posted
I'm trying to figure out what's plaging me, I think its these biting pepper mites and I think these are also what causes (or is) Morgellons. This company makes a product called "Kleen Free" and no I'm not a salesperson or benefit from it in anyway. I have the creepy crawlies bad, I'm not on abx and haven't been for years, this is a new syptom for me, I thought it was scabies but now 97% sure it is not. Has anybody tried this stuff?
This crawling is driving me crazy, it really doesn't even itch that much, just feels like 10,000 bugs a crawling over my entire body, I think I have seen the pepper too and glistening specs?
Posts: 121 | From Memphis, TN | Registered: Dec 2004
| IP: Logged |
posted
I also just read the most amazing thing, a post with 6 pages, if you have Morgellons give this a read, just spent an hour reading through the posts, astounding is all I can say
posted
Yes my family uses at least 1-2 gallons a month.
It is the only thing that helps us.
After ordering it for several months. The lady that sells it told me about the Morgellons website.
That is how I knew the whole family needed to be tested for lyme.
(Several years ago it said something like 94% of the people presenting with symptoms of Morgellons test positive for Bb. This info is now missing from the website. In my honest opinion I can only think that it is to encourage the CDC to look further. Why link it to something like Lyme Disease that doesn't get the respect it deserves from them already)
She is awesome! Very caring and knowledgable.
Black pepper mites is what is coming out of US.
Not a critter!
I was beginning to wonder! You were resurrecting ancient posts to tell about Scabies.
Sorry that you have Morgellons!
PM me if you want more info.
Lyme x 9
Posts: 399 | From Texas | Registered: Apr 2005
| IP: Logged |
posted
Do you think you can ever totally eliminate them? It seems like it would be possible? Given that Kleen Free does so much good why doesn't somebody take it the next step to a total cure?
Posts: 121 | From Memphis, TN | Registered: Dec 2004
| IP: Logged |
posted
Also, how can I tell if I really have them. I have creepy crawly sensations, more like biting than itching, no real marks on my body at all.
Posts: 121 | From Memphis, TN | Registered: Dec 2004
| IP: Logged |
Since you can't safely drink Kleen Free I doubt it.
(Also I never claimed it is a cure. It dried up my lesions and they healed. It kept us from scratching our skin off. It relieves the itching but you have to keep using it. My baby would ask me to spray her with enzymes. So she knew it helped. My oldest can't stand it it burns his skin. I can't spray him with it, but I can sneak a little in his bath tub very, very diluted.)
They are coming from the inside out.
Lyme treatment helps but when we go off antibiotics we get very symptomatic again.
Since they can't even figure out what it is, it is difficult to figure out how to treat it.
Hopefully the loss of Travis will shed some light
on this situation. Since the MRF, the CDC, and
others have asked for tissue samples from the
autopsy.
This is more than a topical disease. Since it
affects people neurologically. Since the
symptoms began I have had 2 children tested
Neuropsychologically and the oldest one tested
with a
Processing speed of 3%, ADD and ODD with frontal
lobe issues.
The other is borderline ADD, with some frontal
lobe issues, but that was a year ago. He is now
suffering from major short term memory loss. You
can't tell
him to do 2 things he will only remember 1.
These are kids that always got straight A's and
were always nominated for gifted classification
till this started.
lyme x 9
Posts: 399 | From Texas | Registered: Apr 2005
| IP: Logged |
But you said you feel more of the stinging and biting.
Does your head itch and feel like things are crawling in it?
Mine was so bad that I used Vinegar on my head last year. White distilled. It works but be careful it can really burn your face.
But you can buy a lighted magnifier from Radio Shack for about $10.
Or try putting white lotion on your arm or where ever you have the most activity and you might see little black or glittery flecks in the lotion.
If you see little black specks around your house or on your skin. That is part of it. Or little C shaped black things.
And they are tiny. When we first got them I could see them with the naked eye.
(My baby would scream when they exited her skin especially on her face and near her ears. Mostly when she got in sunlight or in the car but my eyesight declined very rapidly. And I began to need the lighted scope to see them.)
Everyone is different.
My older children all just itch and feel the crawling.
But my baby and I had much more severe reactions. I broke out with lesions and still have purple scars and thickened skin where they were. That was about 2 years ago. But I only had 2 rounds of the lesions. Thank God!
My baby still has a place on her back that looks like a bite. She has had it for 2 years and it swells up.
But she would scream this horrible scream and cry when they were coming out. This is when I finally figured out they were coming out of us. If I would remove it she would instantly stop crying. I would have to pull off the road and do this because I thought she was going to have a seizure she would almost stop breathing she would cry so hard.
This is so scary. Because no one believes you. I finally have 4 Dr's that have patients that suffer from this.
Since after the 1st and last trip to the Ped Derm he told mine and my baby's Dr that I needed a referral to a Dermatological Psychiatrist and that my lesions were self inflicted.
