posted
Hi, Sorry to bother you with another probelm. I'm a little frightened. My heart has been racing (100-125) since last Thursday. I also have an awful headache which wakes me up at night, but is better during the day and constant diarrhea. I haven't felt this ill in years, and certainly not since starting treatment.
I spoke to my LLMD on Saturday, he is out of town, but he was concerend about a possible sinus infection and parasites. He wanted me to be seen by his colleague (an ND) today for a five minute check. ND's receptionist said they have no time all week, not even a five minutes.
I don't have good insurance and am hesitant to got to an ER or doctor other than my LLMD.
I have been trying to drink loads of water with minerals in case some of this is dehydration.
Other than that...I don't know. I have been focusing on treating Babs (artemesin, VRM1 and two rife sessions a week ago), and do have symptoms of a sinus infection. The last time I felt this bad (2002) I had pericarditis with an abnormal rhytm (multifocal atrial tachycardia).
Any wisdom would be much appreciated!
Posts: 628 | From the south | Registered: Dec 2005
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Heart problems are something we should never ignore. It might be lyme or it might not be. Your best bet is to go and have it checked. I hate to say this but.......you should probably goto the ER if you can't get to see your normal LLMD.
I have had the racing heartbeat several times over the last couple of years. I always took it seriously and have had full cardiac work ups each time.
mbroderick
Frequent Contributor (1K+ posts)
Member # 5220
posted
My son had Tachycardia during his Lyme treatment, too. His LLMD had him take Toprol XL - a beta blocker - which helped him considerably. You need to be sure that what you have is caused by Lyme, though, and not another type of heart problem.
Posts: 2097 | From PA | Registered: Jan 2004
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posted
Okay, first of all, try to relax because you are only going to make the tachycardia worse if you don't. Question, have you taken your pulse or has a machine taken your pulse? If you have gotten your figures from you taking your pulse, then the easiest thing to do without going to a doctor is to go to a drug store and take your blood pressure and pulse on one of those bench machines. Then you know the exact figures that you are dealing with so if you need to go to the ER, you know for sure and can tell them for sure what your pulse rate is. If your heart rate is really in that range that you mentioned, then you have something called Sinus Tachycardia. At those numbers, the doctors at the ER will do nothing for you because your pulse rates aren't high enough to give you corrective medication. ON THE OTHER HAND, you have a pretty serious history of heart problems, so ANY abnormality concerning your heart is truly nothing to fool around with, and if it turns out that you will have to go to the ER, and the doc on call poo poos your issues, PUSH LIKE HELL to get a cardiology consultation.
Take Care and let us know what happens, K-lyme
Posts: 227 | From CA | Registered: Apr 2004
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I did make an appointment to see a good internist, who appreciates that lyme is a difficult multisystemic disease. My insurance will pay for the visit and any generic meds, but I will have to pay out of pocket for the EKG and labs (towards the really high deductible). I want only the absolutely necessary labs as I don't have the money to pay for a full panel.
I used a computer program to measure my HR -- heartmath, designed for autonomic control. It tells your beat to beat heart rate and then the average heart rate. Right now, my HR went up to 135 and down to 99.
I have been using the program for over a year, and used two different versions so it's not a problem with the program. I feel jittery and shaky also.
I guess this is frighening as I haven't had cardiac problems in 4 years. But I also recently started dealing with the babs.
Biggest source of peace is that my LLMD is a board certified cardiologist.
Sorry for the rambling. You are so kind to read (listen) to me!
Posts: 628 | From the south | Registered: Dec 2005
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posted
Bea, I stopped the CoQ10 (became allergic to it) and haven't found a good clean brand I can tolerate with my MCS and food allergies. That is an excellent point.
I have been consistant in taking my meds until the last month when I started feeling ill.
VRM1 is an herbal formula by systemic formula. It is an antipartatic that also has some action against Babesia. I did stop my Artemesinin on Sunday night as scheduled, but my HR has gone up.
Could a Babs herx really do this. I haven't been able to sleep for the first time in many moons due to the jittereness.
Thanks, Suruchi
Posts: 628 | From the south | Registered: Dec 2005
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Truthfinder
Frequent Contributor (1K+ posts)
Member # 8512
posted
Suruchi, I don't know about Artimesinin, but the "herxing" I get from Samento is all heart related - more palpitations, bouts of tachycardia, odd fainting spells.
So, I would suspect your Babs treatments may be causing you to herx.
Tracy
-------------------- Tracy .... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�. Posts: 2966 | From Colorado | Registered: Dec 2005
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quote:Originally posted by serendipity: Could a Babs herx really do this. I haven't been able to sleep for the first time in many moons due to the jittereness.
Absolutely! I ended up in the ER twice in one week because of babs herxing!! Tachycardia was the main problem.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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Dr. took me seriously, but we are both at a loss for an explanation. My EKG was normal sinus rhythm of 96. He both decided not to due the full cardiac work up as I have had it in the past (1993, 1996, 2002, and 2004) and it has always been normal. Even when I had the myocarditis my echocargram and holter were normal.
My orthastic vital signs were interesting lyning down HR 64 BP 107/72 sitting HR (forgot to check) BP 88/60 standing HR 104 BP 98/65
I maintained my blood pressure when standing up but my heart rate increased by 20 bpm, up to 104. I was dizzy and shaking when standing.
This usually indicates dehydration. I have been drinking water with minerals. I do have diarrhea, so he said to cut down on Mag Malate. And gave me a beta blocker.
He wasn't familar with Babesia or artemisinin and couldn't comment on that.
