posted
My brain fog has gotten much worse with treatment. Today I went to a craft store and had no idea what I was doing there so I left.
When I wake up in the morning I feel good cognitively because I have been laying down and have circulation to my brain. Then after 15 min of standing I am in a severe fog and everything is slow.
Taking in salt water for my POTS/dysautonomia used to help, but not anymore.
Does anyone else feel like this? I feel like I am in space. This is the worst feeling in the world.
Posts: 25 | From Chicago | Registered: Apr 2006
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Definetly worse fog in treatment & while herxing.
Last week I forgot how to park my car. Took me 3 times around the drive to figure it out. And that was only from taking 4 days on doxy!
It feels like somethings missing and I can't figure it out. Kinda like my mind is in a blurr.
My brain fog has gotten better with treatment(3 years) but not gone completely. Still have my "lyme moments"
I wouldn't be here typing this if I had not herxed and gotten my germ count down. There where scary days though. But in the end for me so worth it.
Hang in there it does get better over time.
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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Lymelighter
Frequent Contributor (1K+ posts)
Member # 5310
posted
My fog is both a physiological tight, dazed, pressure sensation around my forehead and the neurocognative issues of being spacey and unable to think clearly at times.
Posts: 1010 | From Mars | Registered: Feb 2004
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Before, it was just my body failing me...now it seems like my mind is gone too.
I woke up crying in the middle of the night last night for no reason. I just hugged the pillow.
I'm in the middle of IV treatment and blame it on this. Otherwise, I've just gone crazy and don't care about anything. Except that I'm so sad and confused about what to do.
Is this a life? Posts: 867 | From PA | Registered: Jan 2006
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lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
all of the above.
The last time the fog left was after a doxy herx.
The next day the fog lifted for 4 hours. I was like "oh my GOD I feel REAL and alive" "this is what normal feels like"
Then it was back to fog city. The worst is the fog and the dull pain and fatigue that I get every day!
ANyway I had to stop the doxy because I was herxing to much, I would get so depressed and my skin would burn.
The LLMD told me to do coffee enemas. I did 2 and then he told me to try the doxy again. Well I did and then after that I had a mold exposure that left me out for a week!
I think Im gonna take a medical leave of absense from work so I can introduce doxy into my system and begin to feel better again.
Im just tired of all the drugs. Now im taking low doses of diflucan to try and clear some things up.
That could be why im so sensitive to mold.
Posts: 2905 | From New England | Registered: Sep 2004
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posted
At its worst, I used to describe my brain fog as a "bad acid trip that never ends". I have never done acid but I could only guess that is what its like. I would have to touch objects and say their name. I can't describe.
As that severity faded with time and tx (definitely got worse with herxes), it became more of a real severe disorientation and disconnect, combined with depression (partly reactive to the state I was in and partly straight out chemical-imbalance like).
This gets exaccerbated by dizziness and/or imbalance that will often accompany it. So it seems there is a cross between inner ear and brain activity that is malfunctioning.
Nowasays the brain fog is brought on by different foods (preservatives, msg, spicey), bright lights or flourescent lights, excessive stimlui of any sort (including noise)... lack of sleep, herxes, chemical smells, cell phones.
It sometimes feels like a slight mania or depression preceeds it.
That's all I can think of for now.
Posts: 588 | From Rhode Island | Registered: Jun 2006
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posted
Fortunately I'm out of brain fog now. When I was in it I felt drugged. I could only do the simplest things. I could not multi task. I could not follow a sequence of steps since I would forget what I was doing. I had no memory. I was spaced out and would spend hours staring into space. hatsnscarfs
Posts: 956 | From MA | Registered: Nov 2004
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johnnyb
Frequent Contributor (1K+ posts)
Member # 7645
posted
I am in a more or less constant mental fog with brief periods of lucidity.
Can't remember to do stuff unless I write it down, so I tend to carry quite a few papers.
Creativity down. Motivation to do things (including going to the doctor or helping myself) way down. Energy down.
When I actually do go the doctor, unless I take time and write down all my symptoms ahead of time, I won't remember many of them.
Stupidity way up!
Blech!
- JB
Posts: 1197 | From New Jersey | Registered: Jul 2005
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johnnyb
Frequent Contributor (1K+ posts)
Member # 7645
posted
quote:Originally posted by Lola: When I wake up in the morning I feel good cognitively because I have been laying down and have circulation to my brain. Then after 15 min of standing I am in a severe fog and everything is slow.
Does anyone else feel like this? I feel like I am in space. This is the worst feeling in the world.
BTW, yes, I feel like I am in permanent slow motion.
- JB
Posts: 1197 | From New Jersey | Registered: Jul 2005
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JimBoB
Unregistered
posted
quote:Originally posted by lymeHerx001: all of the above.
Im just tired of all the drugs. Now im taking low doses of diflucan to try and clear some things up.
That could be why im so sensitive to mold.
I can sure understand that. WHY don't you take some herbs to clear up the brain fog? I have had it a few times, but not many since I started serious treating of my Lyme last November 25th. Before treating, it was terrible.
Heavy pressure on top of the head, headachey, loss of memory, vision very blurred, etc.. After a few days on certain herbs, and it was totally gone. And has been except for a couple of times, just a little, and once, about two weeks ago, a lot.
I still have my moments the past few days, with memory loss, but for the most part all those other symptoms are gone again. Sure hope they stay away.
I am careful NOT to take any abx, and being more careful on WHAT and how much herbs I am taking now too.
You shouldn't HAVE to put up with that. Make some GOOD changes. It feels too good to feel good to put up with feeling bad so much. Follow me?
posted
i am in the middle of a doxy herx right now. My mom has told me to 'take a tylenol' when i've been in the middle of one of these before.
it's a tight, painful feeling in the head yet it's not a headache exactly. right now I have a sensation like I wanna throw up but I hardly ever do.
i wish i knew how to describe the pain to people. they say, "show me where it hurts". i cannot. i can't show them where it hurts.
Posts: 15 | From USA | Registered: Jul 2006
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posted
Thanks everyone for replying, now I don't feel so alone on this. Hope everyone's brain fog gets better.
Posts: 25 | From Chicago | Registered: Apr 2006
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posted
Jim Bob, can you elaborate on herbs for brain fog, head pressure?
Posts: 103 | From California | Registered: Jan 2003
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Carol B
Unregistered
posted
I was prescribed SAMe and Acetly L-Carnitine as supplements for brain fog by LLMD.
I also happen to take Keppra prescribed by neurologist for seizures-although I do hope to stop taking it at some point-for now-I do think it is helping my brain function.
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