Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Our 'Dr. Duckles', graciously helped w/ some of the blood tests for the lab,that our LLND ordered before the cancellation of my appt.
We are still going to try to arrange a new appt after Aug.1st as asked,and see if they will correct some misinformation on my medical charting records [I spoke of this on another thread]. We'll see what happens.
Long story short, several of the tests are hightly suspicious and point to Diabetes, 'Dr. Duckles' wants a fasting blood draw done,to see whats up. Diabetes runs in my family,and I've had somewhat high blood sugars on more than one occasion.
'Dr. Duckles' seemed willing ot listen to our concerns,and why the LLDrs wanted to test me for LD,BArtonella and etc. He still tends to believe that 4 to 8 weeks of Doxy' should kill of this stuff [2 hundred Mg a day ] He definetley concedes that a person can be bitten and not realize which could lead to problems later on.
He will do the Igenex blood draws if we want to oreder it ourselves and save $200 to $300[depending on whether we do the BArt test]. He even watns to get the LLDr.s take on this,and check about a couple of tests they ordered that are hard to get local labs to do [ depending on what they need and why,we may be able to get some done,that will tell what they need to know ].
I'm greatful 'Dr. Duckles' is willing to try. We are not having much luck finding other LLDR's in case Team NN and their ' Business Mnaagement Issues'/ incorrect info' filed ' doesn't work out.
One Supposed LL'Drs. receptionist we called was supposed to give us info on a 'Specialist for Lyme Disease', and said they have a couple of LYme patients but normally refer them out, havent heard anything.
ANother has a LLMD about 3 hours from us, but they don't do the insurance bit,and one has to bring 'X' amount, the info they sent was confusing... as far as fees. And not being rich we can't come up with more than a half grand or so at a given time[and that is pushing our limits].
We're are already,trying to work w/ the local Utility companies,and they only will let things slide for so long...typical stories,most of you have simular things happening.
Sorry ,I'm wandering a bit here,as to the original question. Is it comon for folk to HAve One form or another of Sugar disease/Diabetes,etc. and Lyme/coinfectants?
Thanks for being patient w/ me and for any responses and tho'ts.
They are also suspicious hteir may be Gluten Intolerance or outright Celeiac's disaease, we are tryin got find a test htat hte labs here will do [sometimes the lab folk are just plain odd... ].
Silverwolf...wandering,and trying to figure otu what is safe to eat now...
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Marnie
Frequent Contributor (5K+ posts)
Member # 773
posted
Ethanol from the fermentation of sugar (all spirochetes do this...ferment sugar) is really harmful to the pancreas.
A sugar loving pathogen really stresses the pancreas.
Enzymes in the pancreas are also needed to digest gluten.
The gluten free diet is not esp. tasty or fun - limits "fast food restaurants". Researchers have identified the 2 enzymes nec. to digest gluten and like taking Lactaid pills to help digest dairy...someday there will be a pill you can take to help digest gluten products. They are working on it right now.
Celiac can be a recessive gene. It can be present and not be realized. Gluten acts as an "allergen". Some viruses can trigger this too. One usually sees the Th2 pathway upregulated. In lyme, the Th1 pathway is upregulated.
If co-infected, the body has to chose which pathogen is the greatest (immediate) threat.
Blood sugar up -> insulin released. When level is "right", other pancreatic cells release glucagon to "halt". Insulin then glucagon, insulin then glucagon...
Alpha cells, beta cells, alpha cells, beta cells...working hard to try to keep your blood sugar at the right level.
Beta cells take the worse hit. These are the glucagon producing cells. Alpha cells produce insulin.
SMART body...halt insulin...insulin ACTIVATES the enzyme PFK which many pathogens are dependent on.
All of our cells of all of our organs need (and have) Mg-ATP inside of them. Too little Mg = problems.
The links between Mg levels and diabetes is very strong...and gets complicated.
"Google" the words "Magnesium diabetes"...you will get over 2000 links to read.
If you are not allergic to cinnamon, it will help with late onset diabetes. This is well known and "accepted".
