posted
Shouldn't I be herxiing or something? What does this mean?
Thanks, Cutie
-------------------- Cutie Posts: 125 | From Atlanta | Registered: Dec 2005
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Jill E.
Frequent Contributor (1K+ posts)
Member # 9121
posted
Not everyone herxes. Some people improve without herxing.
I rarely herxed on oral antibiotics (maybe twice). I do a little on intramuscular medications.
Wait until around day 28 to see if you get a flare up of symptoms - that is the spirochetes' growth phase. That can indicate that the medication is affecting them. I now flare around every 28 days.
Also, remember that some of your symptoms may be due to coinfections that the Doxy is not treating. Other medications will work on those.
Jill
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
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lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
After a couple months of flagyl I herxed.
Posts: 2905 | From New England | Registered: Sep 2004
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geniveve
Unregistered
posted
i started herxing after only a couple of weeks of amoxy. i think it all depends on how long you've had lyme and how severe your symptoms are.
seems like every person is different.......
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groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
Hi cutie
you should give more info on your situation -- you will get much better info back by doing this--Jay--
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
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I was sort of diagnosed in Feb. My Igenex WB came back IND on IGM and negative on IGG. I was seeing a dr. at a clinic for Fibro and Chronic Fatigue.
Recently had an insurance change and she is no longer covered and she suggests some VERY expensive treatments I can not afford.
So took my results to my internist who said it may or may not be Lyme and is treating me with Doxy 200 mg/day.
I've been ill for about 6 years, symptoms coming and going and changing. Mostly fatigue, post exertional exhaustion, tremors, myoclonus, stomach problems, numbness, etc.
Over the years have seen several doctors including internist, allergist, gastroenterologist, psychiatrist (of course), neurologist who did an MRI, MRA and EMG and all came back normal as do all of my other tests - chest xray, pelvic u/s, blood work, etc.
Am on several supplements such as Maitake mushroom extract trying to pump up my immune system.
I guess I'm wondering about herxing because I feel no different - no better, no worse! I'm not even 100% sure I have lyme!
-------------------- Cutie Posts: 125 | From Atlanta | Registered: Dec 2005
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posted
Okay the first bell that rang for me was when you said you were taking 200mg a day. You might want to talk to your doc about bumping it up to 400mg a day.
My doc starts at 400mg a day.
jar
Posts: 805 | From Utopia | Registered: Feb 2006
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Jill E.
Frequent Contributor (1K+ posts)
Member # 9121
posted
You may want your doctor to re-run the Western Blot now that you've been on antibiotics for a couple of weeks.
This can sometimes turn an inconclusive Western Blot into a positive one - being on the antibiotics for a short term can get some of spirochetes out of hiding enough to pick them up on the test.
Now that I've read more about your situation, I realize how confusing it can be. I had chronic fatigue syndrome for ten years, many years ago. I was bitten by the tick four years ago.
My CFS symptoms were quite different than my current Lyme symptoms. Yet some people, including some doctors - even some at the F&F Clinics, believe that many cases of CFS are really misdiagnosed cases of Lyme. So I can see why you are perplexed.
Personally, your symptoms of fatigue and post-exercise exhaustion were like what I had with CFS, but many Lyme patients have that. The tremors and myoclonus sound much more like Lyme or other diseases - again, just from my personal experience with both diseases - so it's important that you keep pursuing a correct diagnosis.
Good luck, Jill
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
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posted
But some people on this board said that they ended up in the ER from 200 mgs of doxy a day and had to start lower, that they did indeed herx from 200 mgs/day or less!
This is all so confusing. Especially when we're not even sure what I have. I'm so angry.
-------------------- Cutie Posts: 125 | From Atlanta | Registered: Dec 2005
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
i herxed on 200mg but i also weighed at the time less then 100lbs,,,so it takes very very little.
keep in mind not everyone herxes.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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posted
Everybody is different on herxing... but I agree, you need at least 400mg daily to kill the keets.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
Hi cutie
For most folks 200mg a day is not enough--
200mg of doxi is called the -Standard Dose- The standard dose kills most germs- Not Lyme--
I was on the standard dose for 3 months and only made slight progress-- Then on my own I upped it to 600mg aday--
I then herxed and made perty good progress --
Also be aware that the tests avaiable for these diseases are very poor- Perty much useless--- To many things can sque the test results--
My tests (Igenx) came back IND--
I have both Lyme and Babs --For Sure-- Zero Doubt--
The best way for you to make sure you have lyme ect is to post your complete symptoms list here--
Also realize that Most folks have more than one bug(coinfection) Ticks are nasty little criters
Little progress will be gained if all infections are not treated at perty much the same time--Jay--
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
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