posted                

quote:

---

Originally posted by Jill E.:

But I must agree with Riversinger about her two comments.
I have a similar CD57 and still have active Lyme.

The B-12 shots are often recommended for nerve pain (I did them for awhile), for fatigue and for the anemia that can accompany celiac disease (autoimmune gluten intolerance).

However, many people with gluten issues are anemic but it is because of malabsorption of nutrients, not necessarily that there is any bleeding going on.

Does she think you have some intestinal bleeding? If so, I would be very concerned and not just assume that a gluten-free, casein-free diet will fix that.

Did you have an endoscopy or something to see if there is really any bleeding?

Yes, your CRP is high. Is she recommending any natural anti-inflammatories (sorry, I can't remember the whole list of supplements you posted).

What about fish oils? They are great for the heart and inflammation in general. I am glad to see you are on CoQ10 - great for the heart.

Also, you may want to ask her about a supplement called Monolaurin, which is Lauric Acid derived from coconuts. It has a good track record for fighting the herpes and Epstein-Barr viruses. It was one of the supplements I used to cure myself of Chronic Fatigue Syndrome years ago.

Lastly, I am going through neurotransmitter testing myself right now. Again, you know your body better than anyone. If you think the computer relaxes you, rather than stimulates you, you would be the best judge of that.

But Lyme, Chronic Fatigue Syndrome, some medications and who knows what else can disrupt the neurotransmitters of the Hypothalmus-Pituitary-Adrenal axis. So I personally just wouldn't blame the computer as the only culprit.

On the other hand, I think most of us who are stressed out from battling chronic disease (and I put myself at the top of the list) should try to do everything possible to find ways to reduce stress.
Please keep us posted on your progress.
Best of health as always,
Jill

---

Riversinger, I'll get back to you tomorrow on the concerns you mentioned.

My LLMD follows Dr. Teitelbaum's FATIGUED TO FANTASTIC book for chronic fatigue patients. I've just started it. She gives it to all her patients, but someone forgot to give it to me when I was there.

I'll look specifically in the chapters for the issues you addressed.

These areas are all knew for me, and I'm learning thru you EXPERIENCED lymies and reading books.

Jill, Internal bleeding.. I've had either 2-3 endoscopy's .. unknown growth that later a surgeon said was FATTY TISSUE and benign.

Although for years, I've had nose bleeds and 2 surgeries to correct a deviated septum CAUSING the nose bleeds. But I still bleed anyway. At one time, 1 MD said, "you're bleeding internally, but we can't figure out where"!

"bleeding" she uses is her expression for gluten/casein intolerances. Don't know why she thinks that way.

fish oils; 1 of those things I posted was a fish oii but I couldn't tell you without looking.

Tomorrow, I'll finally break down and buy a pill box; these are too many to do my "old" way plus the RX meds I'm still on.

Still reading thru everything. She enlarged her 25 page handout which printed to be 54 pages in the larger font for me.

If I didn't answer something, please ask again as when I scroll up/down; I still get lost in my comprehension & retention of things ok.

IP: Logged |