Also, there is a product called "Gluco Reg" by Solaray. It is chromium + lots of acids. It helped my mom, but took about 3 months to really "kick in" to control her late onset borderline diabetes. The drugs = frequent visits to the bathroom. The natural product worked without this "side effect".
P.S. From what I've read, it takes a month on a gluten free diet to realize, "Hey, I have a gluten intolerance. I feel GREAT when I don't eat foods that contain gluten."
This intolerance is on the rise.
Posts: 9424 | From Sunshine State | Registered: Mar 2001
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
<<<<< Marnie >>>>> Thank You Chere` for the info', I'm still learning and trying to figure out things,but what I am able to understand of this, makes sense as to the ethanol and sugars,and the gluten intolerance.
I still really wonder if both my parents might have LD. Dads folks both had sugar disease,both borderline. Ond toward diabetes,the other toward Hypoglycemia. Dad and his sister have diabetes[dads is now controlled by diet only].
He and mom have had a lot of health issues,that make me wonder about the Lyme possiblitiy [I've mentioned things here and there in my posts ].
Have to go off-line for a bit [good ol' dial-up... ] but will BBL if I am able. thanx again for the info'!
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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bettyg
Unregistered
posted
I have diabetes 2 dx 6 months prior to my CORRECT CHRONIC LYME DX 6-04 after being misdx for 34 yrs. of my lyme disease.
4-06 found out I have gluten intolerance...allergic to wheat & rye; NOT CELIAC disease since I did NOT have a biopsy to prove this.
I don't have my link handy, but if you do a search of my 4-20-06 LLMD summary & lab results, I listed in there ALL the labs doing complete body tests & all literature they sent with my results!
you can do an elimination diet, and find out if you are allergic to certain foods without doing the BLOOD TESTS. If you are interested, please PM me and send me your home email address so I can send it there since it is lengthy as I enlarged it for my bad eyesight. Bettyg
Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Heylloo, Betty i bumped oneof your posts up, search wouldn't let me go before the month of May.
ALos I PM'ed you. ANd If more than two messeges came in,I do apologize.
Between my brainfog-confusion and our computer glitches, a message may have repeated...I hope not...
I hit hte 'back key' a couple times when I was doing searches. It went to the 'pm message sent,or being sent.
Thanks for the info' I greatly appreciate it! from Silverwolf.
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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bettyg
Unregistered
posted
fyi, went looking for my larger typed font of ELIMINATION DIET but it was typed in wordperfect, which I learned on. LOST ALL MY SOFTWARE 2 months ago; will try to reinstall AGAIN my wordperfect, and maybe the pc will feel sorry for me and finally accept it after trying to reinstall at least 6 times!
I'll send it to you silver whenever WP is installed & correctly working again. Bettyg
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
<<<<< Bettyg >>>>> Thanks hon', I'm glad my pm's got to you!!!
Our 'Puter isn't working right,so sometimes i'm not sure how things will go thru.
Silverwolf a wanderin'!!!
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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lymemomtooo
Frequent Contributor (1K+ posts)
Member # 5396
posted
Hey Silverwolf, there is no known genetic link to diabetes in our family, except if it has anything to do with chocolate, my drug or choice..
sorry excuse the detour....But my daughter developed type 1 a couple of years into what we now know was lyme disease.
She ran hypo occasionally for a couple of years before the shoe dropped. If I could only go back and re-route the disease process. Good luck..lymemomtooo
Posts: 2360 | From SE PA | Registered: Mar 2004
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
<<<<< Lymemomtooo >>>>> thanx for your kind tho'ts! I hope your daughter is feeling better.
Chocolate is my drug of choice as well!!!
When TxCoord gets off work this evening,we have to figure out what we'll do as far as the blood draws etc. If we order the Western blot test from IgeneX we'll have to wait 'til it gets in .
Then we'll call kindly Dr. Duckles for the appt., if we're gonna wait a bit on that I'll prolly have to get jabbed early next week. . It has to be fasting for both blood sugars and WB,so o'po' me' will have to pray my beastly veins cooperate.
