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* ANTIMONY - 0.002 right on NORMAL border line;

* ARSENIC - HIGH 0.33; above .029

* CADMIUM - LOW 0.00; normal 0..001

* THALLIUM - HIGH .1538 over normal .0600

* TIN - High .0022 OVER NORMAL .0009

* They had commentary here; but it was meant for a MD; not this patient; not user-friendly at all trying to figure out what they were saying.

* I was off ALL abx while these 6 boxes of special tests were done. I emailed asking if I should stay off for now or go back on until our June 5th app. STAY OFF until our next appt.

* Front desk asked if I did the DETOX correctly using the NO-DOZ pills. There was a problem w/that. She said they couldn't get the caffeine from my sample; meant nothing to me. They could send me another test kit.

* This is ONLY the 3rd lab reports received to date; countless others still to come!

* bjg
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Bettyg's 4-20-06 LLMD's summary & beginning of test results......more to come; 1 test being sent Monday, May 8; 4 wks. for rsults.

FYI - Dr. V will SEE CHILDREN WITH LYME! Someone asked; I didn't know but emailed & this was the answer !

Hi everyone! I said I would fill you all in when I know more. It's going to be another 3-4 weeks BEFORE ALL are in, but decided to start typing this up before I get so far behind I don't know where to start.

For those of you who may be following this thread in future, UPDATES will be at the BEGINNING of the post...above here! Then you won't have to try to find out where the old stops and new info starts.

1. Today, I received a receipt from GENOVA DIAGNOSTICS, formerly Great Smokies DX Labs, NC, paid $399.00 for:

1 DETOXI "GENOMIC" PROFILE PANEL. Not having any idea what this was, I went to my copies of ALL LAB SLIPS. "IBS genetic risk for detoxification defects that may continue to CHEMICAL SENSITIVITIES, ABNORMAL TOXINS METABOLISM, & OXIDATIVE STRESS."

In very small print, I read where this "genomic" testing is for investigational use only and has NOT been approved by the FDA! Geneovations profiles are intended to ID individuals pre-disposed to CHRONIC DISEASE STATES, rather than to diagnose illness or specific diseases.

For these reasons, Medicare & most insurance companies will NOT CONSIDER the profiles to be REIMBURSABLE .

Genomic tests are NOT intended for insurance claim filing to ensure "privacy and confidentiality ."

So looks this is 1 of 4 or 5 Dr. V. mentioned could NOT be reimbursed by insurance or medicare!
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Lab results for MDL in NJ, for 15 blood tests. I'll note ABNORMAL only:

labs suppuration of CHRONIC ACTIVE HHV6.

1. EBV-VCA IGG/IGM by Elisa;
IGG POSITIVE = 5.40, little high.

2. EBV-EBNA-1 IGG/IGM by Elisa,
IGG POSITIVE = 3.99; above 1.09 POSITIVE

3. EBV-EA-D IGG/IGM by Elisa
IGM positive index - 1.11; above 1.09 pos.

4. HERPES SIMPLEX VIRUS, HSV 1 & 2 IGG/IGM by Elisa, IGM positive index - 1.30; above 1.09 pos.

5. HUMAN HERPES VIRUS-6, HHV-6, IGG only by Elisa
IGG positive, ODR - 10.59 "VERY HIGH" above 0.99
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LAB CORP - Kansas City .. Abnormals only:

NK1, D57 panel - Abs. CD8 - CF57 + lymphs 50 low...(see below CD57).
White blood cells count, WBC 10.9 HIGH; normal to 10.5;
RDW 16.2 High; NORMAL TO 15.0;
PLATELETS 439 HIGH; normal to 415;
neutrophils/absolute = 7.5 she had highlighted; normal to 7.8

Glucose, serum 173 HIGH, diabetes, yes on glyburide; can't read rest!
BUN/creatine ratio 31 HIGH DEHYDRATED; normal to 27
Potassium, serum 3.2 LOW; low 3.5 - 5.5 high
MED RX potassium K-DUR 20 meg ; 1 daily; refrigerate after opening!
CRP, c-reactive protein, CARDIAC 35.40 high; normal to 3.00
Relative risk for future cardiovascular event

Dehydroepiandrosterone, DHEA-SULFATE - 23 low; low is 26

Then came this suprise statement on this lab slip at the top!