Sorry this is so garbled. I am still very bitter about this. And it almost seems unreal how bad it used to be. I mean we still have black specks coming out of our skin. But we have managed to not pass this to the other 4 people that are lyme positive in our family. So we need to be thankful for that.
Lyme x 9
Posts: 399 | From Texas | Registered: Apr 2005
| IP: Logged |
posted
My itchy scalp and back started like a month ago, I've had lyme for like a decade, I'm terribly afraid of giving it to my kids, how can I make sure I don't, yes, crawling, strangely today I saw with my naked eye what looked like a mite, not so small really, running across my arm, could be a coincidence, but it moved very fast. I'm trying to catch one if I can, it was light brown in color, so perhaps these are just topical mites, cannot tell.
Posts: 121 | From Memphis, TN | Registered: Dec 2004
| IP: Logged |
posted
Let me add that mostly its a crawling sensation and biting, not really alot of itching, it does itch but not like I'm scratching it raw or anthing and my skin for the most part looks perfectly fine, I am losing my hair on my head kind of quickly, started a year ago but then I'm 43 so that might be just normal.
Posts: 121 | From Memphis, TN | Registered: Dec 2004
| IP: Logged |
So you see legs? Some people just end up finding they have a type of bird mite coming down their chimney, etc.
But be careful. When you bring things in a baggie to the DR, etc. They consider this matchbox syndrome and diagnose you DOP.
I took things to the Vet, County Extension, Pest Control etc.
Vets are always the most helpful. But when they can't identify it. There isn't much you can do.
County Extension will just tell you there aren't any mites being reported in the area.
Pest Control is always going to tell you that you need extensive spraying of the premise. (Expensive and Dangerous)
But also there are others who have both. Some had an infestation of lice, mites, beg bugs, etc. Before this. Still others had water damage and mold issues.
That was one of the first things I did was have my house tested for mold. When this all started.
Originally they (the NPA - The National Pedicule
Association) thought that Collembola was the
culprit because it was found in some of the
peoples' skin scrapings. The NPA started
studying it because there were so many people
calling about head lice. But they couldn't find
lice or nits. And their whole body crawled,
especially their heads. They
realized these people didn't have lice just
those type of complaints.
When we had it in the beginning. It was in our blood, urine, nasal secretions, and in our mouths. I don't really look anymore because it is too nerve-racking.
Our noses still itch all the time along with our ears. It feels like things are crawling in them.
If you have had lyme for 10 years, are you being treated now? How old are your kids? Have they been tested?
lyme x 9
Posts: 399 | From Texas | Registered: Apr 2005
| IP: Logged |
posted
No, I'm not being treated, haven't been for like 6 years now, I went off abx and just resigned to die, but guess what, I'm far better now than I was then, but it's a gradual getting better with fall backs, I think what I had on me was a no-see-um, I was outside and haven't seen anymore though I have the creepy-crawlies. My kids are 9, 6, 4 and all fine, we lived in Connecticut when we got married but moved to Seattle, that's where our kids were born, we now live in Indiana, anyway, I don't think I'm going to go down the heavy Morgellons path for long, a year maybe, I just did a year or two of bad cardiac stuff but that's seem to move on, it's one thing after another, just when you resign to having some symptom forever it's gone and the next new craze is in town, mine now is the creepy-crawlies, however, the strange thing is I feel pretty healthy and have for a while, it's not like I'm terrible sick and my immune system is in the tank. I was treated for scabies but now I don't think that was really what I had at all, however, I bought some Dexoprin when I was sure I had it and it should be here tomorrow, I'm going to treat myself with it and see if it rids me of the creeps, it's all natural and seem like it would be good for me anyway. Meantime I'm bulking up herbs and immune builders just in case.
I'll let you know what happens ...
Posts: 121 | From Memphis, TN | Registered: Dec 2004
| IP: Logged |
posted
Oh, sorry, I'm 43 and got lyme in Connecticut where we hiked every weekend, I found the tick on me the next morning, had a red circle around it but only the size of a dime, pull the tick off (which was like a dot) and called the clinic, they said "Don't worry about it, if I had everybody in this county bitten by a tick on anti-biotics we'd all be on it", a week or so later my life changed for ever, did like 18 months straight of tetracycline and then other anti-biotics intermittantly, I probably have babs but I'm toughing this crap out. Actually, I was wrong, it's been like 13/14 years of lyme, 1992 was when I got it. I'll never forget the drive out to Seattle when we moved, I remember stopping at a bride just before we crossed the Missisippi, I remember thinking for sure I'd be dead in 6 months, I looked like hell, was sick as a dog, then far away from my doctor in CT I was alone with nobody that new anything about lyme, decided that was it, but lo and behold here I am, thank God.
Posts: 121 | From Memphis, TN | Registered: Dec 2004
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Eek!]](eek.gif)
Printer-friendly view of this topic