I can whimper realy well...and HOWOOool pretty well also. I'd better wander off for some dinner... Silverwolf tryin' not to drool... ya jus'hadda mention ...Chocolate...Mmmmmmnumnumooow...
I'll have to find some that's tasty and low sugar!!! This Wolf is hungry...BBL!!! I mus'be dood....I mus' not eat sugary stuffs... i'm in trubbble. chocolate cravin's are dangerous...hmmm should Ah live dangerouOOOOOssss.....
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Jill E.
Frequent Contributor (1K+ posts)
Member # 9121
posted
I can't speak with knowledge about the Lyme and Diabetes link (I have Lyme, but not diabetes) but I can speak to the genetic link between Type 1 diabetes and Celiac Disease. Both Type 1 and Celiac Disease are related genetically, and some people have both.
I had already gone gluten-free a couple of months prior to getting Lyme. I then started noticing that many Lyme patients either had Celiac Disease or celiac-like reactions and have mentioned this to a couple of LLMDs who concur.
Anyway, it makes sense to me that if one is genetically predisposed to Diabetes and Celiac Disease, they might get triggered by Lyme if not already triggered before Lyme.
The best lab for Celiac Disease testing (blood or genetic) is Prometheus Labs in San Diego. You do the blood test first, if positive you proceed to the small intestine biopsy. I went gluten-free before knowing I needed the biopsy and got too sick going back on gluten to have the biopsy (You MUST be eating gluten for the blood test and biopsy to be accurate).
However, you can get the Celiac Disease genetic testing to see if you are genetically predisposed without being on gluten. However, the genes are found in about 33 percent of the population but not everyone goes on to develop celiac, so the genes are not the whole story - there is a trigger, too.
Jill
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
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lymemomtooo
Frequent Contributor (1K+ posts)
Member # 5396
posted
My daughter was not positive for celiac but did have a low reaction to gliaden. She is better when she avoids most grain products..But this only happens when she is compliant and agreeable..
Posts: 2360 | From SE PA | Registered: Mar 2004
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Marnie
Frequent Contributor (5K+ posts)
Member # 773
posted
Man...buried in my files (fairly recently)...researchers now think...the neurotransmitters signal (from the outside of the cells), the genes (in the inside of the cells) to turn on/off.
What if a particular neurotransmitter is "deficient" or is "excessive"?
That makes what we eat really critical. The neurotransmitters need specific nutrients for us to make them.
Even Type 1...
Babies never, ever need insulin shots. What is protecting them if they inherited a gene to trigger diabetes?
Is it their higher Mg:Ca ratio?
Babies bones are soft (so we don't break them when/if we accidentally drop them getting them out of their soapy baths - just kidding), but in order to stand, to support the body...they have to start storing calcium to harden the bones and the ratio changes.
Posts: 9424 | From Sunshine State | Registered: Mar 2001
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
<<<<< JillE,Lymemomtoo,and Marnie >>>>>
I am strting to reaesrch a litlte bit,but I get confused even doing searches,so i sure apprecaite any info' given [hey at least I remebered there is a searc engine today... ].
We will be making an appt. for hte fasting blood draw soon ,I ordered the Igenex blood draw stuff today[ Westernblot #188,189],so will see what happens.I'll get them both out of the way together. ANd hope Dr. Duckles wont charge to much.he is usually reasonable,but says he should get lab tech wages sooo well see.
I did finally hear back from My Team NN Drs receptionists..long story but i have an appt. again mid Aug. Will bring any blood work lab reports we can get[ in case they didn't get forwarded], and will also have an MRI brainscan done.
Also heard form the other Dr receptionist that I was waiting on. So I have two second opinion Drs. if needed one is LL for sure,the other is dealing w/ some patients with LD and trying to learn.
So hopefully I'll know by the time of my appt. W/ Team NN if I have diabetes or not. I am hoping I don't but we'll see.
