trails
Frequent Contributor (1K+ posts)
Member # 1620
posted
I have posted about this a few times recently under different headings but it was during the rally time and maybe more folks will be around now to answer.
When you are treating Babesia do you herx or flare or do you just get better and better?
I was on mepron/zith/artemisinin/plaquenil and I began to get the babs symptoms that I dont get unless I am ON treatment. When I treat for babs I get babs symptoms. When I dont treat I just have my usual symptoms---some could be babs, or any TBD really.
I do NOT get better and better with babs treatment. Some here have said that you should feel better pretty much right away while taking babesia killing drugs. I have never experienced that.
I am really confused.
Anyone have anything similar to me?
Posts: 1950 | From New Mexico | Registered: Sep 2001
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posted
I am experiencing the same thing. I have not noticed anything after 5 weeks of mepron+zinth. Pressure in my ears and an occasional hot flush feeling from inside... thats about it...
The fatigue, clouded mind, mood swings, and swollen feeling neck continues.
Posts: 170 | From Vancouver | Registered: Apr 2006
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
Jon~ Please describe your swollen feeling neck. Thanks...Timaca
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
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posted
Well theres not much to describe... it just feels.. well swollen. Like the sides are puffing out. It has nothing to do with the lymph nodes i dont think because it feels very different. Visually I can't notice a thing. In the mornings i never have this sensation, it comes on mid afternoon through the night. Sometimes it goes up the back of my neck to my head.
Someone said this is a lyme related symptom?
Posts: 170 | From Vancouver | Registered: Apr 2006
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posted
trails, I'm on mepron and ketek- 3 weeks. I understand what you mean. I'm much worse than ever.
I feel like I just need to rest all the time and do nothing. My walking, which is my worst babs symptom, stinks the most. Balance? Forget it.
For those that improve right away, well they're just real lucky. I wish I could say the same. . .
If only I knew if symptoms will improve at some point. I'm just really hoping that they do. I figure it's a herx, no?
-------------------- Be well, SAK
Posts: 371 | From Up North | Registered: May 2005
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cactus
Frequent Contributor (1K+ posts)
Member # 7347
posted
Same for me. I have a soup of TBD symptoms until I start treating for babs, then suddenly have loads of babs-type symptoms.
My last go-round of babs treatment (6 mos total on Mepron and various macrolides), I did start to feel less, ummm, babesia-y about 4 - 5 months in.
Just started treating again recently (this time for WA-1), and I've got all the old babs symptoms again - much worse than pre-treatment.
Same symptoms painted turtle listed, plus fevers, sweats, and burning hands and feet - my hands/feet actually radiate heat. (A plus for my partner, who likes having an instant heating pad for sore muscles!)
I know this doesn't answer your question, exactly, but we seem to be responding similarly.
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
Hi All I took 5 bottles of Mepron and I did not herx at all--
I did feel better tho --perty quickly--
It is Super Important to take Mepron with greases Food-- Animal fat seems to work the Best--
The grease make the mepron absorb over twice as good into the body--
When I switch from mepron to Bactrim DS I herxed 19 solid days--Ouch
I have been on bactrim -artimisinin- and Biaxin and some doxi for 5 months now and I still herx of and on--
My doc told me that some people dont herx --mostly men--Jay--
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
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posted
I have been treating babesia for about 6 months (first mepron/zith then ketek/alinia). I was also told to expect immediate improvement and smooth sailing. I have herxed harder on this treatment than I EVER did on lyme treatment, and continue to herx hard 6 months later. I think that I am clearing lyme as well as babs, and maybe other co-infections. I am making progress slowly, but it still hurts!
Good luck!
Posts: 393 | From Washington, DC | Registered: Jun 2005
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trails
Frequent Contributor (1K+ posts)
Member # 1620
posted
I am feeling less alone. THis is good. Thanks so much for helping me feel that I am not the only one floudering about on this treatment!
I dont know what to make of it. How strange to only get babs-like symptoms while treating for it....dont you think? Any "normal' person would stop treamtent and go about their life in denial.
Too bad I am not so normal. trails Posts: 1950 | From New Mexico | Registered: Sep 2001
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JimBoB
Unregistered
posted
I am treating Babs with Artemisia annua, ONLY. Along with treating for Lyme with other herbs.
I don't start to herx now till into it for about two weeks or more. THat is at the lower dose of 600mg a day. When I was on 1200mg a day, I herxed sooner. WHEN I start to herx, I quit it for two weeks. I am off of it now.
I have had some balance problems lately again, at times, but that could be something else.
I will go back on Artemisia annua again in a week or so. See how I react. I do take Red Root tincture with it three times a day, so as to keep the lymph system clear of the poisons from kill off.
shazdancer
Frequent Contributor (1K+ posts)
Member # 1436
posted
Treating for Lyme, I don't particularly herx in cycles. I just feel like caca all over!
But on Mepron/Zith, I first felt worse around day 4. I read after the fact that this is classic for that combo, but I didn't know it at the time. Then at the 4 week mark, I got knocked on my tushy. I had a love affair with my bed. It was like having a bad flu on top of already feeling sick.
Whichever way your body reacts, I hope you feel better soon.
Take care, Shaz
Posts: 1558 | From the Berkshires | Registered: Jul 2001
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posted
I had a horrible herx when I first went on the ketek -- pretty much all babs-like symptoms - - horrendous headache, stiff neck, sweats, chills, and eventually full-blown meningitis (with vomiting, etc.) That was what made me think maybe babs was the problem, since I know ketek is used to treat it.
Since adding in the artemisinin and mepron, I've been feeling better and better every day! I may herx when the growth cycle comes around, but for now, I feel remarkably better.
-------------------- "Looks like freedom but it feels like death.. It's something in between, I guess"
Leonard Cohen, from the song "Closing Time" Posts: 822 | From California | Registered: Jan 2006
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liz28
Unregistered
posted
Trails--
I've been doing very well on a new babesia protocol this week, but it was done in the reverse order from the way you're supposed to do it, because I was figuring it out just by reading Google day after day.
Primaquine was done first, and it caused a huge babesia relapse AND a torrential Lyme relapse that lasted a month. Then I added the chloroquine using the dosages prescribed for plasmodium vivax. But please understand that this is a new treatment, that I've never been officially diagnosed with babesia, and that there are many different species of this disease out there, which vary in their responses to treatment. Furthermore, I am not a medical professional, am not recommending or suggesting this treatment to anyone, and cannot speak for its effectiveness regarding either malaria or babesia.
Remember that malaria is not approached in the same slowpoke way that Lyme is. Lyme patients expect an antibiotic to take months and months to work. But malaria can be lethal, so that medical community is always seeking drugs that work FAST.
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