LAB CORP - Comment: "in the context of a TRANSPLANT, labcorp strongly urges timely consultation with an HLA knowledgeable transplant physician or other HLA transplant professional for the appropriate clinic interpretation of a match between patient and potential donors .

Dr. V, this statement scares the hell out of me not knowing what in the world they are talking about; which organ? Please have someone explain this briefly to me please.

I emailed promptly to Dr. V's front desk; 1 hr. later I had a return email. They got everything straightened out with LabCorp; "I will not be billed for a test run in error!" So watch your bill/lab slips carefully folks ! I was really trying not to panic, but it works on the sub-conscious!

With enclosure from Dr. B explaining CD57, natural killer function. "Used to help determine how ACTIVE THE INFECTION IS, how well the treatment is working, and whether after treatment ends, a relapse is likely to occur! This is how it works!

Chronic Lyme infections are known to suppress the immune system. The lyme spirochete can affect ALL MAJOR CELL TYPES of the immune system, but it most clearly can impact a specific subset of the natural killer cells. This is called the CD-57 subset.

Just as in HIV infection, which suppresses T-Cell counts, lyme suppresses killer cell counts. As in HIV infection, where abnormally low T-Cell counts are routinely used as a marker of how active the infection is, in lyme, we can use the CD-57 count to indicate how active the lyme infection is.

When lyme is ACTIVE, the CD57 count is suppressed. We currently are having our tests run by LAB CORP, a SPECIFIC CALIFORNIA BRANCH OF LAB CORP RUNS THIS TEST.

At this lab, the expected range for the CD57 count is ABOVE 60.

In my experience, those who do NOT have lyme, or those who are CURED of their infection, typically have counts ABOVE 180!

However, in the chronic lyme patient, CD57 counts are usually WELL BELOW 60.

This test can be run a the start of therapy, then EVERY SEVERAL MONTHS to document the effectiveness of treatment. One hopes to see a rising trend over time.

When antibiotic therapy is finally at an END, if the CD57 count is NOT in the normal range, than a lyme relapse is MORE LIKELY TO OCCUR.

Because at this point, we believe that only BORRELIA will affect the CD57 this way, a sick patient with a HIGH CD57, is probably ill with SOMETHING OTHER THAN LYME, SUCH AS A CO-INFECTION.

BEFORE you have a CD57 test run, BE SURE IT WILL BE SENT TO THE PROPER BRANCH OF LAB CORP. Otherwise, they probably will do the WRONG TEST, wasting your MONEY AND TIME!
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SUMMARY FROM DR. V. of our 3 hr. thorough exam:

(Came in very small type, so Betty asked them to send results as an attachment minus her date of birth & she'd copy to word processor making font larger, type size, & breaking up long paragraphs later in report. No can't do that; we'll have someone enlarge for your eyesight. FYI, future Dr. V patients!)

Chief complaints: photosensitivity/sound sensitivity; pain; irritable bowel/bladder, and debilitating fatigue.

Diet history: She does eat foods w/partially-HYDROGENATED vegetable fat & was unaware of the dangers of that!

Allergy history: Symptoms are worse in spring and feels better when cloudy days occur. Craves: dairy, pasta, peanut butter, corn chips, jelly, corn, and potatoes. Diarrhea occurs w/watermelon and pizza. Gas from baked beans. Sensitive to dust, diesel, & scents.

Meds I got down from 19 to 13 at the time I saw Dr. V.

Other medical illnesses: she listed 21, and my 12 surgeries.

YEAST OVERGROWTH score: POSITIVE; more than 130 is positive; Betty's s 334!
Oropharynx reveals, thick, white coated tongue consistent with oral candidiasis.

Multiple amalgams noted; teeth in good repair.
Parasites: may be at risk with history of working on a farm.