Thanks for the info' and kind tho'ts everyone! from Silverwolf silly-wanderer!
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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lymemomtooo
Frequent Contributor (1K+ posts)
Member # 5396
posted
Wolf, just to be cautious, cut back on carbs and sugars a bit until you get results back. You do not want an ER visit.
Also drink extra water to keep things flushed.. some exercise will also help to keep things from going too high..
Good luck..However, if you start getting angry and raging get to the ER..This is almost always a sign of a dangerous high with our daughter.
Posts: 2360 | From SE PA | Registered: Mar 2004
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
<<<<< Lmyemomtoo >>>>> I'll be sure and watch things closely,and tell Txcoord as well.
I did have a meal-shake awhile ago that has more sugars than I realized. I am curious if this highblood sugar issue has caused soem headche issues too?!!
TxCoord will know what to look for... about 11 years ago,I was having PT done on a tendon problem. While they were tapping[w/ a small electric stim' machine] a steroid cream into the skin over the affected area on the side of my wrist,under the thumb area [less damaging than shots] I was also using a prescription nasal allergy spray [ we did not know it also had a steroid compound in it].Nor did the PT Doc realize...
I kept getting headaches every day after therapy,and it got to were I was throwing things,like metal buckets. I would get very angry for no reason, and once told TxCoord he needed to go away for awhile.
He had to carefully explain that I had the car keys inside,and could he get them. Later he took me for a drive just to relax [brave man than he is... a love of a big teddy bear]. I then asked ,if he, were going to kill me... I was a mess,and I thank crator for a patient husband!
We eventually found out what it was coming from, and i do not touch anything w/ steroids w/ the exception of my inhaler[ and then only if I falt out cannot breathe and nothing else is working, some bad allergies].
I don't use it if I don't absolutley have too. It is prolly past date now. I've had it for a couple of years. I used it last July after getting a hold of oats unknowingly and thats been the last time. [TxCoord has also worked around folk who have diabetic problems and seen them get angry, and waht happens after they eat something etc. to calm it down].
So I think no more sugary stuff for me, I hope it isn't diabetes,but I still will have to lay of the sugary stuff [my usual downfall is the divine ...er "drug"... Chocolate. Isn't chocolate a veggie? LOL it comes from a bean... .
Think I'll ask TxCoord to obsserve how I am acting etc after i've had anything sugary[tho' I'll be curtailing that].I do remember him glancing at me sideways, some years back when we watched 'Steel Magnolias'. The beauty parlor seen where Shelby lost it,and they gave her Orange juice and a candy bar.
I've done fasting blood tests before, but they usually come out okay[it has been a few years tho']. I am not given to violene,but i get mad once in a blue moon.
TxC' has had some instances,perhaps like the diabetes rages,His was thryoid related. he no longer has a thyroid...
Lest I ramble more I'll wander off... Silverwolf the wanderer!
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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bettyg
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posted
TO ALL READERS:
make sure MY PROFILE is edited to show you want to read ALL THREADS FROM ANY DATE vs. only 30 - 60 days.
Then when you do a SEARCH, it will bring up the dates you want vs. cutting you off due to the 30-60 days ok!
More info, be sure to read faq, FREQUENTLY ASKED QUESTIONS at the top of page near search! thank you all....
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![[Roll Eyes]](rolleyes.gif)
] He definetley concedes that a person can be bitten and not realize which could lead to problems later on.
![[Smile]](smile.gif)
I hope your daughter is feeling better.![[lol]](graemlins/lol.gif)
Chocolate is my drug of choice as well!!! ![[dizzy]](graemlins/dizzy.gif)
early next week. ![[Eek!]](eek.gif)
. It has to be fasting for both blood sugars and WB,so o'po' me' will have to pray my beastly veins cooperate.![[bonk]](graemlins/bonk.gif)
This Wolf is hungry...BBL!!! I mus'be dood....I mus' not eat sugary stuffs... i'm in trubbble. chocolate cravin's are dangerous...hmmm should Ah live dangerouOOOOOssss.....
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