posted
I took it for a little over a year and never saw any help from it so finally quit.
I figured it was so low dose that it was worth the risk/reward and my local md thought so too. I think he was curious to see if it helped my sleep or any of the other zillion things it says it will help.
Not everything is helpful to everyone
Posts: 561 | From connecticut | Registered: May 2004
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dmc
Frequent Contributor (1K+ posts)
Member # 5102
posted
Yep, took it for 2 years before finding out lyme as cause. Went to the founder of it Dr. B in NYC. He was thrilled when we found out lyme was my cause of my MS. Once I started the lyme abxs, felt horrid right after taking LDN.
Dr. B. had me try lower, and lower again dosages but didn't help the awlful feeling. So had me stop while on lyme treatment.
Posts: 2675 | From ct, usa | Registered: Jan 2004
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LostCityAgent
Unregistered
posted
Well I am considering it because I am not CDC positive and my neurologic symptoms are not letting up and I am just over 2 mo. on 300 mg Doxy.
posted
Hi LCA, I think two months is too short to see your neuro symptoms let up. Many actually see them increase. So don't despair.
My husband has been on doxy, zith and pulsed flagyl for five months and still has symptoms. (He is better overall, though)
As to the LDN, there's lots of pwms that use it. Most say it helps with sypmtom management and it may raise NK cells so what the heck, it can't hurt.
Are you on any supplements?--these might help you feel better. The Cpnhelp.org site has a whole chart of recommended supplements-things like fish oil and B12 can really make a difference.
Well, we are travling to your Dr.P in August and are really excited about that!
Take care
Posts: 554 | From Naples, Italy | Registered: Jun 2006
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