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» LymeNet Flash » Questions and Discussion » Medical Questions » first line of treatment

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Author Topic: first line of treatment
firepipersnurse
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Member # 9637

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hi, i'm the negative lyme person from uxbridge, ma who has had transient symptoms for possibly, 4-6 weeks, after a dose of zpac for sinus problems i felt worse and now am feeling so much better, except for brain fog. i feel in order to get the right treatment because i tested negative five days into my zpac, i should go to a new primary. what is the best course of oral treatment i shoudl pursue from here?

although my opthamologist says, my eyes are healthy, i'm still scheduled for a neurologist on monday (very scared she'll find plagues) but if i'm feeling better after antibiotics and felt worse at first i would like to find a new primary and say hey i found a tick on me and a rash and want oral abx, they will not hurt me if for some bizarre reason i don't have this. i was totally healthy before all this happened and my symptoms were never constant so i;m starting to think it wasn't ms, as i was really afraid of before....suggestions are welcome. i hate to "fudge" to the healthcare system but nor do i want to have chronic problems this early on and hey, i've been to two e.r's who said, pinched nerve and benighn vertigo and here's some ativan, are you stressed?
thanks
karen

Posts: 68 | From uxbridge, mass | Registered: Jul 2006  |  IP: Logged | Report this post to a Moderator
lymie tony z
Frequent Contributor (1K+ posts)
Member # 5130

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Ohhh

So you DID experience a Jarosch Herxeimer reaction to the zith....

Well now that IS significant...

Some say that treating possible co infections is the proper way to attack TBDs....

So ya might want to try mepron with the zith and see how things go...

Then switch to IV ceftriaxone...Rocephin...

or ORAL doxycicline...ammoxicillin or even IM
pennicillin...and pulse some flagyl for good measure.

Oh yeah... do NOT forget to do some probiotics...cuz these antibiotics WILL give you a yeast problem if you dont.......

Good luck.......

--------------------
I am not a doctor...opinions expressed are from personal experiences only and should never be viewed as coming from a healthcare provider. zman

Posts: 2527 | From safety harbor florida(origin Cleve., Ohio | Registered: Jan 2004  |  IP: Logged | Report this post to a Moderator
Michelle M
Frequent Contributor (1K+ posts)
Member # 7200

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Hiya Firepipers Nurse. You will have to tell us what your name means!

First of all, you're not the "negative lyme person" because I'm pretty sure that some junk lab tested you. Therefore, you haven't really been tested. After you've been tested by IGeneX, then we'll see where you're at! Bet things will look a lot different!

Second of all, as Tony points out, having a reaction to Zithromax is somewhat diagnostic of lyme. Not 100% certainly, but pointing toward it.

Third of all, even if you talk some duck (our fond term for NON-lyme literate docs, i.e., MOST of em) outta a few weeks of doxycycline, he'll probably give you (a) not enough doxy, and (b) not for long enough.

Fourth, ain't no way he'll test you for co-infections. Most likely, he's never even heard of 'em, or considers them "rare." In truth, what's "rare" is NOT to have one or more. And you're NOT going to get better from lyme while you have co-infections. Truth.

Now, you could try and teach your Duck all these things. But ducks resist. They dig in their webbed feet. They become annoyed. They quack back at you. They call you a hypochondriac, or worse -- "internet doctor."

This is why it's imperative to find an LLMD - a lyme literate medical doctor.

As soon as possible.

You could have brain lesions. However, this does not mean you have MS. Many of us on here have brain lesions but do not have MS. Also, many with lyme have perfectly normal MRI's, but a more sophisticated test, a "SPECT scan," would show marked perfusion deficits in the brain that account for the cognitive or "brain fog" difficulties common to lyme patients.

Please try and find a knowledgeable doctor or, if you simply cannot, try to see if YOUR doctor can at least consult with one recommended by ILADS. It will make all the difference!

[group hug]

Michelle

Posts: 3193 | From Northern California | Registered: Apr 2005  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

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Here's your homework!!

Treepatrol's links
http://flash.lymenet.org/ubb/Forum5/HTML/000569.html
Tincup's Links for new members
http://flash.lymenet.org/ubb/Forum1/HTML/009342.html

Dr. B's Guidelines
http://www.ilads.org/files/burrascano_0905.pdf
http://www.ilads.org/burrascano_1102.htm

Western Blot explanation:
http://tinyurl.com/ffn3x

When to Suspect Lyme Disease
http://tinyurl.com/lx2pz

The cause and spread of Lyme
http://flash.lymenet.org/ubb/Forum1/HTML/032259.html

More info:
http://www.ILADS.org/
Camp A and Camp B
http://flash.lymenet.org/ubb/Forum1/HTML/021395.html
Lyme Wars
http://www.wildernetwork.org/Lyme_Wars.html
Lyme Disease Support Groups
http://www.lymeinfo.net/support.html
Abbreviations for Lyme-speak
http://flash.lymenet.org/ubb/Forum1/HTML/020494.html

Making the most of your LLMD visit
http://flash.lymenet.org/ubb/Forum1/HTML/020605.html
Success Stories
http://flash.lymenet.org/ubb/Forum1/HTML/022173.html

Wild Condor's Links and information:
http://www.wildcondor.com/lymelinks.html

Matthew Goss's website:
http://www.anapsid.org/lyme/matthewgoss/

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--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 94529 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
   

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