- the body uses this to make the neurotransmitter acetylcholine. Phosphatidylcholine is a phospholipid (fat) combined with choline.
The best natural source of choline is egg yolks -- Dr K told hubby to eat 3 egg yolks per day (just the yolks) -- according to her something in the egg whites greatly decreases the amount of choline absorbed.
Choline/phosphatidylcholine will actually improve liver function and decrease cholesterol -- even if you eat the egg yolks. It is a case where the good fat replaces the bad fat.
Hubby has done IV phosphatidylcholine (from Switzerland) to help with tremors/myoclonus. This is known as the P.K. protocol.
There may be other factors involved with your bladder issues, but it sure wouldn't hurt to take supplemental choline/phosphatidylcholine as it may also help with brain fog and other Lyme symptoms.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
Thank you! We'll try the egg yolks.
Posts: 2903 | From AZ | Registered: Feb 2006
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Foggy
Frequent Contributor (1K+ posts)
Member # 1584
posted
Sorry to hear what happened Feesh. Which ER called Dr. D. a "quack?"
Posts: 2451 | From Lyme Central | Registered: Aug 2001
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Jill E.
Frequent Contributor (1K+ posts)
Member # 9121
posted
Hi,
There's a Yahoo group called LymeTreatments that I've recommended on this board before for anyone with bladder issues. Most of that group are people who had been diagnosed with Interstitial Cystitis but turned out to have Lyme. Bladder issues are usually among their worst symptoms.
Even though my bladder urgency issues were a hassle during undiagnosed Lyme, it's gotten a lot better with treatment. My major issues are nerve-related so I'm not surprised it affects the bladder from time to time.
But the Yahoo group knows a lot about bladder treatments, although most are fairly new to Lyme treatment.
Just a thought if you want to post a question there.
Oh, and re: Lecithin, I've been using that every morning for years in my breakfast protein shake. It's got a good nutty taste.
Take care, Jill
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
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posted
fyi It was the ER at B+W hospital in Boston. Otherwise a decent hospital, but the individual there was a real jerkoff
Posts: 36 | From Boston, MA | Registered: Sep 2004
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