Skin: itchy rash behind her ears. Gets rash on her forearm that has been diagnosed as LUPUS.

Neurotoxin symptom survey: possible exposure to mold in bedroom and basement. Husband has tremors, high risk for stachyboitius; has lyme disease. No history of a tick bite. Unaware of a rash.

VISUAL CONTRAST SENSITIVITY, VCS, test is POSITIVE, and neurotoxin symptom score is positive.

BECK INVENTORY - only positive for 2 psychological and 19 physical symptom.

ASSESSMENT:
CFIDS, chronic fatigue immune deficiency syndrome, fibromyalgia pain with contributing factors including the following:

ALLERGIES

I suspect both inhaled, environmental and ingested allergies are playing a major contribution towards impaired immune response based on history, physical exam.

Will check on this in several ways with the ELIMINATION DIET, with Meridian Valley food sensitivities, and with the Entero Lab for fecal antigliaden, fecal antitissue transglutaminase, and fecal fat.

Also will check the CDSA STOOL test for malabsorption of fats, carbs, and proteins.

In my experience, problems with ingesting foods that one is sensitive to causes something called "LEAKY GUT SYNDROME" in which UNDIGESTED PROTEINS pass thru the barrier from the digestive tract into the blood.

These toxins are identified as enemies and the body makes antibodies against it. It is often associated with other autoimmune disorders; ushc as, HASHIMOTO'S THYROIDIS and lupus.
She has evidence of LUPUS with her skin rashes.

She also has had evidence of HASHIMOTO'S THYROIDITIS with symptoms of HYPER & HYPOthyroid over the years.

2. MALNUTRITION with chronic malnutrition for a number of years. i Suspect she is going to have nutrional deficiencies, possibly HEAVY METAL TOXICITY which will be tested for.

3. INFECTIONS; mononucleosis and lyme disease have definitely contributed.

Also in my experience, people with PENICILLIN ALLERGIES are very allergic to molds of ALL types.
She has chronic yeast growing in her DIGESTIVE TRACT and in her vagina historically.
These molds can make micro toxins and can add to her illness.


---->< In addition, symptoms of CHRONIC SINUSITIS are probably contributing, especially STAPH COAT NEGATIVE can cause neurotoxins causing ALL OF HER SYMPTOMS!

HORMONAL IMBALANCE WITH MENOPAUSAL SYMPTOM & HYPOTHYROID. History of endometriosis. FYI, There is a study done in monkeys with exposure to dioxins which cause endometriosis. ENVIRONMENT DIOXINS can be contributing.

SLEEP DISORDER WITH SLEEP APNEA AND RESTLESS LEG SYNDROME "UNTREATED".

Other medical illnesses:
Diabetes;
Scoliois;
Arthritis;
Neuropathy presumed due to RADICULOPATHY IN HER SPINE;
Hyperlipidemia;
Hypothyroid.

PLAN:

She is going to do the ELIMINATION DIET. Lab work is ordered and will come back to her. She is going to look thru her house; do a MOLD ELIMINATION.

She needs help with bathing and housework. Hopefully, her primary care MD will order this. (We no longer can get out of our tub; we don't have a shower.)

Dr. V copied my PCP. uffda...done typing!
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Betty's original post about her personal feedback from her April 20, 06 visit in Minn. On how the 3 hr. visit went:
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=043234

[ 16. June 2006, 11:54 PM: Message edited by: bettyg ]

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quote:

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Originally posted by bettyg:

Then came this suprise statement on this lab slip at the top!

LAB CORP - Comment: "in the context of a TRANSPLANT, labcorp strongly urges timely consultation with an HLA knowledgeable transplant physician or other HLA transplant professional for the appropriate clinic interpretation of a match between patient and potential donors . get_topic;f=1;t=043234

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Betty, just to clarify on this one, the HLA tests are simply the ones run to find out what your genetic susceptibilities are to Lyme and mold toxins. They have that warning listed on the lab slip because the same genetyping is used when they do transplants, but that is NOT why you had it run.