I don't know why I am feeling this way, but it troublesome. I was so shaky that it was difficult driving home.
Posts: 628 | From the south | Registered: Dec 2005
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I'm getting more aggravated and frightened. My heart is still racing, and I am dizzy. During the day I can't stand up and night can't sleep. My muscles hurt, I can't focus and the abdominal pain and diarrhea are getting worse. My breathing is labored and difficult.
I have been eating less and my weight is 89lbs. Prolonged tachycardia does that to me- all the energy burnt in keeping my heart going results in weight loss. A year ago I had gotten my weight up to 97lbs from 84lsbs.
I stopped three doses of Mag Malate, but perhaps it will take time.
I'm concerned about driving on the highways this weekend to see my LLMD, he's about an hour and half away. And I wish I knew now -- or at least had an inkling-- of what is going on.
[ 23. August 2006, 10:34 AM: Message edited by: serendipity ]
Posts: 628 | From the south | Registered: Dec 2005
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You sound like I did a couple of years ago. Some things I have done. For sinus problems I use a grossan irrigator, add warm saline with some colloidal silver.
This did a number on my CFS. Pathogens love the sinuses. Sense irrigation I've had zero problems except around allergy season.
As to the tachycardia my guess is it's the bodies attempt to clean out toxins from infections. I also had a corresponding HBP. Not a good combo.
For this I used a carb restricted diet with colloidal silver as my main weapon. Start very slowly then build up. If you think you need more, naturopaths from my experience will do IV silver colloidial for you.
It gets better...Best of luck
Posts: 731 | From Humble,TX | Registered: Feb 2005
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posted
hi Is it possible you have some kind of autonomic dysfunction from the lyme?
I have POTS (there was a lot of discussion about it a few weeks ago here), and am very familiar with the tachy.
I was on medication for a while, and they both stopped working for me. I use oxygen now when I have a hard time.
What made me think of this was the discrepancy in numbers with sitting, laying, standing, etc.
That your dr thought to check out this difference seems to indicate that he is more knowledgeable about this than many doctors I've seen.
You may want to do an experiment---take your pulse sitting, and then stand in one place for 5 minutes, and take your pulse (and preferable bp too) again. If the pulse is increased by 30 beats or more, you may have POTS.
It's good you checked this out.
If it is POTS, it is thought to be more annoying and disabling than actually dangerous. But scary and really uncomfortable.
Posts: 169 | From former Philadelphian | Registered: Jun 2006
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posted
Hi Guys, BrentB, Thank you for sharing your experience. I have had a low grade sinus infection for months and it has only recently started bothering me. I saw the ND today and he started me on a silver nasal spray.
I did the irrigation last night and my head felt lighter and clearer. Guess there is a bunch of gunk in there.
I also have MORE parasites, and started on another herbal. He also thinks the diarrhea is my bodys way of detoxing. He energetically tested to see if I needed an antidiarrheal and the answer was a resounding no. So my body wants to flush out whatever is there. I'll need to hydrate in the interim.
Hi AM, I'm sorry you have POTS. A few years ago I had "borderline" POTS (2004), not meeting the criteria by a few points. I've also had a full work up for autonomic dysfucntion at the Beth Isreal Hospital in Boston, and the doctor was suprised that all my tests were normal. The symptoms of dysautonmia resolved quickly. It was a frigtening time.
I don't know why I would have the symptoms again NOW but that is the nature of this disease. It seems to offer many questions and few answers.
I was impressed by this doc. He even said that he picked up two cases of early lyme after he first saw me last fall. Seeing my case impressed on him the importance of treatng early. In once case the woman developed neurological symptoms two weeks after the tick bite, and he encouraged her to start IV antibiotcs but she refused. He's a caring guy opening to learning from his patients.
Posts: 628 | From the south | Registered: Dec 2005
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posted
live near boston and pcp thinks i have dysautonomia of cns. she says it is widely known in europe but not so much here
testing available at beth israel
what does this entail?
sorry to hear you feel this way
i do too wired/anxious yet unable to rest properly
it makes me want to admit myself to a hospital for proper care until this STOPS and i can have my normal life back
board is so informative and caring yet at times overwhelmed by what seems to need to be done!!!
it is so weird to feel so heavy headed and yet not sleep i guess it dores include rapid heart rate also having MAJOR shin splints and aches all over stabbibg pains
feel free to pm me
hope you are better Posts: 225 | From home | Registered: Aug 2006
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bettyg
Unregistered
posted
Please have a supportive famliy/friend go with you on your drive; they can also help out driving as my friend did 4 times for me going our 500 miles roundtrip. Bettyg
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posted
I want help- I actually had testing done at Beth Isreal in 2004 by a Dr. R. F. The testing is fairly long, most of it consists of a tilt table test to see if you heart and blood vessels respond appropriately to postural changes.
At the time I was feeling as ill as you describe, I could not function at all and was really jumpy. When I had my iniital evaluation, the tested orthostatic vitals (blood pressure at lying, sittind and standing) and while I don't remember the details, they were higly suggestive of dysautonomia. So they rushed and ordered the tests, and everything came back normal. I felt better soon and the symptoms resolved. Which can
Betty- I'm on my own in TX, came here right before my diagnosis, and as I haven't been able to work or go to school don't have a large support system. Family is far away and does not believe I am ill.
Friends know that I am ill, have had a difficult time driving to doctors offices, getting grocercies in the past but have not offered to help. So I will do this on my own. I may take the long way -- the local roads so the trip will be two hours instead of a little over one. But thank you for being concerend.
Posts: 628 | From the south | Registered: Dec 2005
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