posted
Before you read this, please read my post in the seeking a doctor section!
1: J Neurol Neurosurg Psychiatry. 2006 Sep;77(9):1090-1. Links Opsoclonus-myoclonus as a manifestation of Lyme disease.Peter L, Jung J, Tilikete C, Ryvlin P, Mauguiere F. Service de Neurologie et d'Epileptologie, Hopital Neurologique, 59 Boulevard Pinel, 69003 Lyon, France. [email protected]
Opsoclonus-myoclonus syndrome (OMS) is a rare condition that includes chaotic multidirectional saccadic eye movements associated with myoclonus and ataxia. In adults, it is usually considered to be an autoimmune disease occurring either in a paraneoplastic context or after central nervous system infection. We report the case of a patient who presented with the classic features of OMS as a manifestation of acute Borrelia burgdorferi infection that was shown both on serum and cerebrospinal fluid examination. The outcome was favourable after prolonged antibiotic treatment. Lyme disease could be added to the list of aetiologies to be screened in OMS, as it would allow effective treatment and avoidance of unnecessary investigations.
PMID: 16914760 [PubMed - in process]
Posts: 559 | From Cary, NC | Registered: May 2006
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I don't guess they told him to go do some eye exercises and everything will be ok?
Hubby had a VNG (VideoNystagmoGraphy) test which showed mild nystagmus. Was told to do saccadic retraining eye exercises.
His saccadic testing results were obviously much less severe than the patient, but test results did justify repeat brain MRI. Quote -- VNG findings are consistent with mild CNS pathology ...-- End Quote
It is so frustrating when docs (especially the specialists -- this was a neuro-opthalmologist) can't think outside of the box.
Here is a link discussing all sort of weird eye movements and their relation to various cerebral disorders -- nothing about Lyme.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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Truthfinder
Frequent Contributor (1K+ posts)
Member # 8512
posted
It appears that this was "discovered" in France.
Isn't anyody paying attention on this side of the Pond?
Tracy
-------------------- Tracy .... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�. Posts: 2966 | From Colorado | Registered: Dec 2005
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I had something similar to this when I was at Mayo Clinic - misdiagnosed of course. I think it was nystagmus but it could have been OMS. It would happen every time each NEURO duck would examine my cranial nerves. Once it made me go into full body myoclonus activity.
"Hmm, that's interesting," said the duck, along with commenting on my positive Romberg sign, Babinski's, hyperactive reflexes on one side, and unequal pupils.
Chart said, of course, neuro exam within normal limits and referred me to a shrink for counseling because they conluded there was no physical cause of my "psuedo-seizures" and "migraines" and sensitivity to light and sound and stiff neck and paresthesias and facial numbness and memory problems and .....and.... and....
Quackery at it's finest.
-------------------- **Eat Chocolate** Posts: 942 | From USA | Registered: Mar 2005
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klutzo
Frequent Contributor (1K+ posts)
Member # 5701
posted
Very interesting. My first misdiagnosis was MS, based on frequent and urgent urination, numbness and tingling in extremeties, and a "great left beating nystagmus", which caused me to fall over a lot. In those days there was no such thing as MRI.
Klutzo
Posts: 1269 | From Clearwater, Florida, USA | Registered: May 2004
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