The Mold Warriors protocol is the one where you want this typing done. Also, there are a few other genetic susceptibilities that can show up, but usually those are tested for individually. You just had the whole panel done.

It sounds like this info will give your doctor a good picture of where to focus your treatment. You didn't say what the results were on your Genomics profile, but this one is very useful in finding out what detox pathways are damaged in your body. There are then supplement protocols that can be used to support the problems, possibly helping with your chemical sensitivity.

Thanks for posting your info. It is helpful to see how the whole profile can be put together. Good luck with your treatment!


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Sonoma County Lyme Support
[email protected]

Posts: 2142 | From California | Registered: Nov 2003  |  IP: Logged | 

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Originally posted by riversinger:

quote:

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Originally posted by bettyg:
Then came this suprise statement on this lab slip at the top!

LAB CORP - Comment: "in the context of a TRANSPLANT, labcorp strongly urges timely consultation with an HLA knowledgeable transplant physician or other HLA transplant professional for the appropriate clinic interpretation of a match between patient and potential donors .

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Betty, just to clarify on this one, the HLA tests are simply the ones run to find out what your genetic susceptibilities are to Lyme and mold toxins. They have that warning listed on the lab slip because the same genetyping is used when they do transplants, but that is NOT why you had it run.

The Mold Warriors protocol is the one where you want this typing done. Also, there are a few other genetic susceptibilities that can show up, but usually those are tested for individually. You just had the whole panel done.

It sounds like this info will give your doctor a good picture of where to focus your treatment.

You didn't say what the results were on your Genomics profile, but this one is very useful in finding out what detox pathways are damaged in your body.

There are then supplement protocols that can be used to support the problems, possibly helping with your chemical sensitivity.

Thanks for posting your info. It is helpful to see how the whole profile can be put together. Good luck with your treatment!

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Riversinger, THANK YOU for your wonderful explanation of things! I know nothing about the above subjects of new diagnosis, etc., but it was the TRANSPLANT thing that scared me to death!

I would like to start learning about my new illnesses; if you have a previous post, etc. to help me, please post it so this "baby" of 57 can start crawling to my 1st steps. LOL

I have NOT received the results of the test; only the billing receipt.

Scott, "So the doctor is suggesting that Lyme is not an issue?" She did not say anything about lyme, but she is looking for that "needle in the haystack"; going back to the beginning of things to start at that point and address health illnesses NEVER treated or acknowledged.

Once ALL my tests come back, we'll have the total picture, and then she will inform me where we go from there. Thank you all for your comments back. Bettyg

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Originally posted by snowflake:
First, I have to say that I am surprised your LLMD would want you writing her information here on this board. Didn't you say previously that she did not want you to tape the conversation because someone wrote it on the web?

YES, I did say that. FYI, on my cover letter with summary and 1 set of labs, she stated, "I am including a copy of your recent med notes to keep as part of your permanet records or share with your primary care provideer as preferred."

Also, an email addressing the transplant problem stated, "Anything you receive from us, summaries and lab results included, are now YOUR property, and you are FREE to disclose and DISCUSS THEM WITH ANYONE YOU PREFER." So that means my fellow lymies on this board thank you.

It has been warned here before that discussing specific treatment protocols for Dr's could be dangerous to the LLMD's. Just be careful!

Thank you snow for the kind reminder.

Ok about your labs. Did she check your A1C level? Your glucose was high and until you get your diabetes under control perhaps all the other issues will be difficult to address. Diabetes causes problems with kidneys (your labs) and vision and high cholesterol.

A1C is now down to 6.9; which was done 2 wks. prior to my going there. I had it down to 6.1 before the previous llmd kept changing my lyme meds.

My chronic lyme & diabetes 2 both came within 6 months of each other, and I've been sturggling since day 1. Other patients of the llmd I was seeing was having the same problems.

1-2-06, PCP put me on diabetes med, glyburide. For 2 years I was on diet & exercise only.

What kind of diet have you been on for this prior to seeing your new LLMD?

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